Tick Talk Ireland

Help Us To Make Lyme Disease Notifiable in Ireland

Target:
250
We, the undersigned, would like to make a call to the Department of Health, Ireland to make Lyme Disease a notifiable illness.  Our reason for this recommendation is that there is little support and knowledge available to Lyme disease patients.  People have been infected overseas and some have been infected here in Ireland.  The overwhelming response from talking to these patients is that there is little recognition among the medical community, on the best way to diagnose and treat the disease.  This leaves many patients having to seek advice by private means, often abroad which places an additional burden on people who already ill.

Due to the large farming community found in Ireland and also the attraction of Ireland's beautiful land and seascapes to overseas visitors, we need to do more to raise awareness and protection.  By making Lyme disease notifiable we could be placing greater importance on quicker and more reliable diagnosis amongst the medical population and help prevent an ever deepening health and financial (due to ill health) crisis.

Thank you for your kind consideration.

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What is Lyme Disease?  Lyme disease is a tick-borne illness transmitted through the bite of a tick.  Symptoms in the early stages of the disease can include a bulls eye rash, flu-symptoms and a fever.  If you notice these symptoms go to your GP without delay and explain that you were bitten by a tick.  Some patients may remain asymptomatic and carry the disease for a number of years symptom free.  However late stage Lyme disease can crop up years later with debilitating symptoms, including profound fatigue, tremours, weakness, dizziness, nausea, joint & muscle pain, sore throats, tingling, brain fog and headaches.  The symptoms greatly mimic those of ME, MS & Parkinson's Disease.

The best form of treatment is through antibiotics.  The longer you have been infected the harder it is to eradicate.  This is why we are calling for quicker recognition and treatment of the disease.

Please sign the petition below to help us make Lyme Disease notifiable in Ireland - thank you!

Can you spare a few moments to complete our Lyme survey?
http://www.surveymonkey.com/s.aspx?sm=qqrP_2bn_2bqPQSryRKHMTyJ1w_3d_3d

Thank you!

For more information check out our Facebook group at http://www.facebook.com/group.php?gid=44960753282


We, the undersigned, would like to make a call to the Department of Health, Ireland to make Lyme Disease a notifiable illness.  Our reason for this recommendation is that there is little support and knowledge available to Lyme disease patients.  People have been infected overseas and some have been infected here in Ireland.  The overwhelming response from talking to these patients is that there is little recognition among the medical community, on the best way to diagnose and treat the disease.  This leaves many patients having to seek advice by private means, often abroad which places an additional burden on people who already ill.

Due to the large farming community found in Ireland and also the attraction of Ireland's beautiful land and seascapes to overseas visitors, we need to do more to raise awareness and protection.  By making Lyme disease notifiable we could be placing greater importance on quicker and more reliable diagnosis amongst the medical population and help prevent an ever deepening health and financial (due to ill health) crisis.

Thank you for your kind consideration.

------------------------------------------------------------------------------------------

What is Lyme Disease?  Lyme disease is a tick-borne illness transmitted through the bite of a tick.  Symptoms in the early stages of the disease can include a bulls eye rash, flu-symptoms and a fever.  If you notice these symptoms go to your GP without delay and explain that you were bitten by a tick.  Some patients may remain asymptomatic and carry the disease for a number of years symptom free.  However late stage Lyme disease can crop up years later with debilitating symptoms, including profound fatigue, tremours, weakness, dizziness, nausea, joint & muscle pain, sore throats, tingling, brain fog and headaches.  The symptoms greatly mimic those of ME, MS & Parkinson's Disease.

The best form of treatment is through antibiotics.  The longer you have been infected the harder it is to eradicate.  This is why we are calling for quicker recognition and treatment of the disease.

Please sign the petition below to help us make Lyme Disease notifiable in Ireland - thank you!

Can you spare a few moments to complete our Lyme survey?
http://www.surveymonkey.com/s.aspx?sm=qqrP_2bn_2bqPQSryRKHMTyJ1w_3d_3d

Thank you!

