Hidradenitis Suppurativa Awareness
Target:
Medical research
Sponsored by:
Hidradenitis Suppurativa is a very painful skin disease which currently has hardly any reasearch being done and has no cure.
I am looking to raise awareness and get more research for Hidradenitis Suppurativa in hope that a cure can be found for this extremely painful skin condition which leaves the sufferer with large painful boils on their armpits and groin which can leave them unable to walk and in constant pain.
There are currently no treatments that help.
Please sign this petition to ask that more research will be put into finding a cure for Hidradenitis Suppurativa.
For more information, please read this article or visit Hidradenitis Suppurativa Support
You can also follow us on Twitter @hssupport
I am looking to raise awareness and get more research for Hidradenitis Suppurativa in hope that a cure can be found for this extremely painful skin condition which leaves the sufferer with large painful boils on their armpits and groin which can leave them unable to walk and in constant pain.
There are currently no treatments that help.
Please sign this petition to ask that more research will be put into finding a cure for Hidradenitis Suppurativa.
For more information, please read this article or visit Hidradenitis Suppurativa Support
You can also follow us on Twitter @hssupport
Hidradenitis Suppurativa is a very painful skin disease which currently has hardly any reasearch being done and has no cure.
I am looking to raise awareness and get more research for Hidradenitis Suppurativa in hope that a cure can be found for this extremely painful skin condition which leaves the sufferer with large painful boils on their armpits and groin which can leave them unable to walk and in constant pain.
There are currently no treatments that help.
Please sign this petition to ask that more research will be put into finding a cure for Hidradenitis Suppurativa.
For more information, please read this article or visit Hidradenitis Suppurativa Support
You can also follow us on Twitter @hssupport
I am looking to raise awareness and get more research for Hidradenitis Suppurativa in hope that a cure can be found for this extremely painful skin condition which leaves the sufferer with large painful boils on their armpits and groin which can leave them unable to walk and in constant pain.
There are currently no treatments that help.
Please sign this petition to ask that more research will be put into finding a cure for Hidradenitis Suppurativa.
For more information, please read this article or visit Hidradenitis Suppurativa Support
You can also follow us on Twitter @hssupport
We signed the "Hidradenitis Suppurativa Awareness" petition!
# 304:
11:56 pm PDT, Mar 19,
Name not displayed, Canada
When I finally got the courage to show my lesions to my doctor, he told me to shower more and gave me a round of anti-biotics. I was thirteen when that happened. I silently fought the disease for 12 more years before getting the courage to show another doctor. I was at the point where I could barely walk anymore. Now, I have a dermatologist who is doing his best to help me and encourage me. I am still in a lot of pain but I am more hopeful. Hopeful that I will be able to live without this constant pain that also serves as a reminder of the losses that go with this disease. I have lost so much because of this disease. I have no hope of ever having an intimate relationship and because this started so early for me that means I never even had a boyfriend and never will. I will never have babies - which kills me to admit. I will never wear a swimsuit. I have gained weight because I can barely walk. I either have to wear an undershirt everyday or not lift my arms up (I have lesions on my waist, on my underarm, under breasts, side of breast, and inner thighs) because I don't want someone to see my grotesque stomach. I hope that a cure is found and that doctors learn early intervention strategies because even though it may be too late for me to live the life I now morn, it isn't too late for the person who just got their first "sore". Please find a cure!
When I finally got the courage to show my lesions to my doctor, he told me to shower more and gave me a round of anti-biotics. I was thirteen when that happened. I silently fought the disease for 12 more years before getting the courage to show another doctor. I was at the point where I could barely walk anymore. Now, I have a dermatologist who is doing his best to help me and encourage me. I am still in a lot of pain but I am more hopeful. Hopeful that I will be able to live without this constant pain that also serves as a reminder of the losses that go with this disease. I have lost so much because of this disease. I have no hope of ever having an intimate relationship and because this started so early for me that means I never even had a boyfriend and never will. I will never have babies - which kills me to admit. I will never wear a swimsuit. I have gained weight because I can barely walk. I either have to wear an undershirt everyday or not lift my arms up (I have lesions on my waist, on my underarm, under breasts, side of breast, and inner thighs) because I don't want someone to see my grotesque stomach. I hope that a cure is found and that doctors learn early intervention strategies because even though it may be too late for me to live the life I now morn, it isn't too late for the person who just got their first "sore". Please find a cure!
