Sign & Support the campaign for Research & Trials in 'Low Dose Naltrexone for Multiple Scler
Target:
Linda Elsegood, Campaign Team Low Dose Naltrexone, LDN Campaign Team
Sponsored by:
This petition is in support of the campaign to get Low Dose Naltrexone (LDN) into clinical trials as soon as possible.
At the moment there are very few Neurologists and GP's willing to prescribe LDN. We need it trialed urgently for the benefit of all those with Multiple Sclerosis.
For more LDN information pleae visit the following sites:
http://www.ldninfo.org
http://www.ldnresearchtrust.org
At the moment there are very few Neurologists and GP's willing to prescribe LDN. We need it trialed urgently for the benefit of all those with Multiple Sclerosis.
For more LDN information pleae visit the following sites:
http://www.ldninfo.org
http://www.ldnresearchtrust.org
This petition is in support of the campaign to get Low Dose Naltrexone (LDN) into clinical trials as soon as possible.
At the moment there are very few Neurologists and GP's willing to prescribe LDN. We need it trialed urgently for the benefit of all those with Multiple Sclerosis.
For more LDN information pleae visit the following sites:
http://www.ldninfo.org
http://www.ldnresearchtrust.org
At the moment there are very few Neurologists and GP's willing to prescribe LDN. We need it trialed urgently for the benefit of all those with Multiple Sclerosis.
For more LDN information pleae visit the following sites:
http://www.ldninfo.org
http://www.ldnresearchtrust.org
This petition is in support of the campaign to get Low Dose Naltrexone (LDN) into clinical trials. Many drugs used for MS on a daily basis have not been in clinical trials and yet Doctors still prescribe them to MS patients. Some drugs used in the treatment of MS have serious side effects. Low Dose Naltrexone is prescribed at such a low dose of 3 - 4.5 mg daily that there is absolutely no harm in using it. Many people have found their progression to stop or at least slow down immensely while taking LDN. Unfortunately though LDN is still rarely prescribed, therefore the sooner we get trials underway the better. Many people from around the world are trying to get their doctors to prescribe LDN but very few are lucky enough to find a good doctor who will help. Dr. Bihari in New York and Dr. Lawrence in Wales are under alot of pressure trying to help as many patients they can. At present they have to put many on a waiting list because there are little other doctors helping them by prescribing this drug. Your help is needed right now! Please sign this petition today and send it to as many people with as possible, together we can make a difference. Our team of campaigners for LDN hope to reach our goal of 100,000 signatures with your help. No matter where you live, you are important to us as we are campaigning for EVERYBODY WITH MULTIPLE SCLEROSIS. We will then send the results to politicians in all corresponding countries.
We signed the "Sign & Support the campaign for Research & Trials in 'Low Dose Naltrexone for Multiple Scler" petition!
# 10,963:
10:11 am PDT, Jul 2,
Mary Watson, Nevada
# 10,962:
10:42 pm PDT, Jul 1,
Chris Staggs, Oklahoma
# 10,961:
4:53 pm PDT, Jul 1,
Colleen Lawson, California
my best friend has MS and has seen amazing results by taking only LDN
my best friend has MS and has seen amazing results by taking only LDN
# 10,960:
4:10 pm PDT, Jul 1,
Name not displayed, Oklahoma
If you know anyone who has MS, this drug would help. It has helped my granddaughter.
If you know anyone who has MS, this drug would help. It has helped my granddaughter.
# 10,959:
4:07 pm PDT, Jul 1,
Stacy Roten, Ohio
I have MS and I have tried many of the therapies and medicines that are currently prescribed,the only one that has shown me any signs of improvement is LDN. My neurologist would not prescribe this medicine for me so I went out on my own with the help of my best friend and found a way to get it prescribed to me and I am now doing youtube videos on my progress. This drug should be an option and made available to patients,unfortunatly thats not the case.We need clinical trials,this medicine works.
