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FORTUÑO DON'T FORGET PEOPLE WITH MS

Congressman Luis Fortuño please do something for us MS patients in Puerto Rico.

Target:
Puerto Rico Residents
Sponsored by: 

 

Norma Vazquez

PROJECT %u201CVIDA INDEPENDIENTE DE AMIGOS CON ESCLEROSIS MULTIPLE%u201D

(VIDACEM)

H5 San Patrico Ave,402

Guaynabo,PR. 00968-3214

Subject: Letter to Resident Commissioner in Washington, D.C for Puerto Rico-Honorable Congressman Luis G. Fortuño:

On behalf of the Multiple Sclerosis (MS) Community of Puerto Rico which I'am part of, please accept my thanks and congratulations for the work you have being doing when joined with Congresswoman Nydia Velázquez (D-NY), José Serrano (D-NY) and Hilda Solís (D-CA)  in introducing H.R. 2736, which seeks to alleviate the current deficiency of funds that has been affecting HIV/AIDS patients in the island, whom are currently neglected from receiving suitable health services and medications. . Reforming our nation%u2019s health care policies to ensure that everyone has access to affordable health care has long been a priority of the political party you represent.

The MS Group%u2019s in PR are outreaching across the country to involve ordinary Americans in the policy debate and make sure their views are presented to policy makers in Washington which I believe is a necessary and invaluable step towards real change. Whith this in mind, on November 16-20 we will be presenting a project through CADECOM, a Comunity based program to assist more then 100,000.00 young adults in Puerto Rico that are not being serviced by any entity nor public or private to ensure them:

  • Respect for life. Whether it preserves and enhances the integrity and dignity of human life from the moment of diagnosis, to natural death.

  • Priority Concern for the Poor. Whether it gives special priority to meeting the most pressing health care needs of the poor and underserved, ensuring that they receive quality health services.

  • Universal Access. Providing ready universal access to comprehensive health care for every person living in the Island of Puerto Rico.

  • Comprehensive Benefits. Providing comprehensive benefits sufficient to maintain and promote good health and quality of life; through preventive care; to treat disease, mental and physical disability appropriately; and to care for persons like us, who are chronically ill or confined for life to have a caregiver.

  • Pluralism. Whether it allows and encourages the involvement of the public and private sectors, including the voluntary and nonprofit sectors, in the delivery of care and services; and whether it ensures respect for racial,political,religious and ethical values in the delivery of health care for consumers and for individual and institutional providers.

  • Quality. Whether it promotes the development of processes and standards that will help to achieve quality and equity in health services, in the training of providers, and in the informed participation of consumers in decision making on health care.

  • Cost Controls. Whether it creates effective measures to reduce waste, inefficiency, and unnecessary care; measures that control rising costs of competition and administration; and measures that provide incentives to individuals and providers for effective and economical use of limited resources.

  • Equitable Financing. Whether it assures society%u2019s obligation to finance universal access to comprehensive health care in an equitable fashion, based on ability to pay; and whether proposed cost-sharing arrangements are designed to avoid creating barriers to effective care for the poor and vulnerable.

We are very pleased that the Working Groups%u2019 Interim Recommendations include a strong call for health care coverage for all with access to a core set of services, financial assistance to those who need it and protection from the high costs of catastrophic illness or injury. The most striking and encouraging information in the Interim Recommendations was the fact that over 90% of the people who responded during the Working Group%u2019s community meetings and on the internet poll agreed that affordable health care for all should be a public policy priority. For any reform to be genuine, it must provide access to comprehensive care to all, including those who currently are unable to get adequate health care or are at risk of losing access to health care because of, for example, limited resources, lack of education or language skills, immigration status, or residence in underserved rural or urban areas.

Defining the specifics of a core benefit package will be challenging. While it need not cover every and all treatments or procedures, it must include basic health care services essential for human life and dignity. The core benefits should be available to everyone. We would not support further progression toward a two-tiered system that segregates poor people, low-income working families, or other vulnerable people in an inadequate system or benefits structure.

