On February 28, 2013 millions of people around the world will observe Rare Disease Day for the 6th year. This is the 5th year that the United States will join in.
Rare disorders affect the entire family of an individual patient as they endure ongoing stress and isolation while managing the medical and financial issues that arise. As a parent of a child with a rare disorder, Stephanie knows very well the hardships that must be overcome.
As Mrs. Michigan America 2010 and Mrs. United States 2007, Stephanie has fought hard for the recognition this day brings. Rare Disease Awareness is the platform that Stephanie promoted in her reign as Mrs. United States 2007 and she continues to work as a spokesperson for NORD, The National Organization for Rare Disorders.
The goal of this petition is to collect signatures from all walks of life, from those that stand with, behind, and for those affected by Rare Disease. Collectively we can show that we do care and will take care of our most vulnerable citizens.
Please sign this petition and visit the NORD Website to find out more about how you can continue to help bring this day to life in each and every state in America.
We the Undersigned stand behind and for the proclamation that February 28 is designated as Rare Disease Awareness Day in the United States of America, and celebrate that it will be observed each February 28th thereafter.
Rare disorders affect the entire family of an individual patient as they endure ongoing stress and isolation while managing the medical and financial issues that arise.
Many States now recognize this day individually and celebrate and support those of our citizens who need our help the most.
We thank you in advance for your time and consideration
Keep up the great work. Look what you've accomplished!
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