I have MS and I have tried many of the therapies and medicines that are currently prescribed,the only one that has shown me any signs of improvement is LDN. My neurologist would not prescribe this medicine for me so I went out on my own with the help of my best friend and found a way to get it prescribed to me and I am now doing youtube videos on my progress. This drug should be an option and made available to patients,unfortunatly thats not the case.We need clinical trials,this medicine works.
# 10,958:
2:37 pm PDT, Jul 1,
Sarah Beck, New Mexico
I take LDN for CFIDS.
I take LDN for CFIDS.
# 10,957:
11:19 am PDT, Jul 1,
Andrea Scott, Oklahoma
Hello, my name is Andrea. I have MS and I am 21 years old. I have been getting low dose Naltrexone from my local compounding pharmacy for 2 years, and I have been symptom free for this time period also. I could contribute this to a remission of my Multiple Sclerosis; however, I tend to believe it is a lot more than this. My neurologist that diagnosed me in 2006 recommended that I consider another treatment (even chemotherapy) due to my advanced dissimilar symptoms: numbness running down backs of arms to finger tips and around my abdomen and lower back, cloudy and darkened vision in my left eye, constipation, no menstrual cycles, and fainting spells along with fatigue. My mother has had relapsing remitting MS for all of my life. Her symptoms (oddly enough) started out just like mine, and she is now (and has been for 8 years) paralyzed from the neck down. She has been living in a nursing home for the last 11 years and on and off of Hospice during this time. The medicine that my mother has been prescribed is only for treatment of the symptoms due to her MS; plus more drugs to ease the side effects from these drugs administered to her. I love her dearly and my twin sister and I have been visiting her weekly since we were little girls. I only wish that she knew about low dose Naltrexone when she first acknowledged that something was wrong. _Photo is of my mother (Vicki), my twin sister (Jessica), and I.
Hello, my name is Andrea. I have MS and I am 21 years old. I have been getting low dose Naltrexone from my local compounding pharmacy for 2 years, and I have been symptom free for this time period also. I could contribute this to a remission of my Multiple Sclerosis; however, I tend to believe it is a lot more than this. My neurologist that diagnosed me in 2006 recommended that I consider another treatment (even chemotherapy) due to my advanced dissimilar symptoms: numbness running down backs of arms to finger tips and around my abdomen and lower back, cloudy and darkened vision in my left eye, constipation, no menstrual cycles, and fainting spells along with fatigue. My mother has had relapsing remitting MS for all of my life. Her symptoms (oddly enough) started out just like mine, and she is now (and has been for 8 years) paralyzed from the neck down. She has been living in a nursing home for the last 11 years and on and off of Hospice during this time. The medicine that my mother has been prescribed is only for treatment of the symptoms due to her MS; plus more drugs to ease the side effects from these drugs administered to her. I love her dearly and my twin sister and I have been visiting her weekly since we were little girls. I only wish that she knew about low dose Naltrexone when she first acknowledged that something was wrong. _Photo is of my mother (Vicki), my twin sister (Jessica), and I.
# 10,956:
2:59 am PDT, Jul 1,
Name not displayed, Italy
I have MS since 18 years, now I'm 30. It's one year I stay on LDN. In many years, it's the first time I've noticed improvements in my condition. Well, it really does work!
I have MS since 18 years, now I'm 30. It's one year I stay on LDN. In many years, it's the first time I've noticed improvements in my condition. Well, it really does work!
# 10,955:
7:43 am PDT, Jun 30,
Mariangela Del Sordi, New Jersey
Everything must be done to give MS patients an opportunity to live life to its fullest...until a cure is found!
Everything must be done to give MS patients an opportunity to live life to its fullest...until a cure is found!
# 10,954:
4:20 pm PDT, Jun 28,
Mary Clemens, New Mexico
Please.
Please.
