Sign & Support the campaign for Research & Trials in 'Low Dose Naltrexone for Multiple Scler
Target:
Linda Elsegood, Campaign Team Low Dose Naltrexone, LDN Campaign Team
Sponsored by:
This petition is in support of the campaign to get Low Dose Naltrexone (LDN) into clinical trials as soon as possible.
At the moment there are very few Neurologists and GP's willing to prescribe LDN. We need it trialed urgently for the benefit of all those with Multiple Sclerosis.
For more LDN information pleae visit the following sites:
http://www.ldninfo.org
http://www.ldnresearchtrust.org
At the moment there are very few Neurologists and GP's willing to prescribe LDN. We need it trialed urgently for the benefit of all those with Multiple Sclerosis.
For more LDN information pleae visit the following sites:
http://www.ldninfo.org
http://www.ldnresearchtrust.org
This petition is in support of the campaign to get Low Dose Naltrexone (LDN) into clinical trials as soon as possible.
At the moment there are very few Neurologists and GP's willing to prescribe LDN. We need it trialed urgently for the benefit of all those with Multiple Sclerosis.
For more LDN information pleae visit the following sites:
http://www.ldninfo.org
http://www.ldnresearchtrust.org
At the moment there are very few Neurologists and GP's willing to prescribe LDN. We need it trialed urgently for the benefit of all those with Multiple Sclerosis.
For more LDN information pleae visit the following sites:
http://www.ldninfo.org
http://www.ldnresearchtrust.org
This petition is in support of the campaign to get Low Dose Naltrexone (LDN) into clinical trials. Many drugs used for MS on a daily basis have not been in clinical trials and yet Doctors still prescribe them to MS patients. Some drugs used in the treatment of MS have serious side effects. Low Dose Naltrexone is prescribed at such a low dose of 3 - 4.5 mg daily that there is absolutely no harm in using it. Many people have found their progression to stop or at least slow down immensely while taking LDN. Unfortunately though LDN is still rarely prescribed, therefore the sooner we get trials underway the better. Many people from around the world are trying to get their doctors to prescribe LDN but very few are lucky enough to find a good doctor who will help. Dr. Bihari in New York and Dr. Lawrence in Wales are under alot of pressure trying to help as many patients they can. At present they have to put many on a waiting list because there are little other doctors helping them by prescribing this drug. Your help is needed right now! Please sign this petition today and send it to as many people with as possible, together we can make a difference. Our team of campaigners for LDN hope to reach our goal of 100,000 signatures with your help. No matter where you live, you are important to us as we are campaigning for EVERYBODY WITH MULTIPLE SCLEROSIS. We will then send the results to politicians in all corresponding countries.
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We signed the "Sign & Support the campaign for Research & Trials in 'Low Dose Naltrexone for Multiple Scler" petition!
# 10,365:
2:40 pm PDT, Sep 6,
Don Wittridge, United Kingdom
Do this please for the sake of all MS sufferers
Do this please for the sake of all MS sufferers
# 10,364:
12:07 pm PDT, Sep 6,
Alan Mackenzie, United Kingdom
# 10,363:
11:21 pm PDT, Sep 5,
Name not displayed, Utah
I began LDN 5 weeks ago. I actually have stamina again! I had forgotten what its like to be busy all day w/o needing to nap. Please starts trials ASAP.
I began LDN 5 weeks ago. I actually have stamina again! I had forgotten what its like to be busy all day w/o needing to nap. Please starts trials ASAP.
# 10,362:
9:05 pm PDT, Sep 5,
Name not displayed, Utah
# 10,361:
2:22 pm PDT, Sep 3,
Jayne Crocker, United Kingdom
# 10,360:
11:39 am PDT, Sep 2,
Jane Britton, United Kingdom
Having ms has affected my life greatly and I long to hear of a cure. It is only by having clinical trials of LDN will we know if this drug can at least help ms sufferers in some way!
Having ms has affected my life greatly and I long to hear of a cure. It is only by having clinical trials of LDN will we know if this drug can at least help ms sufferers in some way!
# 10,359:
5:23 am PDT, Sep 2,
Glynys Gregory, United Kingdom
# 10,358:
4:36 am PDT, Sep 2,
Will Morley, United Kingdom
LDN has greatly improved my quality of life and my GP and those around me have mentioned that my walking and energy levels have improved. This drug's effects on MS should be researched as a matter of urgency
LDN has greatly improved my quality of life and my GP and those around me have mentioned that my walking and energy levels have improved. This drug's effects on MS should be researched as a matter of urgency
# 10,357:
3:01 am PDT, Sep 2,
Elise Krog, South Africa
I have been on LDN for just under 3 weeks today and feel my will to live coming back. On Rebif my will to live was deteriorating slowly and since starting LDN I am now enthusiastic about life again. This must be an option given to anyone who wants it as I had to go behind my Neuro's back to get it.
