Fund Clinical Trials of Low Dose Naltrexone (LDN)

2:50 pm PST, Nov 18, S Black, Canada
The cost of health care is soaring and to consider a inexpensive drug that may treat so many illnesses for so many people it would be in everyone's best interest except the drug companies of course..

yes

5:19 am PST, Nov 16, Duncan Kelman, United Kingdom

1:12 pm PST, Nov 13, Sheilah Hendry, Canada
LDN research will not be funded by the private sector because there is no profit possible from resulting sales. It is up to the public sector to take this on, and do it quickly. Lives are at risk.

The cost LDN should be easily covered by all provincial health plans and all private insurance.

7:43 pm PST, Nov 7, Philip DeGraaf, Canada
Can anyone tell me if they know of a Doctor in the GTA that will prescribe LDN??? I'm sick of ask the doctor there a bunch of Money grub asses!!

5:52 pm PST, Nov 7, Jacqueline West, Canada

2:57 pm PST, Nov 7, Vanessa Stewart, Canada
I have Crohn's disease. I have had it all my life. I am now 23 and haven't had a days relief with any medicine given yet. I Live in British Columbia and have went to many doctors who refuse to prescribe it because of the lack of studies and information on it. I have a friend who lives in the U.S. who has had crohns for the majority of her life and started LDN 20 months ago and is in remission. :) I wish I could be so lucky. I am currently on Remicade. It isn't working as well as it should be, and it is my last hope. If it doesn't work I will have to resort to surgery. :(

9:02 am PST, Nov 4, VICKY DOYON, Canada
I FEEL IT SHOULD BE COVERED UNDER INSURANCE PLANS THERE ARE A LOT OF PEOPLE FINDING IT IS BETTER THAN ANYTHING ELSE THEY HAVE TRIED WHICH IS COVERED BY INSURANCE SO WHY NOT LDN

3:31 am PDT, Oct 31, Gemma Every, United Kingdom
i have Relapsing-remitting MS and strongly beleive LDN should be funded for clinical trials.. it could save the NHS millions and give us hope for the future

Yes

2:52 pm PDT, Oct 25, Name not displayed, United Kingdom
I have cancer which no longer appears to be responding to chemo/radiotherapy. I don't know whether LDN would have helped, but I would absolutely take the chance to find out. As things stand, neither my oncologist or GP are willing to prescribe.

Yes

7:38 am PDT, Oct 19, Monica Greenwood, Canada
I feel this study is of great importance to everyone as it may help with a wide array of health issues including MS and would lower patients prescription cost by thousands. I myself would greatly benifit from this drug.

Absolutely!!!

1:50 pm PDT, Oct 14, Sharon Johnson, Virginia
My daughter in law has MS.

Absolutely!!

12:31 pm PDT, Oct 14, Michelle Smith, Ohio
My sister has MS

Yes

9:32 am PDT, Oct 14, Christopher Johnson, Ohio

7:00 am PDT, Oct 14, Danyiel Johnson, Ohio

10:40 pm PDT, Oct 13, Aurora Colello, California
I was dianosed last Dec. as high risk MS. None of my Dr.'s even mentioned LDN as an option to me. I found out about it by researching alternatives to the very toxic drugs they were pushing me to take. I strongly believe that more research and funding need to be given for LDN research so that every Dr. can offer LDN to their patients . I was seeing some of the top neruologist in San Diego and they had not even heard of it! I had to edcuate them on it! As a wife and mom to four young children I am thankful that becasue of LDN I do not have symptoms of MS nor am I sick from the toxic meds. that I was advised to take for my pre MS. Instead I am happy , helathy and about to do my first triathlon this Sunday! Everyone should be given the option of LDN. If more Dr.'s were educated on it and there was more funding behind it, they would.

Aboslutley! Why not? It is so much less expensive then many of the other drugs that are covered and it does not have any of the side effects that most expensive drugs do!

5:59 pm PDT, Oct 5, Crystal Nason, Alabama
www.CrystalsMSTMLDN.org

Yes it should be covered by insurance plans because all other Off Label Drugs are.

2:32 pm PDT, Oct 5, Jeannine Everet, Arizona
I have tried so many MS medications and still I was sick. I have been on LDN for 6 months now and never have I felt better. This drug is very affordable right now as well... Please please do trials on this drug.. it works!

Yes, have insurance companies pay for this drug. It is affordable to the insurance companies as well.

7:50 am PDT, Oct 5, Jennifer Anderson, Canada

7:30 am PDT, Oct 5, Donna Northrup, Canada
I have had MS since 1977, my son was 7 mos. old and I had a 2 and 4 year old daughter, I luckily have had 23 years of ability but the last 10 have been not so good. Luckily 9 mos. ago I went on LDN and have got a new lease on life. Please, please, make this opportunity available to others.