# 10,953:
11:20 am PDT, Jun 25,
Ikuko Tidwell, Alaska
# 10,952:
12:25 am PDT, Jun 24,
Name not displayed, Australia
# 10,951:
10:52 pm PDT, Jun 23,
Rob Rovere, Australia
# 10,950:
9:03 pm PDT, Jun 23,
Jeffrey Miskoff, New Jersey
Interested in more research to prove the effects of LDN.
Interested in more research to prove the effects of LDN.
# 10,949:
7:01 pm PDT, Jun 23,
Sylvia Tsorakos, Australia
# 10,948:
6:31 pm PDT, Jun 23,
Sylvia Rovere, Australia
Enough Delay. Make it happen. Young people with this dreadful disease need something that can them now until a cure is finally discovered.
Enough Delay. Make it happen. Young people with this dreadful disease need something that can them now until a cure is finally discovered.
# 10,947:
7:06 am PDT, Jun 23,
David Allely, United Kingdom
# 10,946:
3:00 pm PDT, Jun 22,
Leanne Wilde, United Kingdom
Recently diagnosed with MS after 5 years of symptoms. I do not meet the 2 relapse criteria for DMDs. No doctor will prescribe LDN for me due to the lack of clinical evidence. I have no options at present except to go private. LDN is working for so many people and could help so many more. Clinical trials are essential to support the vast anecdotal evidence that LDN works.
Recently diagnosed with MS after 5 years of symptoms. I do not meet the 2 relapse criteria for DMDs. No doctor will prescribe LDN for me due to the lack of clinical evidence. I have no options at present except to go private. LDN is working for so many people and could help so many more. Clinical trials are essential to support the vast anecdotal evidence that LDN works.
# 10,945:
7:33 am PDT, Jun 22,
Name not displayed, Indiana
on 4.5 mg of LDN for 6 months. I pray it is helping but only further research will tell.
on 4.5 mg of LDN for 6 months. I pray it is helping but only further research will tell.
# 10,944:
4:42 pm PDT, Jun 21,
Nancy Lee, Australia
I have a rare autoimmune disease called relapsing polychondritis. Very little research has been done on this disease. Treatments are borrowed from other autoimmune diseases. Most of these treatments can have adverse side effects. If LDN is found to be effective in autoimmune diseases it would offer a treatment which appears to be inexpensive, and with few side effects. It would certainly be worth further research.
I have a rare autoimmune disease called relapsing polychondritis. Very little research has been done on this disease. Treatments are borrowed from other autoimmune diseases. Most of these treatments can have adverse side effects. If LDN is found to be effective in autoimmune diseases it would offer a treatment which appears to be inexpensive, and with few side effects. It would certainly be worth further research.
# 10,943:
7:09 am PDT, Jun 21,
Ann Ehlers, New Hampshire
# 10,942:
12:35 pm PDT, Jun 20,
Kathleen Cummings Cummings, South Carolina
I would love to try something that reallyhelps my symptoms. I want to feel"great!", instead of just "okay". Why is it so difficult to get a prescpiption for naltrexone?
I would love to try something that reallyhelps my symptoms. I want to feel"great!", instead of just "okay". Why is it so difficult to get a prescpiption for naltrexone?
# 10,941:
11:02 am PDT, Jun 18,
Hazel Harpster, Iowa
I am desperate to be able to use this drug. Neither my Rheumatologist, my Pulmonary specialist, nor my primary care doctor will take a look at the research and stories I have printed for them. It's is shameful the strangle-hold that big pharma companies have on the practice of medicine! We need access to this medicine!
I am desperate to be able to use this drug. Neither my Rheumatologist, my Pulmonary specialist, nor my primary care doctor will take a look at the research and stories I have printed for them. It's is shameful the strangle-hold that big pharma companies have on the practice of medicine! We need access to this medicine!
# 10,940:
8:26 am PDT, Jun 17,
Carmella Powers, Canada
There should be clinical trials in Canada for LDN treatment for Psoriasis, Psoriatic Arthritis, Rheumatoid Arthritis, MC, Crohn's, etc. There have been successful trials done in the US.
