A CT depicting an individual with Empty Nose Syndrome-Inferior Turbinate after resection that created the disease

Recognition of Empty Nose Syndrome

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healthcare authorities

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We signed the "Recognition of Empty Nose Syndrome" petition!

# 143:

10:52 pm PDT, Oct 24, Name not displayed, Washington

# 142:

9:13 am PDT, Oct 15, Ferry Wuysang, Indonesia

# 141:

8:54 pm PDT, Oct 1, Kaileb Sheets, Oregon
This condition has robbed me of 3 years of my life. I'm not even being melodramatic- THIS IS HORRIBLE. I was a completly healthy 19 year old before this. Now I can barely make it through the day. Please recognize and help us! Thanks to all the responsible docs out there.

# 140:

1:57 am PDT, Sep 20, Amit Shah, India
all the ENTs, please understand ENS and help to prevent it.

# 139:

7:41 pm PDT, Sep 19, Lindsey Thurlow, Michigan

# 138:

4:35 pm PDT, Sep 19, Name not displayed, United Kingdom

# 137:

9:26 am PDT, Aug 25, Philippe Bourgeois, Germany
Like formulated in Russia, the rule number one of any medical intervention should be: DO NOT HARM! In western countries however medicine is more about making money than healing. ENS sufferers have to go through hell, so that their doctors can make some more money.

# 136:

5:38 am PDT, Aug 20, Tzabari Noah, Israel

# 135:

11:06 am PDT, Aug 18, John Deal, North Carolina
I had inferior turbincetomy in 1994. My life changed for the worse. It's like being in an episode of the Twilight Zone. You tell doctors about the extrme dryness, facial pain, and changes in mood, including suicidal ideation. I suppose if I never had the surgery I wouldn't belive someone who told me they had the condition either. Even ENTs [I've seen 10-12 since surgery, without receiving help]don't acknowledge it and see it as purely psychological phenomena. My problem is I was on disability for depression before surgery,which diminishes my credibility greatly. I was off all medications though, until after surgery, when I developed suicidal thoughts as the stress wore me down and I had to go back on prozac and klonopin. "Just cotinue talk therapy" one ENT said. Well I did. But all I talk about is the hellish existence of my life since my turbincetomy. The meds help some, but don't stop the nasal dryness, hyperventilatiopn, and terrible nasal pain and sinus infections. Let's get this ball rolling. I hope stem cells is the answer, as I hope it would enable us to become normal again. John Deal

# 134:

12:00 am PDT, Aug 17, John Danz Jr., Texas

# 133:

6:35 pm PDT, Aug 12, Tatiana Anuff cruz, Colombia
Please visit this website for further information: http://www.emptynosesyndrome.org/index.html Ask the healthcare community to recognize Empty Nose Syndrome (ENS). Por favor visite este sitio web para mayor información: Pregunte a la asistencia sanitaria http://www.emptynosesyndrome.org/index.html comunidad internacional a reconocer el síndrome de la nariz vacía (ENS).

# 132:

7:48 pm PDT, Aug 3, Name not displayed, Illinois
Please help these poor people!

# 131:

6:13 pm PDT, Aug 2, Molly Flynn, Illinois

# 130:

3:23 pm PDT, Jul 31, Crystal Myers, Illinois

# 129:

10:34 pm PDT, Jul 30, Robert Beamer, Indiana

# 128:

12:52 pm PDT, Jul 30, Britni Senkiw, Illinois

# 127:

8:27 am PDT, Jul 30, Tom Nevison, Illinois

# 126:

5:34 am PDT, Jul 30, Katie Goodwin, Michigan

# 125:

12:59 am PDT, Jul 30, John Flynn, Illinois

# 124:

8:00 pm PDT, Jul 29, Marshall Tarlin, Illinois

# 123:

7:32 pm PDT, Jul 29, Name not displayed, Illinois

# 122:

2:56 pm PDT, Jul 29, Whitney Hess, Michigan

# 121:

12:29 pm PDT, Jul 29, Allie Haremski, Michigan

# 120:

11:24 am PDT, Jul 29, Gayle Peterson, Illinois
Wishing all those who suffer from this "the best".

# 119:

10:14 am PDT, Jul 29, Frank Vito, Illinois
good luck!

# 118:

10:04 am PDT, Jul 29, Mariann Tausch, Kentucky

# 117:

9:14 am PDT, Jul 29, Dennis Andrews, Michigan

# 116:

8:44 am PDT, Jul 29, Ashley Lynn St.Laurent, Texas

# 115:

4:04 pm PDT, Jul 28, Name not displayed, Illinois

# 114:

3:51 pm PDT, Jul 28, Callie Miller, Utah

# 113:

3:27 pm PDT, Jul 28, Name not displayed, Illinois
Please help this cause in anyway possible, suffering from this disease is the worst, If you break a body part it heals, this doesn't heal itself its like a cancer with no known cure right now.Its painful and depressing your life and your family,freinds and job suffers. I constantaly feel like i'm running in a circle like a cat chaing its tail. I'm good for a day then bad for four my life sucks because i wanted my sinus's fixed and a cyst removed but instead I have ens now. Please help us!!