# 303:
2:36 pm PDT, Mar 18,
Name not displayed, Wisconsin
I have had HS for almost 2 years, and cystic facial acne before that. I just got a diagnosis 3 mos ago, and still not sure what to think. I dont see many people talking about what to do when wanting to go swimming, lay on a beach or beach chair in their swim suit where you are exposing the skin that is most affected. The dark purple and red bumps and scars that make it look like you have some kind of STD - but you know it's not, but makes onlookers cringe or whisper. Come on drug companies - figure out where this thing comes from and what can be done about it. Stop making money and start curing something.
I have had HS for almost 2 years, and cystic facial acne before that. I just got a diagnosis 3 mos ago, and still not sure what to think. I dont see many people talking about what to do when wanting to go swimming, lay on a beach or beach chair in their swim suit where you are exposing the skin that is most affected. The dark purple and red bumps and scars that make it look like you have some kind of STD - but you know it's not, but makes onlookers cringe or whisper. Come on drug companies - figure out where this thing comes from and what can be done about it. Stop making money and start curing something.
# 302:
3:12 pm PDT, Mar 15,
E A, United Kingdom
I have a child with this extremely painful (physically and mentally), disfiguring, embarrassing and isolating condition. Nothing the medical profession has to offer has been of any help so the suffering of my child, and so many other people the world over, goes on and on.
I have a child with this extremely painful (physically and mentally), disfiguring, embarrassing and isolating condition. Nothing the medical profession has to offer has been of any help so the suffering of my child, and so many other people the world over, goes on and on.
# 301:
12:30 pm PDT, Mar 15,
Kady Rash, Texas
I currently have Hidradenitis and have been though absolute hell, trying to treat this horrible disease. I can't begin to explain how painful, upsetting, frustrating, and confusing this is. I'm currently on Metformin and undergoing infusions (Remicade) once every eight weeks. This was our last resort to treat it. It hasn't helped. The only other option available is surgery, which my insurance refuses to cover. PLEASE research the disease and help me get my life back.
I currently have Hidradenitis and have been though absolute hell, trying to treat this horrible disease. I can't begin to explain how painful, upsetting, frustrating, and confusing this is. I'm currently on Metformin and undergoing infusions (Remicade) once every eight weeks. This was our last resort to treat it. It hasn't helped. The only other option available is surgery, which my insurance refuses to cover. PLEASE research the disease and help me get my life back.
# 300:
8:44 am PDT, Mar 14,
Charlotte Kevin, United Kingdom
# 299:
11:45 pm PST, Mar 13,
Name not displayed, Australia
Had this dreadful condition for 30 years but only recently diagnosed. Painful, embarrassing and debilitating with no hope of a future free of this condition. DEPRESSING.
Had this dreadful condition for 30 years but only recently diagnosed. Painful, embarrassing and debilitating with no hope of a future free of this condition. DEPRESSING.
# 298:
10:07 pm PST, Mar 12,
Hope Marshall, California
# 297:
9:51 am PST, Mar 12,
Crystal Gallegos, California
As someone who has dealt with this condition for 12 years, I am glad to see that there are groups like this to help those who are afflicted. It would be nice if more doctors/dermatologists knew more about this condition. With the pain and the depression involved with this disease, it is incredibly hard to do enjoy every day activities. wouldnt it be nice if we could find a cure?
As someone who has dealt with this condition for 12 years, I am glad to see that there are groups like this to help those who are afflicted. It would be nice if more doctors/dermatologists knew more about this condition. With the pain and the depression involved with this disease, it is incredibly hard to do enjoy every day activities. wouldnt it be nice if we could find a cure?
# 296:
7:32 am PST, Mar 12,
Amanda Bruce, Texas
# 295:
3:47 am PST, Mar 12,
Name not displayed, Texas
It's really very simple. I am in excrutiating pain at least three weeks out of every month. This disease has taken over my life, caused me to lose jobs, and has put me in such a deep depression I sometimes find it difficult to breathe. Somebody has to do something, and fast! There are millions of us out here, some of whom haven't even been diagnosed yet, because the medical industry as a whole is ignorant about this disease. Please help us!
