START TESTING FOR SCOLIOSIS IN SCHOOLS
Updates!!!
I just want to thank everyone for signing :) . Good luck to anyone who has/or is about to have their surgery. If anyone gets the chance, please could you add a scoliosis testing message to their websites or tell their friends about the petition. If we all do something - or even just sign :-) - then we could really make a difference. Here's a quick list of thankyous:
1. Everyone who has signed or read the Angel Balloons (I attached some balloons to the Angel of the North).2 Anyone who has ever performed surgery etc on scoliosis patients or researched scoliosis.
Hope everyone is well
Bye
EM
I've found out my operation worked :) and am so happy just wanted to post about that. Also please tell people about the petition - 374 at least 250 on Gillian Mckeith's - it could really work if we keep trying
Thanks
Emma
30th July
Intro
My petition is to help raise awareness for scoliosis by sending this petition , with the following aims to the PM and MP'S. To test a child for scoliosis at certain ages will take less than a minute (with a forward bend test) but will help the child as 1 in 3000 people have scoliosis (curvature of the spine) so bad they have to have major surgery, which takes months to fully recover from. if they were tested earlier then this could have been prevented , in some cases, by use of a brace. So please sign this petiton and help children across the U.K. A new year is the perfect time to help.
Yours sincerely
C E Y
January 1st 2008
If you sign we are on the way to getting noticed.
Thankyou
Our target is 125 signatures by June 31st 2008
Please spread the word!!!
Petition Blog
January 4th
Have just checked my site and am amazed at number of responses - keep them coming
January 11th
Today our petition has had brilliant news! We have had a good luck message from the secretary of the Duke of york and our petition has been put up in a GP's. 19th January We have had a good luck message from Blue Peter!!!!!!! And Tanni Grey Thompson , Paralympic star has signed my website . Also today we added our first link to our new scoliosis forum at http://www.scoliosis.aceboard.com/ Ckeck it out. Some messages need registering to leave a post but some dont .Tell your scoliosis story and spread the word. Talk to people like you. Also go on Bt Today and read our first news coverage , just go btplc.com/today and London and young girl calls for health checks.
YOU CAN MAKE A DIFFERENCE
June 1st
Sorry for not updating this in so long - instead I have been promoting the petition via TV (BBC Your News 31/5-1/6), Newspaper ( Mail on Sunday via Gilllian Mckeith's petition abotu my petition on her site) (and local newspaper Gazette on 24th March).
Updates!!!
I just want to thank everyone for signing :) . Good luck to anyone who has/or is about to have their surgery. If anyone gets the chance, please could you add a scoliosis testing message to their websites or tell their friends about the petition. If we all do something - or even just sign :-) - then we could really make a difference. Here's a quick list of thankyous:
1. Everyone who has signed or read the Angel Balloons (I attached some balloons to the Angel of the North).2 Anyone who has ever performed surgery etc on scoliosis patients or researched scoliosis.
Hope everyone is well
Bye
EM
I've found out my operation worked :) and am so happy just wanted to post about that. Also please tell people about the petition - 374 at least 250 on Gillian Mckeith's - it could really work if we keep trying
Thanks
Emma
30th July
Intro
My petition is to help raise awareness for scoliosis by sending this petition , with the following aims to the PM and MP'S. To test a child for scoliosis at certain ages will take less than a minute (with a forward bend test) but will help the child as 1 in 3000 people have scoliosis (curvature of the spine) so bad they have to have major surgery, which takes months to fully recover from. if they were tested earlier then this could have been prevented , in some cases, by use of a brace. So please sign this petiton and help children across the U.K. A new year is the perfect time to help.
Yours sincerely
C E Y
January 1st 2008
If you sign we are on the way to getting noticed.
Thankyou
Our target is 125 signatures by June 31st 2008
Please spread the word!!!
Petition Blog
January 4th
Have just checked my site and am amazed at number of responses - keep them coming
January 11th
Today our petition has had brilliant news! We have had a good luck message from the secretary of the Duke of york and our petition has been put up in a GP's. 19th January We have had a good luck message from Blue Peter!!!!!!! And Tanni Grey Thompson , Paralympic star has signed my website . Also today we added our first link to our new scoliosis forum at http://www.scoliosis.aceboard.com/ Ckeck it out. Some messages need registering to leave a post but some dont .Tell your scoliosis story and spread the word. Talk to people like you. Also go on Bt Today and read our first news coverage , just go btplc.com/today and London and young girl calls for health checks.
YOU CAN MAKE A DIFFERENCE
June 1st
Sorry for not updating this in so long - instead I have been promoting the petition via TV (BBC Your News 31/5-1/6), Newspaper ( Mail on Sunday via Gilllian Mckeith's petition abotu my petition on her site) (and local newspaper Gazette on 24th March).
They found my scoliosis in 5th grade and I ended up having the surgery when I was 16 at KU Medical Center. I am now 38 years old and my life has been so much better otherwise my organs were being crushed inside. They need to test our children!!!!
My daughter has just been diagnosed as a result of me asking my Chiropractor to investigate her complaints about hip and back pain. I had never even heard of the condition and only hope we can do something without her needing surgery! We must increase awareness of Scoliosis - growing up is hard enough without discovering something like this by accident!!
