The Honorable [Full Name] United States Senate Washington, DC 20510
(OR for Representatives)
The Honorable [Full Name] U.S. House of Representatives Washington, DC 20515
Dear Senator [Last Name]: (OR Dear Representative [Last Name]:
I ask that you recognize the designation of May 12, 1997 as International CFIDS Awareness Day. I, along with hundreds of thousands of other Americans, have chronic fatigue and immune dysfunction syndrome (CFIDS), also known as chronic fatigue syndrome (CFS). CFIDS is a devastating illness. Scientists have learned that it affects the immune system, the endocrine system and the brain, but its cause remains unknown and no cure has been found.
I can no longer work due to the pain and cognitive problems resulting from CFIDS. Please help continue the search for answers that will help me and others with CFIDS become productive citizens once again. Please support the requests of The CFIDS Association of America.
Sincerely,
[Sign your name and include your address.]
[Enclose the suggested legislation language.]
Suggested Telephone Call Script:
Hello. My name is [Your Name] and I live in [City, State]. I have chronic fatigue and immune dysfunction syndrome (CFIDS) and I'm calling because today is International CFIDS Awareness Day. Currently the cause of CFIDS is unknown and there is no cure. I request that Mr./Ms. [Name of Senator or Representative] help to change this by supporting increased funding for CFIDS research. Thank you for sharing this message with [him or her].
Please support legislation that will increase attention to and the level of money spent on the study of CFIDS by our national public health agencies, specifically:
* Reauthorization of the National Institutes of Health to continue its critical support for CFIDS research;
* Direction to the Social Security Administration to identify and correct barriers to disability benefits that exist for persons with CFIDS;
* An increase of $10 million at the National Institutes of Health, most of which would be directed to extramural grants focused on promising areas of biomedical research into CFIDS; and
Keep up the great work. Look what you've accomplished!
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