Recognition of Empty Nose Syndrome
Target:
healthcare authorities
Sponsored by:
for more information see: http://www.emptynosesyndrome.org/index.html
Statement of Mission
Statement of Mission
The ENS Association is a nonprofit, 501(c)(3) public charity that was founded in 2005. Our primary mission is to increase medical and scientific awareness of the devastating impact of this disability on the lives of ENS sufferers, promoting the pressing need for a cure.
The Association's mission is to :- Educate patients and their families about Empty Nose Syndrome.
- Increase public and professional awareness of ENS.
- Encourage research into new treatments and a cure.
- Build a member list of ENS sufferers via our registration form.
- Raise money for ENS research
for more information see: http://www.emptynosesyndrome.org/index.html
Statement of Mission
Statement of Mission
The ENS Association is a nonprofit, 501(c)(3) public charity that was founded in 2005. Our primary mission is to increase medical and scientific awareness of the devastating impact of this disability on the lives of ENS sufferers, promoting the pressing need for a cure.
The Association's mission is to :- Educate patients and their families about Empty Nose Syndrome.
- Increase public and professional awareness of ENS.
- Encourage research into new treatments and a cure.
- Build a member list of ENS sufferers via our registration form.
- Raise money for ENS research
We the undersigned wish to convey:
Empty Nose Syndrome is a real disease process that should be recognized and dealt with in an open manner. These iatrogenic subjects should not be swept under the rug for fear of lawsuits. Real research and care is needed to correct this situation.
Thank you for openly accepting this disease and working to stop it.
Empty Nose Syndrome is a real disease process that should be recognized and dealt with in an open manner. These iatrogenic subjects should not be swept under the rug for fear of lawsuits. Real research and care is needed to correct this situation.
Thank you for openly accepting this disease and working to stop it.
We signed the "Recognition of Empty Nose Syndrome" petition!
# 112:
5:55 pm PDT, Jun 28,
Gary Vance, Kentucky
# 111:
1:39 pm PDT, Jun 28,
Ed Folker, Nevada
# 110:
7:13 am PDT, Jun 25,
Name not displayed, Canada
# 109:
1:19 am PDT, Jun 25,
Mario Ponte, Canada
# 108:
1:12 pm PDT, May 31,
Name not displayed, Ohio
# 107:
12:24 pm PDT, May 13,
Shane Mings, Washington
I had bi-lateral partial turbinectomy done in November of 2001 at the age of 21. I had a very respectable career in the U.S. Air Force going for me at the time, my health problem pre-turbinectomy was sinus headaches and nose congestion, after the surgery my symptoms are too many to count, extreme fatigue, hardly able to sleep, lack of feeling/emotions,etc.... just a couple days before the surgery I went on a good long run, say 5 miles, after the surgery I had days where I could barely walk across the room, I felt these symptoms immediately, some people don't really have bad symptoms until years down the road(must be do to residual atrophy over time, my assumption.) I knew something was very wrong from the get-go, this surgery involving the turbinates felt nothing like the septo-plasty I had a couple years before. I think I had a lot of things going for me before the surgery, now I eek out a living working part-time at a grocery store and going to college part time on the G.I. Bill(it is very hard to think, concentrate and the energy to do a thorough and good job on reports and even assignments and tests.) I am not the same person, all because some doctor and many others out think its ok to mess with the turbinates, maybe a very little amount, but I even had what was considered a conservative technique involving sub-mucous resection( although on the left later on I found out the left side, it was mostly the anterior that was cut out at 50%.) I don't know what else to say, I hope that doctors really take into consideration this surgery and put a stop to many forms and that many doctors look into a plausible cure, I hope one day that the inferior bone can be regenerated/reconstructed.