There should be clinical trials in Canada for LDN treatment for Psoriasis, Psoriatic Arthritis, Rheumatoid Arthritis, MC, Crohn's, etc. There have been successful trials done in the US.
# 10,939:
11:35 am PDT, Jun 15,
Maureen Bivard, United Kingdom
Having been a severe M.E. sufferer for 18yrs,(housebound and bedridden)LDN has enabled me to have a half-hour shopping trip.This may not seem much to some folks,but is fantastic for me.I have to pay for the drug privately.It is a cheap medication,so let`s get it available to all.
Having been a severe M.E. sufferer for 18yrs,(housebound and bedridden)LDN has enabled me to have a half-hour shopping trip.This may not seem much to some folks,but is fantastic for me.I have to pay for the drug privately.It is a cheap medication,so let`s get it available to all.
# 10,938:
10:21 am PDT, Jun 15,
Mark Pearson, United Kingdom
# 10,937:
8:44 am PDT, Jun 15,
Elaine Gomar, Connecticut
My son is in a FDA approved LDN drug trial at Penn State for Children with severe Crohn's Disease. This is truly a miracle drug. He has his health back and we have our son back. I applaud and support the use of this drug and think it should be available. Its a shame that the only real people benefitting from many of the pharmaceutical drugs which don't really work are the drug companies.
My son is in a FDA approved LDN drug trial at Penn State for Children with severe Crohn's Disease. This is truly a miracle drug. He has his health back and we have our son back. I applaud and support the use of this drug and think it should be available. Its a shame that the only real people benefitting from many of the pharmaceutical drugs which don't really work are the drug companies.
# 10,936:
4:32 am PDT, Jun 15,
Tanith Clements, United Kingdom
# 10,935:
4:08 am PDT, Jun 15,
Name not displayed, United Kingdom
# 10,934:
1:19 am PDT, Jun 15,
Jeff Wright, United Kingdom
when can i get it.
when can i get it.
# 10,933:
1:35 pm PDT, Jun 14,
Joan Sieving, Missouri
# 10,932:
8:45 pm PDT, Jun 13,
Darlene Nichols, Missouri
this has put me in remission with lupus
this has put me in remission with lupus
# 10,931:
7:14 pm PDT, Jun 13,
Pamela Culley, Illinois
# 10,930:
6:07 pm PDT, Jun 13,
Lela Landman, California
I don't have MS but am taking LDN for Polymyositis and metastatic breast cancer to the bones. I have only been on it for a month but it is definitely helping with increased energy and lessening of my pain.
I don't have MS but am taking LDN for Polymyositis and metastatic breast cancer to the bones. I have only been on it for a month but it is definitely helping with increased energy and lessening of my pain.
# 10,929:
1:38 pm PDT, Jun 12,
Adrienne VonGlatz, Washington D.C.
# 10,928:
1:27 pm PDT, Jun 12,
Carol Haas, California
# 10,927:
9:58 am PDT, Jun 12,
Donna M Haney, Delaware
Signing because my boyfriend Kenny has MS and cannot take other meds do to adverse reactions. Currently no other drug except Tysabri available, but neither of us are comfortable with the possibility of PML. Stumbled across LDN on the internet and actively persuing to get this for Kenny.Seems better than nothing until maybe a cure or another more promising drug comes available. Shame on the drug companies for charging so much for so little at times should be outlawed. People should not have to consider going outside of their own country to afford any kind of treatment or even to sell everything they have for a treatment.The drug Tysabri is making billions of dollars from this drug and you still sign your life away in case something happens you have nothing to go back on. Have seen a survivor of PML on Youtube and it is heartbreaking to hear his experience. We NEED this oportunity now.People have to stop bowing to the big drug companies and their exorbitant prices. They forget how the little persons of America have to live.