It's really very simple. I am in excrutiating pain at least three weeks out of every month. This disease has taken over my life, caused me to lose jobs, and has put me in such a deep depression I sometimes find it difficult to breathe. Somebody has to do something, and fast! There are millions of us out here, some of whom haven't even been diagnosed yet, because the medical industry as a whole is ignorant about this disease. Please help us!
# 294:
1:59 am PST, Mar 12,
Name not displayed, Czech Republic
Hi, I am 45, suffering HS for 25 years, diagnosed 3 MONTHS AGO.Godd for me to see I´m not alone ...
Hi, I am 45, suffering HS for 25 years, diagnosed 3 MONTHS AGO.Godd for me to see I´m not alone ...
# 293:
1:34 am PST, Mar 12,
Chad Owen, New York
# 292:
7:32 pm PST, Mar 11,
Tony Strohbusch, California
My friend has this and I am helping him raise awareness to encourage research of this affliction.
My friend has this and I am helping him raise awareness to encourage research of this affliction.
# 291:
5:12 pm PST, Mar 11,
Jill Fletcher, California
# 290:
3:27 pm PST, Mar 10,
Christine Hengsteler, California
# 289:
1:58 pm PST, Mar 10,
Sergi Calavia, Texas
# 288:
12:55 pm PST, Mar 10,
Kathryn Czerwinski, California
# 287:
12:31 pm PST, Mar 10,
Dave Machell, United Kingdom
i have had HS for thirty years . i am at stage 3 and it is ruining my life . im virtually housebound and need a lot of help doing simple day to day stuff . ive had lots of i n d,s and open wound surgery . all to no avail . ive tried lots of antibiotics and most of them havent touched my HS im due to start ettenercept in march . and im praying this has some effect on my condition .
i have had HS for thirty years . i am at stage 3 and it is ruining my life . im virtually housebound and need a lot of help doing simple day to day stuff . ive had lots of i n d,s and open wound surgery . all to no avail . ive tried lots of antibiotics and most of them havent touched my HS im due to start ettenercept in march . and im praying this has some effect on my condition .
# 286:
11:34 am PST, Mar 10,
Jessica LINDSEY, California
For my soulmates Mama Ray and Honey Bear who have been affected by this.
For my soulmates Mama Ray and Honey Bear who have been affected by this.
# 285:
10:41 am PST, Mar 10,
Rayleen Baguio, California
i live with HS. i have a serious case of HS. have had biopsies, lancing and now surgeries. the lumps come back, ooze, and never heal. i get them on my breast. all over. from the surrounding breast, under, on the nipple, sides, you name it. i also get lumps on my groin area, and pubic mound. it hurts to walk and sit to where sometimes the best place for me is laying down. hurts to wear a bra because of the open sores. sometimes i need to be topless because the pressure of clothing is too much. even though i have the most amazing partner in the world who fully understands my condition and loves me, it doesn't help my frame of mind of what i look like unclothed and this makes intamacy very very difficult for me which has knocked me into a deep depression and bouts of anxiety. no one should ever have to go through this. we need to find a cure for this crippling disease!
i live with HS. i have a serious case of HS. have had biopsies, lancing and now surgeries. the lumps come back, ooze, and never heal. i get them on my breast. all over. from the surrounding breast, under, on the nipple, sides, you name it. i also get lumps on my groin area, and pubic mound. it hurts to walk and sit to where sometimes the best place for me is laying down. hurts to wear a bra because of the open sores. sometimes i need to be topless because the pressure of clothing is too much. even though i have the most amazing partner in the world who fully understands my condition and loves me, it doesn't help my frame of mind of what i look like unclothed and this makes intamacy very very difficult for me which has knocked me into a deep depression and bouts of anxiety. no one should ever have to go through this. we need to find a cure for this crippling disease!
# 284:
9:09 am PST, Mar 10,
Shelly Ward, California
My friend Andrew is effected by this. Its such a shame for someone to have to suffer with the embarrassment and discomfort of outwardly visible ailment.
My friend Andrew is effected by this. Its such a shame for someone to have to suffer with the embarrassment and discomfort of outwardly visible ailment.