I had bi-lateral partial turbinectomy done in November of 2001 at the age of 21. I had a very respectable career in the U.S. Air Force going for me at the time, my health problem pre-turbinectomy was sinus headaches and nose congestion, after the surgery my symptoms are too many to count, extreme fatigue, hardly able to sleep, lack of feeling/emotions,etc.... just a couple days before the surgery I went on a good long run, say 5 miles, after the surgery I had days where I could barely walk across the room, I felt these symptoms immediately, some people don't really have bad symptoms until years down the road(must be do to residual atrophy over time, my assumption.) I knew something was very wrong from the get-go, this surgery involving the turbinates felt nothing like the septo-plasty I had a couple years before. I think I had a lot of things going for me before the surgery, now I eek out a living working part-time at a grocery store and going to college part time on the G.I. Bill(it is very hard to think, concentrate and the energy to do a thorough and good job on reports and even assignments and tests.) I am not the same person, all because some doctor and many others out think its ok to mess with the turbinates, maybe a very little amount, but I even had what was considered a conservative technique involving sub-mucous resection( although on the left later on I found out the left side, it was mostly the anterior that was cut out at 50%.) I don't know what else to say, I hope that doctors really take into consideration this surgery and put a stop to many forms and that many doctors look into a plausible cure, I hope one day that the inferior bone can be regenerated/reconstructed.
# 106:
10:22 am PDT, May 5,
Nir Alon, Italy
# 105:
3:45 pm PDT, Apr 21,
Teresa GINTER, Kentucky
# 104:
10:03 am PDT, Apr 21,
Sharon McDaniel, California
I re great this surgery more than anything in the world I would give everything I have to get my life back I'm in chronic pain 24/7 If only I knew what I know now God Helps us all. I pray that all ent's get this ENS that it is real Please believe your PT. people our taking there life's or they have tried to I tried 3x thank God I'm still here, I have had 2 sinus surgery this 1st one messed me up big time I have blurred vision I can't breath my nose feels like red chili pepper with a blow dryer its dry burns i fight with depression I can't rinse anymore I have put more stuff up my nose I have used everything you can think of to keep my nose moist NOTHING works. one surgery to repair the dime size hole in my septum that was a big surgery it only lasted 3 weeks and now my nose is rotting inside the outside still hurts so bad I can't wear my glasses I hv dry eyes and ears now my face has changed I don't no what else this last dr did it feels like the bone wear my glasses sit is trying to poke through I have a sore on the outside and the shape of my nose is real bad Please Help us.. I have had upper/lower Jaw surger 2 lower spinal surgery and many more, But this sinus surg, changed my whole life, And now most likely I have to get to Dr.Houser and I can only hope he can fix the mess of 2 ent's.So I pray I can see him cause I will not see any other ENT that I promise you. I Hope my Lord Jesus will heal me so I don't have to go to any doctor's. Oh and by the way my marriage is over due to the fact it's very hard to be Me everyday, this is very hard for our family's to watch there loved ones suffer like this when dr's can't do much for us at all. So that's why I'm very grateful to Dr Houser and TE, CM, David ,and all PT in the ENS forum this self help place has been a saving grace without this help I'm sure I would not be here as well as many other's that suffer after this sinus surgery.Please ENT' of the world get smart and get back to learning. Thank You. Sharon Please forgive my misstake I hope you get where I'm comming from my FACE hurts. Thanks Sharon
I re great this surgery more than anything in the world I would give everything I have to get my life back I'm in chronic pain 24/7 If only I knew what I know now God Helps us all. I pray that all ent's get this ENS that it is real Please believe your PT. people our taking there life's or they have tried to I tried 3x thank God I'm still here, I have had 2 sinus surgery this 1st one messed me up big time I have blurred vision I can't breath my nose feels like red chili pepper with a blow dryer its dry burns i fight with depression I can't rinse anymore I have put more stuff up my nose I have used everything you can think of to keep my nose moist NOTHING works. one surgery to repair the dime size hole in my septum that was a big surgery it only lasted 3 weeks and now my nose is rotting inside the outside still hurts so bad I can't wear my glasses I hv dry eyes and ears now my face has changed I don't no what else this last dr did it feels like the bone wear my glasses sit is trying to poke through I have a sore on the outside and the shape of my nose is real bad Please Help us.. I have had upper/lower Jaw surger 2 lower spinal surgery and many more, But this sinus surg, changed my whole life, And now most likely I have to get to Dr.Houser and I can only hope he can fix the mess of 2 ent's.So I pray I can see him cause I will not see any other ENT that I promise you. I Hope my Lord Jesus will heal me so I don't have to go to any doctor's. Oh and by the way my marriage is over due to the fact it's very hard to be Me everyday, this is very hard for our family's to watch there loved ones suffer like this when dr's can't do much for us at all. So that's why I'm very grateful to Dr Houser and TE, CM, David ,and all PT in the ENS forum this self help place has been a saving grace without this help I'm sure I would not be here as well as many other's that suffer after this sinus surgery.Please ENT' of the world get smart and get back to learning. Thank You. Sharon Please forgive my misstake I hope you get where I'm comming from my FACE hurts. Thanks Sharon
# 103:
4:36 pm PDT, Apr 15,
William Moore, California
This is a medical emergency that needs to be addressed immediately. I'm in the beginning stages of ENS and I know that it only get worse. What a nightmare. Please help.