Signing because my boyfriend Kenny has MS and cannot take other meds do to adverse reactions. Currently no other drug except Tysabri available, but neither of us are comfortable with the possibility of PML. Stumbled across LDN on the internet and actively persuing to get this for Kenny.Seems better than nothing until maybe a cure or another more promising drug comes available. Shame on the drug companies for charging so much for so little at times should be outlawed. People should not have to consider going outside of their own country to afford any kind of treatment or even to sell everything they have for a treatment.The drug Tysabri is making billions of dollars from this drug and you still sign your life away in case something happens you have nothing to go back on. Have seen a survivor of PML on Youtube and it is heartbreaking to hear his experience. We NEED this oportunity now.People have to stop bowing to the big drug companies and their exorbitant prices. They forget how the little persons of America have to live.
# 10,926:
7:47 am PDT, Jun 12,
Steve Hutton, Iowa
I have had MS for 13 years and the fatigue that I experience ALL the time is so debilitating. It takes sheer will power to do anyhing - walk, urinate, stand, move, ..........etc. I Have No Energy. Steve Hutton
I have had MS for 13 years and the fatigue that I experience ALL the time is so debilitating. It takes sheer will power to do anyhing - walk, urinate, stand, move, ..........etc. I Have No Energy. Steve Hutton
# 10,925:
10:29 pm PDT, Jun 11,
Mary Bishop, Connecticut
# 10,924:
8:15 pm PDT, Jun 11,
Joyce Schechter, New Jersey
I HAVE FIBROMYALGIA AND LUPUS AMONG SEVERAL OTHER AUTO- IMMUNE DISEASES. NOT ONLY DO I HAVE PAIN RELATED TO THESE DISEASES BUT I HAVE THIS TERRIBLE EXHAUSTION THAT KEEPS ME FROM LIVING MY LIFE TO THE FULLEST. I WOULD WELCOME LOW DOSE NALTREXONE TO HELP ME GAIN BACK MY LIFE.
I HAVE FIBROMYALGIA AND LUPUS AMONG SEVERAL OTHER AUTO- IMMUNE DISEASES. NOT ONLY DO I HAVE PAIN RELATED TO THESE DISEASES BUT I HAVE THIS TERRIBLE EXHAUSTION THAT KEEPS ME FROM LIVING MY LIFE TO THE FULLEST. I WOULD WELCOME LOW DOSE NALTREXONE TO HELP ME GAIN BACK MY LIFE.
# 10,923:
8:00 pm PDT, Jun 11,
Leslie Kaehn, Florida
# 10,922:
1:14 pm PDT, Jun 11,
Alison Hayes, United Kingdom
# 10,921:
6:20 am PDT, Jun 11,
AAM Baines, United Kingdom
Breakthrough the MS barrier!
Breakthrough the MS barrier!
# 10,920:
5:24 am PDT, Jun 11,
Beryl Coder, Florida
Beryl A Coder
Beryl A Coder
# 10,919:
3:08 am PDT, Jun 11,
Njm Lampard, United Kingdom
please listen to those who care and do all that is necessary to further the cause - thank you
please listen to those who care and do all that is necessary to further the cause - thank you
# 10,918:
2:07 am PDT, Jun 11,
John Pickering, United Kingdom
# 10,917:
12:56 am PDT, Jun 11,
Sara Burn, United Kingdom
# 10,916:
4:40 am PDT, Jun 10,
Name not displayed, United Kingdom
I am sick of taking so many different drugs. LDN sounds like it could replace them all. In my case this would save the NHS lots of money. So please do allow this trial.
I am sick of taking so many different drugs. LDN sounds like it could replace them all. In my case this would save the NHS lots of money. So please do allow this trial.
# 10,915:
2:53 pm PDT, Jun 9,
Brian Daley, California
# 10,914:
|
3:59 am PDT, Jun 9,
Leo McBride, Ireland
Why must everything be so dependant on someone making money, is there no love for fellow man/woman. How can we help those less fortunate than ourselves. |
# 10,913:
3:37 am PDT, Jun 9,
Name not displayed, Ireland
please allow this trial.
please allow this trial.