For more information check out our Facebook group at http://www.facebook.com/group.php?gid=44960753282


 
Dr Paul McKeown
Specialist in Public Health Medicine
Health Protection Surveillance Centre
Dublin

Mary Harney TD
Minister for Health
Department of Health and Children
Hawkins House
Dublin 2

President of the European Parliament
Rue Wiertz 60
B-1047 Bruxelles

We, the undersigned, would like to make a call to the Department of Health, Ireland to make Lyme Disease a notifiable illness.  Our reason for this recommendation is that there is little support and knowledge available to Lyme disease patients.  People have been infected overseas and some have been infected here in Ireland.  The overwhelming response from talking to these patients is that there is little recognition among the medical community, on the best way to diagnose and treat the disease.  This leaves many patients having to seek advice by private means, often abroad which places an additional burden on people who already ill. 

Due to the large farming community found in Ireland and also the attraction of Ireland's beautiful land and seascapes to overseas visitors, we need to do more to raise awareness and protection.  By making Lyme disease notifiable we could be placing greater importance on quicker and more reliable diagnosis amongst the medical population and help prevent an ever deepening health and financial (due to ill health) crisis.

Thank you for your kind consideration.

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Thank you for signing Tick Talk's petition to make Lyme disease notifiable in Ireland - this petition has now been closed.

Can you spare a few moments to complete our Lyme survey?

http://www.surveymonkey.com/s.aspx?sm=qqrP_2bn_2bqPQSryRKHMTyJ1w_3d_3d

To qualify you must be a Lyme sufferer who is:

* Living in Ireland - infected by Lyme here or abroad or
* Not living in Ireland - but infected within Irish Counties

Statistical results of the Lyme petition and survey will be available on our website.

For more information check out our Facebook group at http://www.facebook.com/group.php?gid=44960753282

Thank you again and best wishes!

Tick Talk Ireland

You can do more! Show me more petitions »
We signed the "Help Us To Make Lyme Disease Notifiable in Ireland" petition!
# 300:
7:51 am PDT, Jul 29, Name not displayed, Ireland
I am awaiting blood tests presently. When large, red lesions appeared on my legs at the same time I found two ticks on my dog, I feared Lyme disease. I was told by my GP and Vet that there is no Lyme disease in Ireland. An article in The Farmer's Journal (20 June,09)revealed the truth. Cases must be reported and precise blood tests that are carried out in a timely manner should be offered immediately. All health professionals must be informed!
# 299:
2:40 pm PDT, Jul 28, David Butler, Ireland
My daughter got Lyme disease and was not taken seriously by our family Dr.

She was bitten by a tick in Ireland --Commeragh mts. May 09

# 298:
1:29 am PDT, Jul 27, Reinoud Baarsma, Ireland
I was serious ill;seious sleepprob.,heavy joint pain,very painfull midriff(diaphram) so breathing problem,not normal depression.extremly tired. $ month I had these severe condition,had to practically stop my work. Over 4 months,all kind of possible causes were searched,it was my mother eventually,that gave the advice to have me tested for lyme. elisa test,and western blot,2 times ++ It had to take so long ,and non of the docters thought of lyme. 4months ,time plenty for the bacteria to spread in my system,so practically impossible to ever get rid of it. The doctor states that the bacteria are destroyed. She thinks that borrelia can be desroyed with 2 weeks antibiotic. this is proven scientically wrong. It is a whidespread misunderstanding. Ifear that Ireland is far behind in understanding. Bitterly it only gets attention,when numbers rise. I have still unknown depression,en sleep-problems,and is there anyone that knows a reliable ,onhost docter in Ireland?