We agree that integrated community health networks and a strong private/public partnership are critical elements of an effective health care system. A reformed health care system must encourage the creative and renewed involvement of both the public and private sectors, including voluntary, religious and nonprofit providers of care. It must also respect the religious and ethical values of individual and institutional participants in health care delivery. We also welcome the call to provide more effective palliative care, hospice care and end-of-life care. Our health care system must be structured to provide care when a cure is no longer possible,like in MS diagnossed patients. Effective management of the disease is critical toassure an excellent quality of life.

I hope these comments have been helpful and that the MS Communities Final Recommendations will reflect our own criteria for health care reform. Health care is a fundamental human right and reform of the local's health care system must be rooted in values that respect human dignity, protect human life, and meet the needs of the young adults affected by MS.

Sincerely,

Norma Vazquez

 

 

Norma Vazquez

PROJECT %u201CVIDA INDEPENDIENTE DE AMIGOS CON ESCLEROSIS MULTIPLE%u201D

(VIDACEM)

H5 San Patrico Ave,402

Guaynabo,PR. 00968-3214

Subject: Letter to Resident Commissioner in Washington, D.C for Puerto Rico-Honorable Congressman Luis G. Fortuño:

On behalf of the Multiple Sclerosis (MS) Community of Puerto Rico which I'am part of, please accept my thanks and congratulations for the work you have being doing when joined with Congresswoman Nydia Velázquez (D-NY), José Serrano (D-NY) and Hilda Solís (D-CA)  in introducing H.R. 2736, which seeks to alleviate the current deficiency of funds that has been affecting HIV/AIDS patients in the island, whom are currently neglected from receiving suitable health services and medications. . Reforming our nation%u2019s health care policies to ensure that everyone has access to affordable health care has long been a priority of the political party you represent.

The MS Group%u2019s in PR are outreaching across the country to involve ordinary Americans in the policy debate and make sure their views are presented to policy makers in Washington which I believe is a necessary and invaluable step towards real change. Whith this in mind, on November 16-20 we will be presenting a project through CADECOM, a Comunity based program to assist more then 100,000.00 young adults in Puerto Rico that are not being serviced by any entity nor public or private to ensure them:

  • Respect for life. Whether it preserves and enhances the integrity and dignity of human life from the moment of diagnosis, to natural death.

  • Priority Concern for the Poor. Whether it gives special priority to meeting the most pressing health care needs of the poor and underserved, ensuring that they receive quality health services.

  • Universal Access. Providing ready universal access to comprehensive health care for every person living in the Island of Puerto Rico.

  • Comprehensive Benefits. Providing comprehensive benefits sufficient to maintain and promote good health and quality of life; through preventive care; to treat disease, mental and physical disability appropriately; and to care for persons like us, who are chronically ill or confined for life to have a caregiver.

  • Pluralism. Whether it allows and encourages the involvement of the public and private sectors, including the voluntary and nonprofit sectors, in the delivery of care and services; and whether it ensures respect for racial,political,religious and ethical values in the delivery of health care for consumers and for individual and institutional providers.

  • Quality. Whether it promotes the development of processes and standards that will help to achieve quality and equity in health services, in the training of providers, and in the informed participation of consumers in decision making on health care.

  • Cost Controls. Whether it creates effective measures to reduce waste, inefficiency, and unnecessary care; measures that control rising costs of competition and administration; and measures that provide incentives to individuals and providers for effective and economical use of limited resources.

  • Equitable Financing. Whether it assures society%u2019s obligation to finance universal access to comprehensive health care in an equitable fashion, based on ability to pay; and whether proposed cost-sharing arrangements are designed to avoid creating barriers to effective care for the poor and vulnerable.