My 12 yr old son has just been diagnosed with Scoliosis. This was only through my having the same condition and being very aware of the symptons.
My daughter (aged 13) has just been diagnosed with scoliosis and we are waiting for a referral to orthapaedic surgeon. I feel really upset and worried. We saw GP a year ago who said to leave it unless she is in a lot of pain, but now we are having to be referred to specialist and I feel that this should have been done a year ago.
I am 47 and have had scoliosis since I was 14. As a teenager I wore a Milwaukee brace, but as I get older I fear my curve is getting worse.
If my daughter had been screened in school in 2004, as I was led to believe she would be, her scoliosis could have been detected early and possibly rectified quite simply. This didn't happen and she now requires surgery to rectify a 48degree curvature, but cutbacks and budget constraints mean this will not happen in the forseeable future.
I had a major operation for scoliosis when I was 19. I can't help thinking that this could have been avoided had it been picked up earlier; testing in schools would benefit many more people like me and could prevent them having to go through the trauma of major spinal surgery.
My girlfriend has had an operation for scoliosis; we believe this could have been prevented had she been diagnosed earlier. Pilates and Alexander Technique has prevented her needing a second operation.
All schools should be doing this simple test for scoliosis as part of the usual health checks. It would have been a great help to me if I had been diagnosed in my early teens rather than at 19 and having a spinal fusion at 21. Start doing it now please!
I had my Harringtons Rod ops at 15. Although I'm now 39 and haven't had too many problems I do wish it had been found earlier. Every kid should have an annual check for this and other growth related issues.
I've been there and still going through it with my scoliosis, wish they'd found mine when I was younger. It's a lot easier to intervene and correct when your a child and still growing. Good luck.
Lets getting testing folks!!
Brilliant idea so easy just to get the school nurses to do this very simple bending forward test, they could combine it with the current cervical jab's they are doing in schools at the moment. Lets hope it is introduced soon.
I was diagnosed at age 4 with severe idopathic Scoliosis, I wore a milwaukie brace & a Boston Brace, a full bodycast , traction six times, a harrington rod instrumentation surgery fusing 12 vertabrae & taking bone grafts from both hips & a rod removal at age 13. The effects of the fusion have had a negative impact on my health & left me with crumbling vertabrae in the lumbar spine and nerve damage with horrible pain 24/7. Now in 2009 am looking at another major surgery to try and repair the damage from the 1st two surgeries.
I was diagnosed with scoliosis two years ago. Am currently being 'treated' and awaiting surgery. If it was detected earlier, i was told I have probably had scoliosis for about 5 years, it could have been prevented meaning less NHS money needs to be spent and I wouldn't have to be put through this living hell. This small easy action of checking children could stop scoliosis destroying other people's lives like it has mine.The past two years of my childhood has been shattered because of the emotional pain and stress the scoliosis has caused and I just hope this measure gets taken so other children do not have to suffer like me.
I can't help feeling we could have slowed my daughter's scoliosis down if we had found it earlier!
Hi. I am nearly 50 years old now and have scoliosis. I was diagnosed at the age of 40 apparantly having lived with this condition all my life. If it had been spotted at school, I may now not have the spine i have been left with. Good Luck
i have scoliosis and so does my 17year old daughter,but she has a lot of lower back pain.i wish she had been checked earlier
i am 22 years old and was diagnosed with scoliosis (s shape) few months back and i have pain in my lower back. i also have a 2 year old daughter who will be checked for scoliosis -i will demand that. if my condition was discovered earlier on i probably wouldnt be in the pain i am in now. khylie ramsay
I have congential double major curvature scoliosis. im 30 with two girls and i fear my 3 yr old has it .. and my 10yr old hast shown it yet .. but i believe they should start the caution in preschool ...Theres signs more than u know !!!
I have an 'S' shape scoliosis of 40%. Not currently looking into having Surgery, but the option is there for me if I cange my mind. I was diagnosed 9years ago at the age of 13, the curve has not worsened, i have actually managed to almost straighten my lumbar secondary curve through gym training (strengthening muscles etc.). However I have had increased pain over the 9years and am looking for NHS help with treatment by the way of Sports Massages. I need to have these at least once a month and this relaxes and takes all the stress out of my tight muscles. this costs £30 per massage which is hard to find these days and so went to local GP and asked if i could get this on the NHS and she said their is nothing in place for treatment like this for scoliosis. I was devastated because the pain is increasing and Im thinking i will one day need surgery which i am not looking forward to.
hi my daughter has waited a year to see the dr at the hospital and now has to undergo major operation to have her cruve sorted out i was lucky as my daughter undergo's physo at her school for other illnesses it was picked up but her other dr's did not find it more needs to be done well done on the petition and good luck everyone affected by this.
I had scoliosis surgery in 1994. I spend a lot of time encouraging kids to go through the school screenings at the schools that offer it. We need more of it!
we want testing at school becasue as parents we were not aware of scoliosis and may be if testing was done at school it may have been pick up at the early stages.