Yes, a lot more people could stay in the work force longer and pay more TAXES!

9:39 pm PDT, Oct 4, Al West, Canada
I'm the husband of a MS victim who has been taking LDN for over a year with many positive results. Very few physicians are aware of LDN and the many benefits its use seems to effect. Many hundreds of people could be helped if qualified trials and studies were conducted and published. Considerable dollar savings could be realized from reduced 'lost work time' as well as the reduced load on our health care system.

9:11 pm PDT, Oct 4, Gerta West, Canada
I have been using ldn just over one year. I have had M.S. 35 years . The last 10 years symptoms were getting worse, especially severe muscle spasms that were most painful. When we searched on the internet we found info about ldn as treatment for M.S. However, it was difficult to get a Dr. to prescribe it for me. I persevered and finally did find a Dr. willing to read information I printed from internet about M.S. and ldn . I have not had any M.S. spasms since on ldn, I have more physical energy now, I sleep better and generally have a much better quality of life. Ldn is very afforable and does not have bad side effects like most other M.S. medications. More people could be helped with ldn if physicians knew about ldn. They will only know about it if double-blind studies are completed and the results published. Ldn treatments have the potential of saving our health care system a great amount of money .

2:04 pm PDT, Oct 1, Cam Phythian, Canada
I would like to share my wonderful experience so far being on LDN. I live in Saskatchewan Canada I am a 47 year old male. I have had RRMS since March 07. I was on Rebif up until June 10th. I started LDN June 11th 2009. I finally found a doctor that is prescribing it to other MS patients. She prescribed 4.5 mg for me and sent me on my way. I stopped the Rebif injections before going on LDN, it was my own decision and my best decision. Reason being is that LDN promotes the immune system and Rebif suppresses it. I did not want that internal battle going on within my body. My symptoms at the start of me taking LDN were. I had cold numbness in my hands and feet, to the point that it was painful to wear socks and shoes and gloves or mitts. I also had the sensation of bands around both of my knees. I also had a sinus infection at the time of starting LDN. I also had no energy and was full of aches and pains. My mental awareness and thinking skills were diminishing. In general my health was maybe 50% of what I was prior to the start of ms. Within 3 days of taking 4.5 mg of LDN I noticed improvements in my hands and feet and the bands around my knees were gone. My sinus infection was gone in 3 days with no other medication than LDN. My general health and mental awareness strongly improved. After 1 week on LDN I was a new man. I went from feeling like I was an 80-year-old man getting close to a wheelchair to a 30 year old man full of energy and excitement. I became alive again and got out and was able to be "Normal". My wife says to everyone now I can't keep up to him it's wonderful. It is 16+ weeks now since starting LDN and my hand and feet are almost numb free and I have had no side effects from using LDN. I feel like I am 30 years old again. I know that I will be on LDN until there is a cure. LDN has changed my life forever. My best advise is if you have MS get on LDN ASAP and get off the ugly CRAB drugs. LDN made me feel like a new person filled with energy and relief and most of all hope of a normal life. I have had no side effects from LDN at all. All I have had is wonderful results. LDN is a wonder drug for me.

I don't see why LDN isn't covered under medical plans. The cost of LDN is a such a fractional cost compared to the cost of the CRAB drugs. It will happen soon I hope. But to be honest I don't care if it is covered by my drug plan or not. Reason being is that the cost of LDN at $30 per month for the relief I am getting I will pay it out of my pocker gladly for the rest of my life.

12:39 am PDT, Oct 1, Name not displayed, Australia

8:01 am PDT, Sep 30, Laura Hizak, Ireland
i have multiple sclerosis and i have found all th the other treatments have not suited me and have not helped, sinnce starting ldn 19months ago my m.s. has stopped progressing and i have been symptom free since i started it! Please make this medicine available to more people, it will save money for everybody long term!!!

it is a very inexpensive treatment therefore it is not neccessary to cover it, however for insurance companies it would make more sense to cover ldn rather than the other typical treatments say for example avonex which costs around 1200$ monthly compared with around $30 monthly for ldn.

1:57 pm PDT, Sep 27, Brendan Gault, United Kingdom
i have ms

yes

2:17 am PDT, Sep 27, Lisa Haines, United Kingdom
I have ms and LDN is the only thing that has helped me. it has given me my life back. This drug needs funding for clinical trials so that it can become available to everyone who needs it.