I have been on LDN for just under 3 weeks today and feel my will to live coming back. On Rebif my will to live was deteriorating slowly and since starting LDN I am now enthusiastic about life again. This must be an option given to anyone who wants it as I had to go behind my Neuro's back to get it.
# 10,356:
12:10 am PDT, Sep 2,
L Williams, United Kingdom
Everyone with this cruel disese deserves every chance to fight back
Everyone with this cruel disese deserves every chance to fight back
# 10,355:
2:18 pm PDT, Sep 1,
Sarah Lewis, United Kingdom
# 10,354:
9:34 am PDT, Sep 1,
Jackie Baker, United Kingdom
l don't think people who have MS should be guinee pigs to save companys money for real investigation into drugs that are supposed to help MS sufferers. Side effects can always be a nasty downfall. l srongly agree and suppor the need for research and trials.
l don't think people who have MS should be guinee pigs to save companys money for real investigation into drugs that are supposed to help MS sufferers. Side effects can always be a nasty downfall. l srongly agree and suppor the need for research and trials.
# 10,353:
12:57 am PDT, Sep 1,
Name not displayed, United Kingdom
For more impact, add a personal comment here
For more impact, add a personal comment here
# 10,352:
11:58 pm PDT, Aug 31,
Stuart Davies, United Kingdom
# 10,351:
4:26 pm PDT, Aug 31,
Gareth Crawshaw, United Kingdom
The high price tags of other medicines for the treatment of MS in the UK (and around the world) mean that the funding bodies in the UK mean that the majority of sufferers like myself will never get any care for this painfuland debilitating disease. My neurologist told me he had funding for only three for his more than one hundred patients. Please help to see the trialing for LDN means that it can become available all.
The high price tags of other medicines for the treatment of MS in the UK (and around the world) mean that the funding bodies in the UK mean that the majority of sufferers like myself will never get any care for this painfuland debilitating disease. My neurologist told me he had funding for only three for his more than one hundred patients. Please help to see the trialing for LDN means that it can become available all.
# 10,350:
1:28 pm PDT, Aug 31,
Richard Sterling, United Kingdom
My mother inlaw has primary progressive MS. Her daughter (my wife) has seen her decline over the years. There is NO medication she has been allowed to take for her type of MS. This needs to change NOW!!! She is willing to try anything. Why is she NOT allowed to? This LDN low dosage needs to be trailed immediately in the UK. GP's need to be more open-minded to allow trying of new drugs.
My mother inlaw has primary progressive MS. Her daughter (my wife) has seen her decline over the years. There is NO medication she has been allowed to take for her type of MS. This needs to change NOW!!! She is willing to try anything. Why is she NOT allowed to? This LDN low dosage needs to be trailed immediately in the UK. GP's need to be more open-minded to allow trying of new drugs.
# 10,349:
2:44 am PDT, Aug 31,
Gail Weeks, United Kingdom
My Mother has had MS for over 30 year so for her to have the opportunity to have the drug would be fantastic! Fingers crossed it will be trailed soon!
My Mother has had MS for over 30 year so for her to have the opportunity to have the drug would be fantastic! Fingers crossed it will be trailed soon!
# 10,348:
10:05 am PDT, Aug 30,
Kirsten Innes, United Kingdom
Give people with MS at least a fair chance.
Give people with MS at least a fair chance.
# 10,347:
9:31 am PDT, Aug 30,
Andrew Lewis, United Kingdom
# 10,346:
9:15 am PDT, Aug 30,
Stan Rogers, United Kingdom
come on guys...get your act together
come on guys...get your act together
# 10,345:
8:20 am PDT, Aug 30,
Nigel Haworth, United Kingdom
# 10,344:
6:48 am PDT, Aug 30,
Jean Rasbridge, United Kingdom
# 10,343:
6:09 am PDT, Aug 30,
Bonita James, United Kingdom
# 10,342:
1:53 am PDT, Aug 30,
Jacqueline Butterworth, United Kingdom
# 10,341:
2:54 pm PDT, Aug 29,
Andrew Barnett, United Kingdom
Current treatments try to destroy the part of the immune system that still works, and this fixes the broke bit. This is a superior "do no harm" approach - is that phrase familiar?