# 10,912:
3:03 am PDT, Jun 9,
Leigh Ryan, Ireland
# 10,911:
8:51 am PDT, Jun 7,
Monty Clark, California
# 10,910:
7:33 am PDT, Jun 5,
Miriam Alers, Massachusetts
I have Multiple Sclerosis with other mulyi illnesses. I have read alot on LDN and have talk to 2 People on LDN and another who is waiting to be approved for LDN. Me I went to my Neurologist and asked him about LDN, he quickly responded with a negative response and told me he did not believe in LDN and will not prescribe anything he was against. I then went to see my primary doctor. She listened and read the papers I had on LDN and told me she was not licensed to prescribe me the medication but if I were to find a doctor that was licensed to give me the Medication she would definately refer me if that is what I thought was best for my. I then left with a different feeling, It was the feeling of HOPE. I pray eventually, like very soon the FDA does come to their senses and relize that people like me are tired, tired of the pain and all we must go through with these illnesses and taking all kinds of prescribe medicines that just don't show any result, in fact sometimes the side effects have become more of a problem. Please LDN has shown more HOPE than any other medication for these illnesses, so it should be approved. Other medicine that has gravely harmed people have been approved, why not LDN that has shown many answers to our prayers with these illnesses.
I have Multiple Sclerosis with other mulyi illnesses. I have read alot on LDN and have talk to 2 People on LDN and another who is waiting to be approved for LDN. Me I went to my Neurologist and asked him about LDN, he quickly responded with a negative response and told me he did not believe in LDN and will not prescribe anything he was against. I then went to see my primary doctor. She listened and read the papers I had on LDN and told me she was not licensed to prescribe me the medication but if I were to find a doctor that was licensed to give me the Medication she would definately refer me if that is what I thought was best for my. I then left with a different feeling, It was the feeling of HOPE. I pray eventually, like very soon the FDA does come to their senses and relize that people like me are tired, tired of the pain and all we must go through with these illnesses and taking all kinds of prescribe medicines that just don't show any result, in fact sometimes the side effects have become more of a problem. Please LDN has shown more HOPE than any other medication for these illnesses, so it should be approved. Other medicine that has gravely harmed people have been approved, why not LDN that has shown many answers to our prayers with these illnesses.
# 10,909:
11:55 am PDT, Jun 4,
Katherine Kessler, Pennsylvania
For more impact, add a personal comment here
For more impact, add a personal comment here
# 10,908:
10:37 am PDT, Jun 2,
Anna Third, United Kingdom
just started LDN, side effects could be so much worse, lots of luck to everyone!!
just started LDN, side effects could be so much worse, lots of luck to everyone!!
# 10,907:
8:44 am PDT, Jun 2,
Malcolm West, Pennsylvania
Stop the immune system suppression! Down with the multiple sclerosis idustrial complex! Long live LDN for good health! :)
Stop the immune system suppression! Down with the multiple sclerosis idustrial complex! Long live LDN for good health! :)
# 10,906:
11:40 am PDT, May 31,
Aaron Feik, Washington
With so many MS people already on this, let's do the science necessary for incorporation of LDN as a possible drug of choice. Thanks, A Feik
With so many MS people already on this, let's do the science necessary for incorporation of LDN as a possible drug of choice. Thanks, A Feik
# 10,905:
5:53 am PDT, May 31,
Anna Derbyshire, United Kingdom
# 10,904:
1:04 am PDT, May 31,
Ella Nielsen, Thailand
For more impact, add a personal comment here
For more impact, add a personal comment here
# 10,903:
12:14 am PDT, May 31,
Rick Anderson, Washington
I'm a witness to the benefits of LDN and believe that clinical trials are long overdue.
I'm a witness to the benefits of LDN and believe that clinical trials are long overdue.
# 10,902:
11:51 am PDT, May 30,
Raymond Toupin, Canada