7:59 pm PDT, Sep 26, Sonja Barton, South Carolina

5:04 pm PDT, Sep 26, Jessica Cooper, Vermont

2:09 pm PDT, Sep 26, Cary Davis, South Carolina
I have Progressive MS and have been using LDN for over a year and have realized no change in my MS. I had been on Betaseron, but was experiencing injection site infections as well as the flu-like symptoms the day after my injection. Considering the cost of this treatment was over $1,600.00US a month, it did little if anything for my MS other than antagonize my symptoms. With the LDN, switching over to it caused very little trouble, mainly adjusting to the drugs disruptive sleep symptom. I think that given the proper study, the correct dosage could be found and not a guessing game as to what starting dose and what regular doses should be used. I continue to use LDN and to have faith in it.

Yes. I realize the pharmaceutical companies (predominately Bayer in my case) will be opposed to this study, but if LDN is found a safe alternatve to the drugs currently used it will save the insurance companies and the governments millions is drug cost for MS alone.

11:59 am PDT, Sep 26, Lori Fernando, New Zealand
Taking LDN has improved my quality of life in many ways, but most notably in the area of bladder control. I can now go places without worrying over the location of the nearest public toilet. I can work without needing to leave my desk for the toilet every hour. I am stronger and feeling better than I have felt in 12 or more years. I have R&R MS, am 50 yrs old, and have no visible disability now. My Neurologist said there were not enough studies to support it, but said it could not harm me, so he let me try it. I am very grateful that he listened to me and read the material I gave him regarding LDN. Too many others are not so lucky.

YES, LDN should be considered under insurance plans and covered by government insured plans. It is inexpensive and effective for many people. Until there is a cure for MS, there is LDN.

11:10 am PDT, Sep 26, Marlene Wyant, North Carolina
I take LDN and I have progressive MS. It has helped me when nothing else has. It should be made one of the DMD's and all doctors should add this treatment to their list.

Yes!

12:26 pm PDT, Sep 21, Linda Worcester, California
After I was given many persciption drugs which I believe caused my autoimmune conditon LDN is the only thing that has improved my quality of life. I am 40 with 3 young kids I need to and plan on functioning for a long time. Don't I deserve that?

9:46 pm PDT, Sep 16, Sandi Foster, Canada
yes

11:07 am PDT, Sep 14, Stacy Brown, Florida
A non-toxic cancer treatment should be available.

Yes.

3:51 am PDT, Sep 6, Melanie Fi Menna, Canada
I'm hypopituitary. I'm not sure if LDN could help me but I would like the chance to find out! My sister has MS.

Do be more readily available.

10:24 am PDT, Sep 5, Louise Mcmahon, United Kingdom

10:07 am PDT, Aug 29, Pat Slager, Canada
Mywifehas Parkinson's disease. If this drug could alleviate her suffering it would be nice if it could be perscribed routinely by neurologists without a big deal being made about it.

definately

6:59 pm PDT, Aug 26, Maria S, New York

1:54 pm PDT, Aug 24, Alena Dawson, Canada

12:41 pm PDT, Aug 24, Carie Maniscalco, California
We have to find a way to make a huge impact on MS and stopping it in its tracks! At the moment we have no cure, but we can find ways of offering patients "choices" with medications to slow/stop the progression, especially medications that are easier to take (no injection) and will be easier on the pocket book! I'm a patient and I can tell you one thing is that I won't stop asking for help until we finally get it!

We have to have insurance help. There are so many people without proper medication and without insurance we have to help everyone every way we can. No question. I do have insurance and the last drug I took still cost me $700 a month. Combine that with rent and bills and I have $100 left for food a month. Please help us work this into our daily lives easier.

1:17 pm PDT, Aug 22, Maxine Lathan, Illinois

10:15 am PDT, Aug 21, Adam A, Canada
Fund LDN trials for Crohns and Ankylosing Spondylitis!

YES

9:13 am PDT, Aug 18, WENDY SLAGER, Canada
I HAVE A PARKINSON LIKE PROBLEM AND FEEL LIKE I'M SLOWLY SINKING DOWN AN ABYSS. FROM WHAT I HAVE READ LDN LOOKS LIKE A REASONABLE AVENUE TO TRY. IF IT WORKS EVERY DOCTOR SHOULD HAVE THE KNOWLEDGE AND CHANCE TO OFFER THIS OPTION TO THEIR PATIENTS

DEFINATELY..IT COULD SAVE YEARS OF SUFFERING AND RELATED HEALTH CARE COSTS

12:37 pm PDT, Aug 8, Keriann Mahoney, Canada
This would be a wonderful way to help offset chronic suffering among many of us low income Canadians!! If this approach made it possible, I would love to return to work as the professional that I am.

If this medical approach were successful among a majority of people with chronic diseases, then it would be very worthwhile to cover the cost of this medication to enable us to return to the workforce!!! Thank you for your consideration.

9:19 am PDT, Aug 5, Carl Rosenstock, Wisconsin

11:00 am PDT, Aug 2, Florian Wenning, Germany
I'd like to try that stuff! Maybe it can help me too?