# 283:
8:35 am PST, Mar 10,
Christa Young, California
# 282:
7:22 am PST, Mar 10,
Zara Brumana, California
For my Andy Candy Pants!
For my Andy Candy Pants!
# 281:
6:51 am PST, Mar 10,
Craig Van Buren, California
A close friend has and tolerates it on a daily basis. Life is about living, not tolerating pain.
A close friend has and tolerates it on a daily basis. Life is about living, not tolerating pain.
# 280:
4:18 am PST, Mar 10,
Kevin McGinnis, California
one of my best friends has it, he suffers alot because of it.
one of my best friends has it, he suffers alot because of it.
# 279:
3:46 am PST, Mar 10,
Name not displayed, California
# 278:
3:21 am PST, Mar 10,
Aaryn Schlosser, Washington
Andrew's got it, Lets change that!
Andrew's got it, Lets change that!
# 277:
3:12 am PST, Mar 10,
Hassan Vishal, Maldives
# 276:
2:56 am PST, Mar 10,
Andrew Bergdahl, California
I have been suffering with this horrible disease for almost 10 years now. Its robbed me of many joys in life. It has cost me jobs, friends, and lovers. Something needs to be done about this. I have forgotten what it feels like to live a single day without pain. It is a daily struggle and every minute of every day, we who suffer with Hidradenitis Suppurativa are in pain. Think about that: Constant, and sometimes crippling pain. Please help us
I have been suffering with this horrible disease for almost 10 years now. Its robbed me of many joys in life. It has cost me jobs, friends, and lovers. Something needs to be done about this. I have forgotten what it feels like to live a single day without pain. It is a daily struggle and every minute of every day, we who suffer with Hidradenitis Suppurativa are in pain. Think about that: Constant, and sometimes crippling pain. Please help us
# 275:
4:23 pm PST, Mar 9,
Tracey Holland, Australia
Please could some one help us with this condition. It is an extremely cruel and embarrassing condition to have and you quality of life is very minimal at times. Please please please help find a solution for us HS SUFFERERS.
Please could some one help us with this condition. It is an extremely cruel and embarrassing condition to have and you quality of life is very minimal at times. Please please please help find a solution for us HS SUFFERERS.
# 274:
1:42 pm PST, Mar 9,
Brenna Upton, California
# 273:
10:29 pm PST, Mar 7,
Name not displayed, Pennsylvania
# 272:
8:42 pm PST, Mar 7,
A. Miller, Florida
# 271:
5:45 am PST, Mar 7,
La Toya Fletcher, Maryland
# 270:
8:43 pm PST, Mar 6,
Lawrence Tanner, New Mexico
This is a desease tha I sufffered from as a teenager and in my early twenties. Left scars on my face arms and back that had very negative affect to my self esteem.
This is a desease tha I sufffered from as a teenager and in my early twenties. Left scars on my face arms and back that had very negative affect to my self esteem.
# 269:
1:21 am PST, Mar 5,
April Franz, West Virginia
# 268:
5:18 pm PST, Mar 4,
Name not displayed, California
# 267:
7:31 am PST, Mar 4,
Name not displayed, California
# 266:
7:29 am PST, Mar 4,
Name not displayed, Florida
# 265:
6:41 am PST, Mar 4,
Name not displayed, California
I have a friend who has it. It basically debilitates her every day. She is unable to go to work or do the things she loves and I see how unhappy it makes her as well as creating a financial burden for her... a cure needs to be found.
I have a friend who has it. It basically debilitates her every day. She is unable to go to work or do the things she loves and I see how unhappy it makes her as well as creating a financial burden for her... a cure needs to be found.
# 264:
10:17 pm PST, Mar 3,
Name not displayed, California
# 263:
9:54 pm PST, Mar 3,
Karena Sara, Montana
# 262:
8:34 pm PST, Mar 3,
Name not displayed, California
My friend has it. She complains of pain almost every day, and it is so sad to see there is no end to it.
My friend has it. She complains of pain almost every day, and it is so sad to see there is no end to it.
# 261:
3:22 pm PST, Mar 3,
Sandy A, Virginia
My 10 yo daughter just recently has been diagnosed with HS. She also has Down Syndrome. It has taken us almost a year for them to even figure out what she has. She has extemely painful erruptions in her groin area and then her behavior becomes awful because she can't tell me she is in pain. It has been so frustrating!!! The more I read about this the more I worry about what this will be like once she does reach puberty.