# 112:

5:55 pm PDT, Jun 28, Gary Vance, Kentucky

# 111:

1:39 pm PDT, Jun 28, Ed Folker, Nevada

# 110:

7:13 am PDT, Jun 25, Name not displayed, Canada

# 109:

1:19 am PDT, Jun 25, Mario Ponte, Canada

# 108:

1:12 pm PDT, May 31, Name not displayed, Ohio

# 107:

12:24 pm PDT, May 13, Shane Mings, Washington
I had bi-lateral partial turbinectomy done in November of 2001 at the age of 21. I had a very respectable career in the U.S. Air Force going for me at the time, my health problem pre-turbinectomy was sinus headaches and nose congestion, after the surgery my symptoms are too many to count, extreme fatigue, hardly able to sleep, lack of feeling/emotions,etc.... just a couple days before the surgery I went on a good long run, say 5 miles, after the surgery I had days where I could barely walk across the room, I felt these symptoms immediately, some people don't really have bad symptoms until years down the road(must be do to residual atrophy over time, my assumption.) I knew something was very wrong from the get-go, this surgery involving the turbinates felt nothing like the septo-plasty I had a couple years before. I think I had a lot of things going for me before the surgery, now I eek out a living working part-time at a grocery store and going to college part time on the G.I. Bill(it is very hard to think, concentrate and the energy to do a thorough and good job on reports and even assignments and tests.) I am not the same person, all because some doctor and many others out think its ok to mess with the turbinates, maybe a very little amount, but I even had what was considered a conservative technique involving sub-mucous resection( although on the left later on I found out the left side, it was mostly the anterior that was cut out at 50%.) I don't know what else to say, I hope that doctors really take into consideration this surgery and put a stop to many forms and that many doctors look into a plausible cure, I hope one day that the inferior bone can be regenerated/reconstructed.

# 106:

10:22 am PDT, May 5, Nir Alon, Italy

# 105:

3:45 pm PDT, Apr 21, Teresa GINTER, Kentucky

# 104:

10:03 am PDT, Apr 21, Sharon McDaniel, California
I re great this surgery more than anything in the world I would give everything I have to get my life back I'm in chronic pain 24/7 If only I knew what I know now God Helps us all. I pray that all ent's get this ENS that it is real Please believe your PT. people our taking there life's or they have tried to I tried 3x thank God I'm still here, I have had 2 sinus surgery this 1st one messed me up big time I have blurred vision I can't breath my nose feels like red chili pepper with a blow dryer its dry burns i fight with depression I can't rinse anymore I have put more stuff up my nose I have used everything you can think of to keep my nose moist NOTHING works. one surgery to repair the dime size hole in my septum that was a big surgery it only lasted 3 weeks and now my nose is rotting inside the outside still hurts so bad I can't wear my glasses I hv dry eyes and ears now my face has changed I don't no what else this last dr did it feels like the bone wear my glasses sit is trying to poke through I have a sore on the outside and the shape of my nose is real bad Please Help us.. I have had upper/lower Jaw surger 2 lower spinal surgery and many more, But this sinus surg, changed my whole life, And now most likely I have to get to Dr.Houser and I can only hope he can fix the mess of 2 ent's.So I pray I can see him cause I will not see any other ENT that I promise you. I Hope my Lord Jesus will heal me so I don't have to go to any doctor's. Oh and by the way my marriage is over due to the fact it's very hard to be Me everyday, this is very hard for our family's to watch there loved ones suffer like this when dr's can't do much for us at all. So that's why I'm very grateful to Dr Houser and TE, CM, David ,and all PT in the ENS forum this self help place has been a saving grace without this help I'm sure I would not be here as well as many other's that suffer after this sinus surgery.Please ENT' of the world get smart and get back to learning. Thank You. Sharon Please forgive my misstake I hope you get where I'm comming from my FACE hurts. Thanks Sharon

# 103:

4:36 pm PDT, Apr 15, William Moore, California
This is a medical emergency that needs to be addressed immediately. I'm in the beginning stages of ENS and I know that it only get worse. What a nightmare. Please help.

# 102:

7:00 am PDT, Apr 8, G DeForge, Minnesota
Removing turbinate tissue creates sinus cripples...taking in air across damaged or destoyed turbinate tissue can cause severe health problems, great emotional distress, depression and increased anxiety as one struggles air flow problems with each breath. I hope for positive stem cell usage and tissue regeneration for all but especially for the poor who cannot otherwise reach services. Families are impacted, careers can be gone, financial and emotional devistation does result. Please stop the cut, you so called ENT doctors/specialists. Many of you are not helping us you are hurting us. ENS is real as well as associated syndromes.

# 101:

5:34 am PDT, Apr 4, Name not displayed, Oregon

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