We are very pleased that the Working Groups%u2019 Interim Recommendations include a strong call for health care coverage for all with access to a core set of services, financial assistance to those who need it and protection from the high costs of catastrophic illness or injury. The most striking and encouraging information in the Interim Recommendations was the fact that over 90% of the people who responded during the Working Group%u2019s community meetings and on the internet poll agreed that affordable health care for all should be a public policy priority. For any reform to be genuine, it must provide access to comprehensive care to all, including those who currently are unable to get adequate health care or are at risk of losing access to health care because of, for example, limited resources, lack of education or language skills, immigration status, or residence in underserved rural or urban areas.

Defining the specifics of a core benefit package will be challenging. While it need not cover every and all treatments or procedures, it must include basic health care services essential for human life and dignity. The core benefits should be available to everyone. We would not support further progression toward a two-tiered system that segregates poor people, low-income working families, or other vulnerable people in an inadequate system or benefits structure.

We agree that integrated community health networks and a strong private/public partnership are critical elements of an effective health care system. A reformed health care system must encourage the creative and renewed involvement of both the public and private sectors, including voluntary, religious and nonprofit providers of care. It must also respect the religious and ethical values of individual and institutional participants in health care delivery. We also welcome the call to provide more effective palliative care, hospice care and end-of-life care. Our health care system must be structured to provide care when a cure is no longer possible,like in MS diagnossed patients. Effective management of the disease is critical toassure an excellent quality of life.

I hope these comments have been helpful and that the MS Communities Final Recommendations will reflect our own criteria for health care reform. Health care is a fundamental human right and reform of the local's health care system must be rooted in values that respect human dignity, protect human life, and meet the needs of the young adults affected by MS.

Sincerely,

Norma Vazquez

 