I was infected in Holland or Whales in may 2005

# 297:
5:11 am PDT, Jul 20, Cate Harrington, United Kingdom
I know 5 people who have had Lyme disease in different areas of the world, I also had a tick bite while in the Dordogne area of France and wondered whether I might have contracted Lyme disease. I think 2 points are important to mention: 1). This isn't just a problem in Ireland. The people I know who've had this all had incompetent treatment from doctors, in France, USA, Germany, and the UK. The UK doctors stood out as being particularly appalling. Go to any Lyme disease patient web site and every patient will have their own story of the suffering they have endured because of the ignorance of medical professionals. 2). This isn't just a problem with Lyme disease. This is just an illustration of what a pathetically shoddy shambles the medical industry is. Every disease I have encountered, on a personal or professional basis, has the same story of an awful lack of awareness and competence by the medical profession. I'm educated to postgrad level in clinical biochemistry, and planned to have a career in medical research, but gave up that idea after realising that medical staff pretty much make science irrelevant. Their lack of education, and the lack of monitoring of their performance is appalling. Everyone I know who has died in the past few years (11 people) have died due to the incompetence or neglicence of medical staff, usually due to their inability to diagnose problems. Usually this is due to indifference and lack of effort, but sometimes it is due to the terrible standard of the information given to medical staff. For example, my sister (who lives in USA) had Lyme disease when she came to visit the UK last week, she was seen by a nurse and then a few days later by a GP. When she told them she thought it might be Lyme disease they both looked it up on their online data systems, and most of the information this gave them regarding symptoms, diagnosis and treatment was hopelessly inadequate and out of date. What is really needed is a medical system that isn't staffed by terribly overworked and undereducated people, whose performance in terms of patient outcome is not monitored or checked. The medical industry needs to make a comprehensive database of current best practice for diagnosis, treatment and monitoring of every illness and condition. Then health professionals can check it and make sure they are doing things correctly, and they won't be just making things up as they go along like they do at the moment.
# 296:
5:35 pm PDT, Jul 19, M S, Ireland
# 295:
12:44 am PDT, Jul 17, Anne O'Sullivan, Ireland
I live in Co Kerry and have just had a very bad reaction to a tick bite in my garden and my doctor had me tested for Lymes which has proved positive. I would like to have known that ticks carried lymes in my area and I would have been more careful especially with my children who are always getting tick bites.

In Ireland, Co Kerry in the last 3 weeks.

# 294:
4:18 pm PDT, Jul 14, Joseph Tomlin, Ireland
# 293:
3:21 pm PDT, Jul 14, Jenna H, Ireland
# 291:
3:34 pm PDT, Jul 11, Johanna Klepack, West Virginia
# 290:
6:08 pm PDT, Jul 7, Craig Murray, Ireland
its bad form
# 289:
3:08 pm PDT, Jul 6, Jacqui Butterworth, United Kingdom
To who it may concern: I have had ME/Lyme disease for 22yrs and cannot believe the attitude of NHS doctors. The disbelief, rudeness and farce I have had to endure is unbelievable.

I was infected in England

# 288:
3:51 pm PDT, Jul 1, Jacqueline Deely, California
My sister was just diagnosed. She would like to go home to Ireland to be with family, but is unable to because there is no one there who can treat her.

United States

# 287:
1:38 pm PDT, Jul 1, Name not displayed, Ireland
infected

abroad

# 286:
2:38 pm PDT, Jun 30, Aisling Tully, Ireland
Last year i was in New York and whilst out in Sag Harbor with my cousin, he told me about these ticks and said that if you go into the forest you are likely to get bitten and get the disease!!! Something should be done about these "pests" as everyone knows children want der and we dont want them to get infected!! People should know about the ticks because they could move due to climate changes!!

I havent been infected nor anyone in my family!! But i have heard of a couple of cases in Ireland!! Just no-one seems to know about it!!