This is a medical emergency that needs to be addressed immediately. I'm in the beginning stages of ENS and I know that it only get worse. What a nightmare. Please help.
# 102:
7:00 am PDT, Apr 8,
G DeForge, Minnesota
Removing turbinate tissue creates sinus cripples...taking in air across damaged or destoyed turbinate tissue can cause severe health problems, great emotional distress, depression and increased anxiety as one struggles air flow problems with each breath. I hope for positive stem cell usage and tissue regeneration for all but especially for the poor who cannot otherwise reach services. Families are impacted, careers can be gone, financial and emotional devistation does result. Please stop the cut, you so called ENT doctors/specialists. Many of you are not helping us you are hurting us. ENS is real as well as associated syndromes.
Removing turbinate tissue creates sinus cripples...taking in air across damaged or destoyed turbinate tissue can cause severe health problems, great emotional distress, depression and increased anxiety as one struggles air flow problems with each breath. I hope for positive stem cell usage and tissue regeneration for all but especially for the poor who cannot otherwise reach services. Families are impacted, careers can be gone, financial and emotional devistation does result. Please stop the cut, you so called ENT doctors/specialists. Many of you are not helping us you are hurting us. ENS is real as well as associated syndromes.
# 101:
5:34 am PDT, Apr 4,
Name not displayed, Oregon
# 100:
2:53 pm PDT, Mar 26,
Name not displayed, Romania
# 99:
6:39 pm PDT, Mar 19,
Name not displayed, New Jersey
# 98:
4:13 pm PDT, Mar 14,
Sheila Lightfoot, North Carolina
# 97:
10:55 am PDT, Mar 14,
B Garner, Massachusetts
# 96:
7:50 am PST, Mar 7,
Mary Brooks, Kentucky
# 95:
9:41 am PST, Mar 4,
Josue (Josh) Morales, California
I am Maritza's husband, Nathan's & Abbey's father. I work to develop treatments for cancer & infectious diseases through clinical trials, drug safety. In December 2006, my doctor said that bilateral inferior turbinate reduction would improve my breathing difficulty (diagnosed with allergic rhinitis & deviated septum) when I asked about side effects he only mentioned some swelling, mucous, bleeding & crusting. And this for about two months. Breathing improved for about 1 month but began to progressively worsen over time. In September 2008, middle turbinectomy and in January 2009 superior turbinates where partially cauterized via RadioFrequency Ablation. Now I sleep on average 3 hrs or less due only to sheer exhaustion. I have a pain in between my eyes, in my forehead (frontal sinus area), I think it's like a ghost limb sensation/pain. I feel I have a cave of a nose, a sensation of numbness. And now psychologically a sense of despair and dread for my future. All I can say is 'tell me this isn't so' but I know it's so. I have ENS and I'm afraid and I am rapidly losing any quality of life I've had. HELP!!!
