Funds 4 Spina bifida was created by Disability activist & American Poet Robert M. Hensel in order to help raise awareness to this disabling birth defect. Right now, there are 166,000 People living in the United States with this condition, and without the proper education and funding these numbers could become much higher.
Spina bifida occurs within the first 28 days of pregnancy, even before a Woman may know shes pregnant. That is why every Woman of childbearing age should educate themselves about the importance of taking folic acid.
Studies have shown that Women who take 400 micrograms of folic acid daily, greatly reduces the chance of having a baby born with Spina bifida, by up to 70%.
Despite these advances, many challenges still remain as we continue to strive foward in search of a direct cause. The United States Government must step up to the plate and increase the funding we so drastically need for research and the development of better treatments for all Americans living with Spina bifida. I urge you to join in our fight by adding your name to our petition.
Together, we can make a difference not only in the lives of those already living with Spina bifida but to assure a much brighter future for those yet to be born as well.
- Spina bifida is the #1 natural cause of paralysis in the United states.
- There is no known cause or cure.
- It is estimated that there are about 166,000 People living with Spina bifida in the United states.
- Out of 1,000 births 1 child will be born with Spina bifida.
- Education and research is vital if we are to ever find a cause and cure.
Robert Michael Hensel.
Born: May 8th 1969.
Place of birth: Rota, Spain.
Parents:Mother-Linda Helen Conzone & Father-Robert John Hensel
Hometown: Oswego, New York
Robert M. Hensel was born with a birth defect know as Spina bifida. A disability that has not stopped him from achieving success in his life. Robert serves as an advocate for the disabled, an on going effort to better the rights of all Americans with disabilities. He is an International Poet-Writer with well over 900 publications published World wide. In 2000 Robert was nominated as one of the best Poets of the 20th Cen. Just most recently, he was nominated for the Pushcart Prize, an award giving to Outstanding Poets & Writers. Robert is also a Guinness & Ripley's world record holder for the longest non stop wheelie in a wheelchair, covering a total distance of 6.178 miles. The reason for his record was to help raise money for wheelchair ramps throughout his Community. Roberts Journey doesn't stop there by any means. In Oct 2006, Robert was asked to carry the torch for the 2006 Asian Games. It is said that he was the only one chosen out of Thousands of other Celebrities throughout the United States to carry out such an honor. Much of Mr. Hensel's accomplishments have recently found a permanent home within the walls of The Museum of Disability History, for others to appreciate and learn from. The Museum of Disability History is the only one of it's kind, displaying the Artifacts and accomplishments connected to some of histories most notable disabled figures of our time, such as Helen Keller and many others. The Museum is located in Buffalo, New York.
AWARDS & HONORS -
*Creator of My Spina bifida Crusade.
*Founder of Beyond Limtations Week.
*SpokesPerson for Athletes For Hope.
*Nominated as one of the best poets of the 20th Cen.
*Inducted into The Museum of DisAbility History, located in Buffalo, New York.
*Nominated for the Push Cart prize for Poetry.
*Editors Choice Award in 1996, 1997, 2000 and 2007.
*New York State Assembly Excelsior Award for Excellence.
*New York Senate Certificate of Merit.
*State of New York Executive Chamber Certificate of Commendation.
*Guinness World Record Holder.
*Ripley's World Record Holder.
*Invitation To carry the Torch for the 2006 Asian Games.
*Nominated as International Professional Of The Year For 2007. "By The International Biographical Centre in Cambridge, England.
*Included in The Dictionary of International Biography. "Published through the International Biographical Centre in Cambridge, England".
*Nominated for the 21st Century Award for Achievement. Through International Biographical Centre in Cambridge, England.
*Included in The International Dictionary Of Experts and Expertise. Published by The American Biographical Institute.
*Included in the book Outstanding People of the 21st Century."Published by The International Biographical Centre in Cambridge, England.
*Nominated for the 2007 Man of Achievement Award. Through the American Biographical Institute.
*Nominated for the Distinguished Service to Humankind Award 2007. Through The International Biographical Centre in Cambridge, England.*
2008 Go Fast Sports & Beverage Athlete.*Nominated to be included in 2000 Intellectuals of the 21st Century, publlished through The International Biographical Centre located in Cambridge, England.*Nominated for Top 100 Educators of 2009, by The International Biographical Centre in Cambridge, England.*Nominated for the International Plato Award for Educational Achievement By The International Biographical Centre in Cambridge,England.*Asked to speak at Arkansas State University in 2009.* Became an Ordained Minister on July 24th 2010. http://www.addme.com/
Robert M. Hensel
164 East Bridge Street
Upper back Apt
Oswego, New York 13126
Dear Members of Congress,
My name is Robert M. Hensel, and on behalf of the all Americans born with Spina bifida including myself, I am writing to urge you and all other members of congress to please consider increasing the funding we so drastically need towards better research and education, not only for those already living with this condition but those yet to be born as well..
As you may already know, Spina Bifida is the nation's most common, permanently disabling birth defect which affects approximately 3,000 pregnancies per year or approximately 8 babies a day. Research and technology have made progress in both reducing the risk of Spina Bifida pregnancies and increasing the life expectancy of those born with this condition. Researchers have determined that women of child-bearing age who take daily folic acid supplements reduce their chances of having a Spina Bifida pregnancy by up to 70 percent. Despite these advances, many challenges still remain as we continue to strive foward in search of a direct cause. Public education on the importance of folic acid supplements in preventing Spina Bifida has yet to reach some sectors of the population. As a result of increased life expectancy, people with Spina Bifida now contend with new quality-of-life concerns such as education, job training, independent living, and health care for secondary conditions.
The pouring support of signatures attached within this petition should serve as a kind of testimony to the many lives that are directly effected by this disabiling birth defect. Our very well being lies within the hands of the United States Government and the decisions that it makes. More money would bring us just a little bit closer to a cause and one day a cure. Your support to increase funding spending towards Spina bifida research, it;s programs and education would greatly be appreciated as we work to address these continuing challenges .
If I can be of any assistance to you or your staff, please do not hesitate to contact me by mail or call Robert M. Hensel, (315.) 216-6031 Again, I thank you for your attention to this important effort to help individuals and families affected by Spina Bifida.
Disability activist & American Poet:
Robert M. Hensel