My 10 yo daughter just recently has been diagnosed with HS. She also has Down Syndrome. It has taken us almost a year for them to even figure out what she has. She has extemely painful erruptions in her groin area and then her behavior becomes awful because she can't tell me she is in pain. It has been so frustrating!!! The more I read about this the more I worry about what this will be like once she does reach puberty.
# 260:
10:46 am PST, Mar 3,
Name not displayed, New Jersey
# 259:
5:31 am PST, Mar 3,
Judy Thomas, Virginia
# 258:
8:54 pm PST, Mar 2,
Name not displayed, California
A friend of mine suffers; please help him.
A friend of mine suffers; please help him.
# 257:
3:09 pm PST, Mar 2,
Marie Finocchi, South Carolina
BEEN SUFFERING FROM HS FOR 14 YRS. IT IS A VERY PAINFUL, EMBARASSING AND DEPRESSING SKIN DISEASE THAT CAN HAVE A MAJOR NEGATIVE IMPACT IN A PERSON'S LIFE
BEEN SUFFERING FROM HS FOR 14 YRS. IT IS A VERY PAINFUL, EMBARASSING AND DEPRESSING SKIN DISEASE THAT CAN HAVE A MAJOR NEGATIVE IMPACT IN A PERSON'S LIFE
# 256:
11:25 am PST, Mar 2,
Name not displayed, United Kingdom
# 255:
8:56 pm PST, Mar 1,
James Foran, California
My fiance has HS and we have been together for about 2 years now. I hope that by signing this petition, we can get recognition and serious help for all sufferers of this condition. I how much it affects not only your physical well being, but also your ability to work. Because this condition currently does not have an effective treatment, the time out of work becomes even longer. I hope that this petition will raise awareness, and provide more substantial treatments.
My fiance has HS and we have been together for about 2 years now. I hope that by signing this petition, we can get recognition and serious help for all sufferers of this condition. I how much it affects not only your physical well being, but also your ability to work. Because this condition currently does not have an effective treatment, the time out of work becomes even longer. I hope that this petition will raise awareness, and provide more substantial treatments.
# 254:
2:45 pm PST, Mar 1,
Beverly Norton, Canada
I have and support friends who have this.......
I have and support friends who have this.......
# 253:
1:23 pm PST, Mar 1,
Raquel Sanders, Ohio
26 + years sufferer
26 + years sufferer
# 252:
10:52 am PST, Mar 1,
Name not displayed, Canada
I have been diagnosed just over 3 years now. No-one who does not have this disease can ever truly know the amount of pain we sufferers are forced to endure day after day - especially those of us with no choice but to work even though the pain level is so high you can barely move let alone walk sit or lift things like a telephone some days! We need more research done so that we can find a treatment and maybe - Gods willing - a cure! To those who aren't sure: Just because you can't see the scars - please be aware - you never know when one of your family or friends could have it because we have gotten so good at 'acting' normal. If you think your family or friend may be having problems like this - show them support and sign now! Maybe if it affected the lives of politicians and doctors and their families we would have gotten somewhere by now - this disease has been around since before Karl Marx! Open your eyes and your hearts,sign this petition and learn how you can help those of us who suffer from this disfiguring and painful disease!
I have been diagnosed just over 3 years now. No-one who does not have this disease can ever truly know the amount of pain we sufferers are forced to endure day after day - especially those of us with no choice but to work even though the pain level is so high you can barely move let alone walk sit or lift things like a telephone some days! We need more research done so that we can find a treatment and maybe - Gods willing - a cure! To those who aren't sure: Just because you can't see the scars - please be aware - you never know when one of your family or friends could have it because we have gotten so good at 'acting' normal. If you think your family or friend may be having problems like this - show them support and sign now! Maybe if it affected the lives of politicians and doctors and their families we would have gotten somewhere by now - this disease has been around since before Karl Marx! Open your eyes and your hearts,sign this petition and learn how you can help those of us who suffer from this disfiguring and painful disease!
# 251:
9:14 am PST, Mar 1,
Jason Ladnier, Mississippi