I am Maritza's husband, Nathan's & Abbey's father. I work to develop treatments for cancer & infectious diseases through clinical trials, drug safety. In December 2006, my doctor said that bilateral inferior turbinate reduction would improve my breathing difficulty (diagnosed with allergic rhinitis & deviated septum) when I asked about side effects he only mentioned some swelling, mucous, bleeding & crusting. And this for about two months. Breathing improved for about 1 month but began to progressively worsen over time. In September 2008, middle turbinectomy and in January 2009 superior turbinates where partially cauterized via RadioFrequency Ablation. Now I sleep on average 3 hrs or less due only to sheer exhaustion. I have a pain in between my eyes, in my forehead (frontal sinus area), I think it's like a ghost limb sensation/pain. I feel I have a cave of a nose, a sensation of numbness. And now psychologically a sense of despair and dread for my future. All I can say is 'tell me this isn't so' but I know it's so. I have ENS and I'm afraid and I am rapidly losing any quality of life I've had. HELP!!!
# 94:
8:15 am PST, Feb 28,
Lee Goodman, Ohio
# 93:
6:11 pm PST, Feb 24,
JULIO ZERENE, Canada
# 92:
1:52 am PST, Feb 23,
FRANCISCO JAVIER GUZMAN BERLANGA, Spain
# 91:
4:49 am PST, Feb 20,
Name not displayed, United Kingdom
# 90:
6:05 pm PST, Feb 19,
Name not displayed, New York
# 89:
2:38 pm PST, Feb 19,
Juzeppe Verdi, Italy
# 88:
10:37 am PST, Feb 19,
Jennifer Rodriguez, Pennsylvania
# 87:
4:43 am PST, Feb 7,
Name not displayed, France
# 86:
9:59 pm PST, Jan 27,
Friederike Eberhard, Australia
# 85:
2:07 am PST, Jan 27,
Mark Nasri, Canada
hi; I have ens since surgery more than 30 years ago. it has devastated me, my life and my family. Especially no body believes as i look like a healthy person but i can not focus for a second, because every single air i breathe is too much drcy. I feel itch, coldness inside nose and throbbing pain. my life is getting more useless as i am aged
hi; I have ens since surgery more than 30 years ago. it has devastated me, my life and my family. Especially no body believes as i look like a healthy person but i can not focus for a second, because every single air i breathe is too much drcy. I feel itch, coldness inside nose and throbbing pain. my life is getting more useless as i am aged
# 84:
8:19 am PST, Jan 23,
Jeff Lange, Wisconsin
I had extensive nasal and sinus surgery including turbinate reduction on 2/27/08. A date I will never forget since it has ruined my life. Depression, lack of sleep, every breath hurts, my love of winter destroyed.... Those of you in the Eau Claire area beware. During my tour of ENTs seeking help, one ENT from a prestigious hospital told me, "their is an ENT in the Eau Claire area that is butchering people."
I had extensive nasal and sinus surgery including turbinate reduction on 2/27/08. A date I will never forget since it has ruined my life. Depression, lack of sleep, every breath hurts, my love of winter destroyed.... Those of you in the Eau Claire area beware. During my tour of ENTs seeking help, one ENT from a prestigious hospital told me, "their is an ENT in the Eau Claire area that is butchering people."
# 83:
4:13 pm PST, Dec 30,
John Van Rensburg, United Kingdom
# 82:
11:28 am PST, Dec 17,
Arvind Nayak, India
# 81:
4:12 pm PST, Dec 9,
Michele Van Horn, Oregon
Back in 2004 I had 2 nasal surgeries and was told I had a deviated Septum and Nasal Polyps and also they messed with my terbinates. I feel I am disabled and I fight depression. I have even thought of suicide and I am a mother of 4. I am so lucky to have a wonderful man in my life but the disconnected feeling and pain and my eyes have so much pressure makes life so hard to have any hope. I am 45 and right now unemployed and am afraid that I am not stable enough to get a job. I was comforted in finding this site and hope that being connected with others will help. Michele
Back in 2004 I had 2 nasal surgeries and was told I had a deviated Septum and Nasal Polyps and also they messed with my terbinates. I feel I am disabled and I fight depression. I have even thought of suicide and I am a mother of 4. I am so lucky to have a wonderful man in my life but the disconnected feeling and pain and my eyes have so much pressure makes life so hard to have any hope. I am 45 and right now unemployed and am afraid that I am not stable enough to get a job. I was comforted in finding this site and hope that being connected with others will help. Michele
# 80:
1:39 pm PST, Nov 21,
Robert Schneider, Virginia
This health issue is very disruptive to normal life and living. Please support any research or promotion that emphasizes how individuals can cope with this problem and how researchers can obtain funding to better understand the nature of the syndrome and its resolution.