# 285:
8:56 am PDT, Jun 30, Name not displayed, Ireland
# 284:
12:35 am PDT, Jun 30, Seamus O Sullivan, Ireland
I work as a health & safety consltant, and believe this presents a higher risk than working with asbestos.. Citizens of Ireland and elsewhere must be aware of the serious risks they face. Doctors must be aware of the serious problem which Lyme poses. The Irish state can only be properly informed of this disease when it becomes a notifiable disease. This is the first step to ensure awareness of this disease.
# 283:
11:39 am PDT, Jun 29, Dana Mangraviti, Ireland
I was recently bitten by a tick while camping, then went to the doctor to see if there was anything I could do to prevent getting Lyme disease or know if the tick that bit me carried it. I was very disatisfied with my doctor's ability to treat me, as she knew nothing about lyme disease and googled it in front of me as I watched her.

I do not know if I am infected yet. I am hoping not. The doctor simply told me to "watch and wait."

# 282:
9:50 am PDT, Jun 25, Rita Wild, Ireland
ireland
# 281:
7:11 am PDT, Jun 24, Carl Rosenstock, Wisconsin
# 280:
3:53 am PDT, Jun 24, Dennis Heslop, United Kingdom
Recognition and treatment MUST improve.

My wife got infected in England and we have friends who got infected in Ireland.

# 279:
1:11 pm PDT, Jun 23, Daile O'Connor, New Jersey
# 278:
12:17 pm PDT, Jun 22, Agnieszka Zadrozna, Ireland
# 277:
10:25 am PDT, Jun 20, DAVID A. DISERIO, West Virginia
MY GRANDDAUGHTER SUFFERS FROM THIS DISEASE
# 276:
4:48 am PDT, Jun 19, Name not displayed, Ireland
my daugher in law has contacted lyme diease

in ireland

# 275:
2:21 am PDT, Jun 19, Gail Dair, Australia
Why is this issue important to you?

Were you infected in Ireland or abroad?

# 274:
3:40 am PDT, Jun 17, Kathi Dillon, Ireland
I am a close friend of someone who contracted Lyme's disease here in Ireland. Although I am from Connecticut orginally, living now in Galway, because I was not aware that Lyme's disease was prevalent in Ireland, I did not realise the symptoms meant that she had contracted Lyme's. The delay in her diagnosis due to the poor public and professional awareness of the existence and treatment of the disease, means that my friend is suffering long term effects from a disease that we all could have identified and sought proper treatment for in the initial and easily treated phase. I would be delighted to assist any campaign to increase public and professional awareness in Ireland. Hope to meet you all soon!
# 273:
1:23 pm PDT, Jun 12, Ms Lucia Sweeney Sweeney, Ireland
This situation is important to me as I have only just been made aware if it and I know only one other person who realises it is such a serious issue.People need to be educated.Knowledge is power after all and prevention is better than cure where possible.

No.

# 272:
3:06 am PDT, Jun 9, Mary Pawle, Ireland
# 271:
12:17 am PDT, Jun 8, Tatiana Costa, Brazil
# 270:
1:44 pm PDT, Jun 7, Name not displayed, Finland
# 269:
5:22 pm PDT, Jun 6, Clare Lynch, Ireland
I have a few friends in Germany who have suffered badly from undetected Lyme disease. Its diagnosis is not a uniquely Irish problem. I went to a doctor in Cork last year with an enflamed tick bite. She said she had never heard of any cases of Lyme disease in Ireland and I shouldn't worry about it. Yes, educate them please.
# 268:
4:34 pm PDT, Jun 6, Ger Clince, Ireland
# 267:
1:34 am PDT, Jun 3, Salva Piera, Ireland
My wife was biten by venison ticks last Sunday, we believe that it was in Kerry National Park. We found the ticks this morning and removed them. We hope that be all, but after reading about this disease I think it is important that people be aware of it.

Ireland

# 266:
1:31 am PDT, Jun 3, Tim Goulding, Ireland
Several friends in this area have suffered from it.
# 265:
3:38 pm PDT, Jun 2, Penelope Durell, Ireland
Why is this issue important to you?