Current treatments try to destroy the part of the immune system that still works, and this fixes the broke bit. This is a superior "do no harm" approach - is that phrase familiar?
# 10,340:
9:57 am PDT, Aug 29,
Denise Taylor, Swaziland
Dear God - please make this drug available!
Dear God - please make this drug available!
# 10,339:
1:34 pm PDT, Aug 28,
Terese Gasparo, New York
# 10,338:
4:12 am PDT, Aug 28,
Robert Chick, United Kingdom
# 10,337:
2:50 pm PDT, Aug 27,
Claire McIntyre, United Kingdom
I feel LDN is the only choice for me as I would not want to take any of the CRAB drugs at all. I have been taking it for two years now and have remained stable without any relapses.
I feel LDN is the only choice for me as I would not want to take any of the CRAB drugs at all. I have been taking it for two years now and have remained stable without any relapses.
# 10,336:
1:56 pm PDT, Aug 27,
Aikaterini Chatzinikolaou, Greece
Before 3 days (at night) I start LDN..... God with us.......
Before 3 days (at night) I start LDN..... God with us.......
# 10,335:
7:47 am PDT, Aug 27,
Robert Norman, United Kingdom
Anthing that can help with this terrible disease must be done !
Anthing that can help with this terrible disease must be done !
# 10,334:
4:26 am PDT, Aug 27,
Eileen Campbell, United Kingdom
My daughter has recently been diagnosed as suffering from MS. I fully support the need to carry out clinical trials on LDN if there is evidence to show it can reduce suffering. The suggestion that drug companies may be reluctant to particiate for financial reasons is appalling. I wish you every success in your campaign.
My daughter has recently been diagnosed as suffering from MS. I fully support the need to carry out clinical trials on LDN if there is evidence to show it can reduce suffering. The suggestion that drug companies may be reluctant to particiate for financial reasons is appalling. I wish you every success in your campaign.
# 10,333:
3:21 am PDT, Aug 27,
Andrea Lewis, United Kingdom
I support the petition for research into LDN as a treatment for MS. The growing anecdotal evidence needs clinical evidence to support it.
I support the petition for research into LDN as a treatment for MS. The growing anecdotal evidence needs clinical evidence to support it.
# 10,332:
2:45 am PDT, Aug 27,
Name not displayed, Italy
I wish that the Low Dose Naltrexone (LDN) will get into clinical trials as soon as possible; I'm already assuming it and I am re-born!
I wish that the Low Dose Naltrexone (LDN) will get into clinical trials as soon as possible; I'm already assuming it and I am re-born!
# 10,331:
2:39 am PDT, Aug 27,
Jan Andersson, United Kingdom
This in inexpensive and gives us hope to be able to continue with our lives. Please don't be held to ransome by drug companies looking for huge profits. Trial LDN before you turn us away.
This in inexpensive and gives us hope to be able to continue with our lives. Please don't be held to ransome by drug companies looking for huge profits. Trial LDN before you turn us away.
# 10,330:
12:53 am PDT, Aug 27,
Victoria O'Brien, United Kingdom
My best friend suffers from MS and I want her to have the chance for the best quality of life possible, which may be able to be achieved through this drug. But we don't know until we try... We need these drug trials now!
My best friend suffers from MS and I want her to have the chance for the best quality of life possible, which may be able to be achieved through this drug. But we don't know until we try... We need these drug trials now!
# 10,329:
12:08 am PDT, Aug 27,
Linda Sim, United Kingdom
I agree with Mairi Claire.
I agree with Mairi Claire.
# 10,328:
2:49 pm PDT, Aug 26,
John McCluskey, United Kingdom
Let them do it-it needs done.
Let them do it-it needs done.
# 10,327:
2:08 pm PDT, Aug 26,
Trevor McIlhatton, United Kingdom
# 10,326:
1:57 pm PDT, Aug 26,
Mairi Claire Mac Neil, United Kingdom
I am only 27 and am a relatively new sufferer of MS having only had it 3 years unfortunatley it is gradually getting worse I am told the only DMD available to me is Tysabri which can have catastrophic side effects. LDN has never been mentioned to me and as I lay in hospital earlier today getting yet another dose of steroids I found an article in today's paper advising of the existance of this possible wonder drug. Trials need to start asap to get the word out that this drug already approved for other reasons could also become the saviour of MS sufferers, please weigh up this petition as if it was someone you loved living with the condition who was given a chance at not getting any worse and possibly having a better quality of life, Could anyone really stand in the way of this and sleep easy at night. I beg of you to consider this for the thousands of Scots who seem to have been born unlucky in the part of the country with the highest amount of MS sufferers lets see us be the first to prescribe this as a MS drug and help all the sufferers and say proudly as our nation is well known for it's pride and announce at least we did something about it.