This health issue is very disruptive to normal life and living. Please support any research or promotion that emphasizes how individuals can cope with this problem and how researchers can obtain funding to better understand the nature of the syndrome and its resolution.
# 79:
12:38 pm PST, Nov 19,
Gabriel Schneider, Washington D.C.
# 78:
11:28 am PST, Nov 18,
Name not displayed, United Kingdom
Nasal dysfunction caused by excessive nasal tissue removal and notably surgery to the turbinates, without informed consent can and has ruined lives
Nasal dysfunction caused by excessive nasal tissue removal and notably surgery to the turbinates, without informed consent can and has ruined lives
# 77:
5:08 pm PST, Nov 16,
Jamel Carpenter, New York
# 76:
2:54 pm PST, Nov 12,
Joycelyn Walker, North Carolina
# 75:
2:32 am PDT, Oct 29,
Amnah Nasim, Pakistan
# 74:
8:27 am PDT, Oct 11,
Name not displayed, Spain
# 73:
7:00 pm PDT, Oct 1,
Name not displayed, California
# 72:
9:38 pm PDT, Sep 30,
Name not displayed, Australia
# 71:
7:29 am PDT, Sep 30,
Jeff Tan, Malaysia
I currently suffered from ENS for 9 months. After 2 weeks of operation my nose become worse. I do not know what happen to me and thinking to suicide coz I can only sleep 3 hours per day. Luckily, while surfing in internet to find some remedies. I found the empty nose syndrome website by noble Chris Martin , who give a lot of information regarding ENS. Now I know some treatments that can make me sleep better at night. I planning to sue the ENT doctor that make me suffered. Thanks Chris.
I currently suffered from ENS for 9 months. After 2 weeks of operation my nose become worse. I do not know what happen to me and thinking to suicide coz I can only sleep 3 hours per day. Luckily, while surfing in internet to find some remedies. I found the empty nose syndrome website by noble Chris Martin , who give a lot of information regarding ENS. Now I know some treatments that can make me sleep better at night. I planning to sue the ENT doctor that make me suffered. Thanks Chris.
# 70:
8:40 am PDT, Sep 28,
Kirk Perman, North Dakota
I am an ENS Victim For almost 20 years and Im sorry to say it continues to get worse Thank God for doctors like Dr. Houser and Dr Kern. Also for people like Chris Martin And the many people involved with The EMPTY NOSE ASSOCIATION it helps many of us just keep going until hopefully help is found keep praying for help.
I am an ENS Victim For almost 20 years and Im sorry to say it continues to get worse Thank God for doctors like Dr. Houser and Dr Kern. Also for people like Chris Martin And the many people involved with The EMPTY NOSE ASSOCIATION it helps many of us just keep going until hopefully help is found keep praying for help.
# 69:
8:00 am PDT, Sep 27,
Vareille Adrien, France
# 68:
2:09 am PDT, Sep 25,
Simos Tarabatzis, Greece
Please visit this website for further information: http://www.emptynosesyndrome.org/index.html Ask the healthcare community to recognize Empty Nose Syndrome (ENS).
Please visit this website for further information: http://www.emptynosesyndrome.org/index.html Ask the healthcare community to recognize Empty Nose Syndrome (ENS).