If it's cheap I don't care but also then it shoulgn't be a problem for health insurances... I'm paying most of my income for relatively cheap drugs that are not provided by multi-billion-companies - of course that may also be the problem - not much to earn with the stuff...

11:09 am PDT, Jul 29, Francie Stull, Kentucky
The LDN has given me back my life. It is cheap, safe and easily available, but needs the empirical data for those doctors who hesitate to prescribe it slightly "off label".

It does not need to be covered by insurance companies. It is so cheap that it costs less than the copay, so forget the insurance companies, get the testing done so that it can be prescribed.

7:51 pm PDT, Jul 23, Joann Kweicinski, California
I have stuggled to find a doctor to write me a prescription for this drug so I have wasted alot of valuable time trying to get better. Please go forward with a trial and make this drug accessable.

Yes it should be covered under insurance plans

12:24 pm PDT, Jul 20, Name not displayed, Canada

4:00 pm PDT, Jul 18, Shelly-Ann Jelley, Canada
I have MS have for over a year, I have 2 young daughters who would like their mom in their life.We need to have some control on our lives, and not worry about the medicine and esp the cost of it.

It should be covered on all drug plans.

12:06 pm PDT, Jul 18, Name not displayed, Minnesota

3:42 pm PDT, Jul 17, Sheryl Davis, Canada
yes it should be covered by insurance plans

5:40 am PDT, Jul 17, Erin Sampson, Canada

6:00 pm PDT, Jul 13, Brenda MacGillivray, Canada
I'm searching for a doctor in Calgary who can prescribe LDN. I've heard such amazing accounts and I want to stop my disease in its tracks

It would be great but if it slows the process, it shouldn't be an excuse.

7:09 am PDT, Jul 7, Jennifer Fila, New York
I was recently diagnosed with RRMS and opted to try LDN as opposed to the conventional interferon treatments. I began taking LDN 11 days ago and noticed almost immediate improvement in my symptoms. I haven't felt this good since this whole mess started. I was born and raised a sceptic, but LDN has made a believer out of me. Please assist in funding these much needed clinical trials for all those out there who suffer in silence.

10:43 pm PDT, Jul 6, Brad Jaeb, Canada
Please spend the tax dollars needed to fund test trials of Low Dose Naltrexone (LDN). There is enough evidence that shows this low cost drug could have a huge impact on reducing the tax burden the health care system now generates. Every year millions and millions of tax dollars are foolishly wasted on programs that have no impact on reducing the heath care costs. ********** Those Canadians completing this petition form should double their exposure. *1* Copy the text contents exposed by the “letter” link on the left side of the petition page. *2* Paste the text into an email and send it to the Canadian Prime Minister yourself. pm@pm.gc.ca ******** The PM email is also found on the Canadian PM web site provided on the top of the petition page. http://pm.gc.ca/eng/default.asp

This should defiantly be covered by insurance plans. A low cost drug like this should lower the insurance plan costs through lower pay-outs for medical claims costs which should then reflect in lower insurance premiums but would likely end up increasing the insurance underwriter profits more than reducing premiums.

4:17 pm PDT, Jun 26, Patricia Butler, Rhode Island
Someone very close to me has Primary Progressive Multiple Sclerosis. Without clinical trials, his neurologists will not prescribe LDN for him, despite all the anecdotal evidence of it's benefits. He deserves to have every option for his treatment.

LDN should be covered by health insurance.

10:36 am PDT, Jun 26, Sherri White, California
I've been on LDN for six weeks, and it has given me more energy and less pain. I have multiple sclerosis and was on Tysabri for 20 months. At this time, I'm taking a holiday from the medication for at least three months. I'm hoping the LDN will keep me exacerbation-free and that I won't have to go back on Tysabri. Tysabri is dangerous and people have died from it; LDN has no adverse effects. LDN needs to be recognized as a legitimate medication for autoimmune diseases. The only way this will happen is with proven research. Please fund clinical trials of LDN!

I absolutely believe LDN should be covered under one's insurance plan. If insurance companies can approve other MS medications that cost more than $2,000 a month, then they should approve LDN. This medication costs as little as $30 a month. To me it's a no-brainer!

9:36 am PDT, Jun 26, Bryan Ladner, Mississippi

9:22 am PDT, Jun 26, Michelle Ladner, Mississippi
This is something that have helped my cousin's quality of life and feel that it can do the same and more for others.

It should be affordable and covered, certainly.

7:10 am PDT, Jun 26, Donna Florio, Alabama
I have a friend with MS who has had good results with LDN.

yes.

1:56 pm PDT, Jun 25, Gordon King, Virginia
A dear dear friend is suffering from ovarian cancer, AND I had a wife who died of cancer some years ago. I feel very strongly that we, as a nation, need to do everything we possibly can to conquer such a malignancy.

Yes, I do.