I am only 27 and am a relatively new sufferer of MS having only had it 3 years unfortunatley it is gradually getting worse I am told the only DMD available to me is Tysabri which can have catastrophic side effects. LDN has never been mentioned to me and as I lay in hospital earlier today getting yet another dose of steroids I found an article in today's paper advising of the existance of this possible wonder drug. Trials need to start asap to get the word out that this drug already approved for other reasons could also become the saviour of MS sufferers, please weigh up this petition as if it was someone you loved living with the condition who was given a chance at not getting any worse and possibly having a better quality of life, Could anyone really stand in the way of this and sleep easy at night. I beg of you to consider this for the thousands of Scots who seem to have been born unlucky in the part of the country with the highest amount of MS sufferers lets see us be the first to prescribe this as a MS drug and help all the sufferers and say proudly as our nation is well known for it's pride and announce at least we did something about it.
# 10,325:
9:54 am PDT, Aug 26,
Bridie Davies, United Kingdom
# 10,324:
8:30 am PDT, Aug 26,
Jenna Eash, Florida
Please help all of us with our struggles with MS.
Please help all of us with our struggles with MS.
# 10,323:
8:07 am PDT, Aug 26,
Madeleine Boardman, United Kingdom
# 10,322:
7:50 am PDT, Aug 26,
Vivien Blakely, United Kingdom
I have M.S and the only medication I'm on is a B12 injection for fatigue. I now am in a wheelchir as this disease has progressed over 30years. I feel as if I'm forgotten. I would like to try something that might help me.
I have M.S and the only medication I'm on is a B12 injection for fatigue. I now am in a wheelchir as this disease has progressed over 30years. I feel as if I'm forgotten. I would like to try something that might help me.
# 10,321:
6:19 am PDT, Aug 25,
LORRAINE HADDEN-GILMORE, United Kingdom
HELP THOSE WHO NEED IT!
HELP THOSE WHO NEED IT!
# 10,320:
5:04 am PDT, Aug 25,
SHIRLEY BURNESS-SMITH, United Kingdom
Dears Sir/Madam Without LDN I would be in a wheelchair not able to walk. On the first morning of being on LDN, I awoke refreshed and clear headed and able to see my fiance off to work which hadnt happened since the beginning of 2004 as I couldn't get out of bed before 11am as I was so fatigued. I was newly diagnosed @ beginning of 2006 & by July I was on steroids which didnt help so was told I was Secondary-Progressive MS. I started that year on 1st October as it only costs me £15 per month & has been my saviour as I was bouncing off the walls as my balance was severely affected. Please do trials on it as I am sure that EVERYONE will benefit just as I have. I am one of the 10% it hasn't stopped the progression for but considering the bleak outlook I had I am extremely happy. Yours sincerely Shirley Burness-Smith
Dears Sir/Madam Without LDN I would be in a wheelchair not able to walk. On the first morning of being on LDN, I awoke refreshed and clear headed and able to see my fiance off to work which hadnt happened since the beginning of 2004 as I couldn't get out of bed before 11am as I was so fatigued. I was newly diagnosed @ beginning of 2006 & by July I was on steroids which didnt help so was told I was Secondary-Progressive MS. I started that year on 1st October as it only costs me £15 per month & has been my saviour as I was bouncing off the walls as my balance was severely affected. Please do trials on it as I am sure that EVERYONE will benefit just as I have. I am one of the 10% it hasn't stopped the progression for but considering the bleak outlook I had I am extremely happy. Yours sincerely Shirley Burness-Smith
# 10,319:
3:12 pm PDT, Aug 24,
Nicolette Salerno, Illinois
# 10,318:
3:54 am PDT, Aug 24,
Milind Talekar, India
My wife has been suffering from MS since last 10 years and I cannot believe that even though the hope is there people are not willing to do Clinical Trials for this. For me and many like me who has a loved one who suffers from this horrible thing kindly give us the hope we have been waiting for
My wife has been suffering from MS since last 10 years and I cannot believe that even though the hope is there people are not willing to do Clinical Trials for this. For me and many like me who has a loved one who suffers from this horrible thing kindly give us the hope we have been waiting for
# 10,317:
1:01 pm PDT, Aug 22,
Albert Hoenigmann, California
Help my wife, please.
Help my wife, please.