# 67:
6:50 am PDT, Sep 23,
Nico Gandha, Indonesia
# 66:
8:54 pm PDT, Sep 16,
Gregory Sugano, Georgia
# 65:
7:17 am PDT, Sep 11,
Javier Gonzalez, Pennsylvania
I suffer from chronic sinus problems. The descriptions of ENS symptoms are very related to my symptoms, although, I haven't had surgery done to my sinuses. Atleast, I have moments of comfort while watching television and going out to places. I'm desperatley looking for a cure for my sinuses without the need for surgery, so that I can avoid surgery if needed. I know what exactly ENS patients are going through and I totally agree that ENS needs to be properly researched to cure patients. I will pray everyday for all of us. God bless.
I suffer from chronic sinus problems. The descriptions of ENS symptoms are very related to my symptoms, although, I haven't had surgery done to my sinuses. Atleast, I have moments of comfort while watching television and going out to places. I'm desperatley looking for a cure for my sinuses without the need for surgery, so that I can avoid surgery if needed. I know what exactly ENS patients are going through and I totally agree that ENS needs to be properly researched to cure patients. I will pray everyday for all of us. God bless.
# 64:
1:59 am PDT, Sep 10,
Jennifer Aranha, United Arab Emirates
This problem needs to be addressed seriously as it is very depressing to see your loved ones suffer everyday of their lives.
This problem needs to be addressed seriously as it is very depressing to see your loved ones suffer everyday of their lives.
# 63:
10:19 pm PDT, Sep 9,
Sunil M, India
Kindly look into this problem as a major dibilitating issue. Quality of life, personal relationships, work, ability to feel things in the same way as before are severely affected. As severe if not more than other sinus problems. A cure for this will give affected people a new reason to live and resume life with the same zeal and enthusiasm as before. Thanks
Kindly look into this problem as a major dibilitating issue. Quality of life, personal relationships, work, ability to feel things in the same way as before are severely affected. As severe if not more than other sinus problems. A cure for this will give affected people a new reason to live and resume life with the same zeal and enthusiasm as before. Thanks
# 62:
4:46 pm PDT, Aug 24,
Julie McConaghy, Michigan
# 61:
12:40 pm PDT, Aug 24,
Tommy Blue, Louisiana
# 60:
5:26 pm PDT, Aug 13,
William Hester, Texas
I believe this is a terrible problem that effects people in so many ways. More action needs to be taken to prevent ENS,and more money and research is needed to help those that already have ENS. Hopefully, by people signing this petition more will be done to prevent and treat ENS.
I believe this is a terrible problem that effects people in so many ways. More action needs to be taken to prevent ENS,and more money and research is needed to help those that already have ENS. Hopefully, by people signing this petition more will be done to prevent and treat ENS.
# 59:
9:40 am PDT, Aug 9,
Andi Alnwick, New York
# 58:
6:58 am PDT, Jul 12,
Jerry Brinkman, Minnesota
# 57:
8:01 pm PDT, Jul 4,
Name not displayed, Maine
# 55:
5:09 pm PDT, Jun 27,
Jeff Esckilsen, Michigan
My wife suffers every day from this awful condition. It has diminished our lives greatly. God Bless Dr. Houser!
My wife suffers every day from this awful condition. It has diminished our lives greatly. God Bless Dr. Houser!
# 54:
11:44 am PDT, Jun 27,
Marc Masters, Ohio
# 53:
8:59 am PDT, Jun 19,
Neil Fergus, Connecticut
# 52:
8:28 am PDT, Jun 16,
Anita Schneider, Virginia
This condition has had a devastating effect on the lives of many people and should be recognized as a legitimate iatrogenic effect of surgery. Physicians should be made aware of the great harm that that can result from this relatively common surgery if care is not taken to avoid excessive tissue removal. This is also an unrecognized basis for future lawsuits against physicians. Legal action may be the only way to bring attention to the very serious consequences of surgery when the physician does not take adequate care.
This condition has had a devastating effect on the lives of many people and should be recognized as a legitimate iatrogenic effect of surgery. Physicians should be made aware of the great harm that that can result from this relatively common surgery if care is not taken to avoid excessive tissue removal. This is also an unrecognized basis for future lawsuits against physicians. Legal action may be the only way to bring attention to the very serious consequences of surgery when the physician does not take adequate care.
# 51:
4:26 pm PDT, Jun 13,
Name not displayed, Canada