Were you infected in Ireland or abroad?

# 264:
1:56 pm PDT, Jun 2, JEN HEALY, Ireland
# 263:
4:54 am PDT, Jun 1, John Cronin, Ireland
My Partner contracted Limes after walking out near Lough Corrib in Galway.Late diagnosis due to lack of medical awareness resulted in long term suffering and a very reduced quality of life for her. From a carers point of view the whole scenario was one protracted battle to get proper response and treatment and recognition for her illness. Thank you for your energy and time in putting this petition out.

The infection took place in Ireland.

# 262:
4:25 am PDT, Jun 1, Janice Kinsolving, Ireland
I became profoundly ill and was not adequately diagnosed until 3 months. It was someone from the USA who suggested that I get a lyme test. I was undertreated, told I was 'well', and continued to be very ill for many months including missing work. A wonderful neurologist took over my care as it was neurologic lyme. I am improved but still am not well. The impact of the disease versus the risks of longer term antibiotic treatment most definitely falls on the side of treatment so that a person can work and have some semblance of a normal life. I have been told that there are 'very few' (about 30 total a year) cases of lyme in Ireland, yet I know five persons who have the disease just through conversation about what has happened to me. I think it is very much a misunderstood and under reported disease. I would call to the attention of the Health Department Dr.John Gray's research work from UCD which found that 20% of ticks were infected with the b. burgderfori(the lyme causing spirochete)in Counties Galway and Kerry. This valuable research work seems to be little known - it was published on http://www.ncbi.nlm.nih.gov/pubmed/7634971 in 1995. Lyme ticks are such that they will generally increase in the areas in which they are found so this would indicate a large increase in the incidence of B. burgdefori in Ireland. I strongly support this petition.

I was infected in the west of Ireland in Co. Galway on the Western Way trail. I had the classic rash within 5 to 10 days of being in the grass.

# 261:
4:05 pm PDT, May 30, Thomas Darcy, United Kingdom
Have been bitten by ticks many times.

Docs said Lymes disease was now present in Donegal & Wicklow deer herds

# 260:
5:35 am PDT, May 30, Ellen Nee, Ireland
# 259:
11:51 pm PDT, May 29, Kathleen McDonagh, Ireland
Orginaly from the States - a country who realizes the importances of diagonising this diease - my father has had it 3 times and was treated promptly by his doctor. I live here now am very cautious and worry about lyme diease when i hear about ticks. My thoughts is that if the doctors are not sure about this they shouold be advocates for their patiients and contact others to get more information. Why do doctors always have to have the answers themselves? - There is no shame in asking others for the help .

not infective - just doing research - being proactive

# 258:
1:00 pm PDT, May 28, Name not displayed, Ireland
Was mis-diagnosed for almost 5 years. Now at the chronic stage & difficult to treat. We need specialists here in Ireland.

Infected in Greece.

# 257:
3:08 am PDT, May 27, Juliet Timon, Ireland
Because I had undiagnosed Lyme for some years. Eventually borrelia found in blood test. Only treatment offered here was 3 weeks of antibiotics. Still suffering.

not sure if infected in ireland - could have been in uk, france, italy or spain

# 256:
11:44 am PDT, May 24, Name not displayed, Ireland
I have had no support from numerous Doctors in Ireland, they say they don't know anything about the disease and basically hope ill go away.

I was infected in Ireland.

# 255:
4:11 pm PDT, May 22, James Salmon, Ireland
Was infected in 1990 in west of ireland had to have lumber puncture to find cause of my problem.Central nervious system effected.Permenent damage altered sensation to my right leg

yes

# 254:
11:23 am PDT, May 20, Eibhlin Lydon, Ireland
# 253:
4:34 am PDT, May 19, Name not displayed, Ireland
# 252:
3:39 am PDT, May 19, Brid Buckley, Ireland
# 251:
1:27 pm PDT, May 18, Daithi Seoighe, Ireland
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