# 10,316:
8:01 am PDT, Aug 21,
Peter Macpherson, United Kingdom
# 10,315:
11:59 am PDT, Aug 20,
Sunni Brazile, Alabama
I am 29 years old and believe that LDN would be a better drug for me and and everyone who has MS. I am deathlyu afraid of needles and this is one of the reasons why I am not currently on any MS medication. This medicine can help so many people. Please lets get this drug readily available for me and all people who are suffering.
I am 29 years old and believe that LDN would be a better drug for me and and everyone who has MS. I am deathlyu afraid of needles and this is one of the reasons why I am not currently on any MS medication. This medicine can help so many people. Please lets get this drug readily available for me and all people who are suffering.
# 10,314:
8:27 am PDT, Aug 20,
Stephen Kay, Germany
The sheer scale of the "anecdotal" evidence of LDN's efficacy in the treatment of MS surely warrants a clinical trial.
The sheer scale of the "anecdotal" evidence of LDN's efficacy in the treatment of MS surely warrants a clinical trial.
# 10,313:
10:48 pm PDT, Aug 19,
Kim Reidy, Australia
I have recently been diagnosed with early SLE and would like to see more research into the effectivenss of LDN for this condition.
I have recently been diagnosed with early SLE and would like to see more research into the effectivenss of LDN for this condition.
# 10,312:
6:39 pm PDT, Aug 19,
Peter Suess, Canada
There has to be a lot more research for MS was well as CANCER and LDN. Lets make doctors cure the diseases not just treat the symptoms. It will make them better doctors. Maybe less rich, but better doctors.
There has to be a lot more research for MS was well as CANCER and LDN. Lets make doctors cure the diseases not just treat the symptoms. It will make them better doctors. Maybe less rich, but better doctors.
# 10,311:
6:42 am PDT, Aug 19,
Elizabeth Tepe, Florida
# 10,310:
2:14 pm PDT, Aug 18,
Patricia Ghysels, Michigan
I can't find a physician to prescribe this for my Eczema. I would join a Trial if I could find one.
I can't find a physician to prescribe this for my Eczema. I would join a Trial if I could find one.
# 10,309:
4:37 am PDT, Aug 18,
Alison Brooks, United Kingdom
Several of my family are affected by this terrible disease. The physical effects are terrible but it is also the fact that there is currently no medical cure or help to stop or stem the disease that also has a massive mental impact on sufferers and those closest to them. With research help and maybe a cure could be found for the hundreds of thousands of suffers.
Several of my family are affected by this terrible disease. The physical effects are terrible but it is also the fact that there is currently no medical cure or help to stop or stem the disease that also has a massive mental impact on sufferers and those closest to them. With research help and maybe a cure could be found for the hundreds of thousands of suffers.
# 10,308:
10:03 pm PDT, Aug 17,
Ann-Marie Parisi, Australia
# 10,307:
6:43 pm PDT, Aug 16,
Name not displayed, Australia
# 10,306:
6:11 pm PDT, Aug 16,
Kim Dayman, Australia
# 10,305:
6:33 am PDT, Aug 16,
Carly Todd, Australia
I'm backing GEM all the way!!
I'm backing GEM all the way!!
# 10,304:
12:33 pm PDT, Aug 15,
Monique Sakima, California
I am a 45 year old MS patient. I have had this disease for over 15 years.I was only diagnosed three years ago when I became numb from the waist down. Since then, I have been dealing with all of the medications and side their side effects besides the symptoms of pain and fatigue from the disease. I am always looking for a new treatment and LDN sounds very promising. Please help the thousands of patients with MS and other immune disorders to have another option for treatment. Thank you.
I am a 45 year old MS patient. I have had this disease for over 15 years.I was only diagnosed three years ago when I became numb from the waist down. Since then, I have been dealing with all of the medications and side their side effects besides the symptoms of pain and fatigue from the disease. I am always looking for a new treatment and LDN sounds very promising. Please help the thousands of patients with MS and other immune disorders to have another option for treatment. Thank you.
# 10,303:
12:07 am PDT, Aug 15,
Name not displayed, Australia
# 10,302:
6:21 am PDT, Aug 13,
Chantal Desharnais, Florida
I am appaled at how difficult it is to get in Canada...my mom has been diagnosed with lung cancer and I wanted to help her acquire some in canada...No doctors are even willing to take it seriously...It has to be available over there
I am appaled at how difficult it is to get in Canada...my mom has been diagnosed with lung cancer and I wanted to help her acquire some in canada...No doctors are even willing to take it seriously...It has to be available over there