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We signed the "Congressman Luis Fortuño please do something for us MS patients in Puerto Rico." petition!
# 132:
10:02 am PDT, Apr 13, Nydia Toro, Puerto Rico
My daughter has recently been diagnosed with this condition. At a time like this, of course we want to be together. She currently lives in NYC. I am having an awful hard time getting information as to how she can obtain health care here in PR. I join the billions of others that are going through this catastrophe in appealing for a better way of living.
# 131:
3:07 pm PDT, Apr 7, Name not displayed, California
Help people with MS
# 130:
12:51 pm PDT, Mar 30, MARA CALVANI, Puerto Rico
# 129:
10:32 am PDT, Mar 29, Ines Seidel, Germany
# 128:
2:46 pm PDT, Mar 28, Anne Seidel, Germany
# 127:
2:10 pm PDT, Mar 20, Alba Raquel Barros, Florida
No solo por los pacientes de MS, que solo se recuerdan en un maratón y despues nadie sabe como les va!!!!Por sus familias, por los que los cuidan, por los que los sobreviven!!!! Por los centros de Salud Pública!!!Por los ancianos que necesitan que los familiares los tengan en un Hogar para poder seguir trabajando y que les cuiden!!!...en PR da asco los "HOMES" y a nadie le importa! Me tuve que ir a Miami para que mi madre tuviera calidad de vida!!! En PR la lleve a un Home a cuidar y me la tiraron en el Hospital Metropolitano con Septicemia! Por las mujeres que tienen que huir de sus casa porque son maltratadas....viabilice la adopcion de niños huerfanos o maltratados!!!! Las educación Pública!!!! Quieren ser estado??? Pues empiezen copiando a los estados en todos estos temas vitales para un Pais Saludable! No hace falta dinero...solo INTERES Y CREATIVIDAD! Por favor...ocupese de devolvernos "La Isla del Encanto" que toda la politiqueria la ha convertido en "la Isla del espanto!!!!!" en fin....ocupese del paìs y por favor.....olvidese de la polìtica! Solo asì su nombre pasará a la historia con dignidad o prefiere ser un nombre más dentro de una lista de los que el paìs se pregunta todos los dìas "porque no esta preso????"....En sus manos esta ser diferente y reconstruir a nuestro pais!!!!! Dios le dirija !
# 126:
5:34 am PDT, Mar 18, Name not displayed, Puerto Rico
# 125:
7:36 pm PDT, Mar 13, Name not displayed, Puerto Rico
# 124:
5:12 pm PST, Mar 2, Samuel Rodriguez, Puerto Rico
# 123:
8:52 am PST, Jan 31, Name not displayed, Indiana
# 122:
10:43 am PST, Jan 9, Emilio Rivera, Florida
# 121:
3:35 pm PST, Jan 1, Simos Tarabatzis, Greece
# 120:
7:12 am PST, Dec 27, Name not displayed, Germany
# 118:
9:00 am PST, Nov 25, Sandra Munro, Canada
# 117:
7:22 am PST, Nov 25, Name not displayed, Canada
Beleive it or not, MS as a chronic illness is a bit of an epidemic. Funds are needed to support, as well as research. Therapies are available and are not a cure. The impact isn't only with the indivudal diagnosed. An MS disgnosis colours every single aspect of the individuals life. By helping MS patients in Puerto Rico, you will be helping MS patients across the globe.
# 116:
3:38 pm PST, Nov 23, Samar Rivera, Puerto Rico
Nuestros Amigos con Esclerosis Multiple necesitan de todos nosotros!!!
# 115:
8:54 pm PST, Nov 13, Steven Heaver, New Jersey
# 114:
2:23 am PST, Nov 9, Steve Klein, Virginia
# 113:
6:29 pm PST, Nov 8, Rachel Matos, Puerto Rico
Hello/Hola Mr. L. Fortuño& Lucerna; as stated before yrs. back we all shared with our children at kids birthdays with Carlos Vivoni, a great person like U, ja,ja, but true. Well, the bad part is the Lourdes has Multiple Sclerosis and yrs. later her sister Vivian, who lives in the states, also has multiple sclerosis, and me Too! We are worried for our children due genes! This condition has changed and devastated my life and my family's like when we turn around a pancake. Unfortunately, there's no cure!! No hope, no reasonable answers in why medicine doesn't apply more efforts in trying to find a cure and why, what triggers this monster. We were so active, energetic within our jobs in high management, with our families, the leaders:) of our homes. And it is so hurting to know that today we go to bed, but we don't know how will we be when waking up; can you just imagine going through something like this with the people you most Love? Pls. is a little powerful word that I shout today to you, H E L P us pls. Thank U, God bless us all and give you and us the strengh in continuing the battle. We think we are so strong & know it all, until one day you get sick with a condition called catastrophic! H E L P ME, HELP US...
# 112:
3:15 pm PST, Nov 8, Chuck Dowe, Massachusetts
# 111:
1:12 pm PST, Nov 7, Leonardo Ortega, Puerto Rico
# 110:
5:23 pm PST, Nov 6, Nydia Lopez, Puerto Rico
# 109:
12:33 pm PST, Nov 5, CARLOS VINCENTI, Puerto Rico
# 108:
12:28 am PST, Nov 5, Steve Dale, Australia
# 107:
9:56 pm PST, Nov 4, Paloma Del Llano, Puerto Rico
# 106:
10:48 am PST, Nov 4, Charmaine Sabri, Pennsylvania
# 105:
9:49 am PST, Nov 4, Frank Rivera, Puerto Rico
# 104:
9:31 am PST, Nov 4, Gladys Davis, Puerto Rico
AS RETIRED NEUROLOGIST NURSE...I KNOW WHAT MS DOES TO OUR YOUNG PEOPLE!!!!!!!!
# 103:
9:24 am PST, Nov 4, Aida Fonntanez, Puerto Rico
Let's help the needed!
# 102:
9:52 pm PDT, Nov 1, Iris Santos, Puerto Rico
I really hope you all reach your goal with this petition and may God Bless you ALL!!!
# 101:
2:35 pm PDT, Oct 31, Javier Agosto, New York
anything for all those wonderfull people with MS GOD BLESS
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