START TESTING FOR SCOLIOSIS IN SCHOOLS
Updates!!!
I just want to thank everyone for signing :) . Good luck to anyone who has/or is about to have their surgery. If anyone gets the chance, please could you add a scoliosis testing message to their websites or tell their friends about the petition. If we all do something - or even just sign :-) - then we could really make a difference. Here's a quick list of thankyous:
1. Everyone who has signed or read the Angel Balloons (I attached some balloons to the Angel of the North).2 Anyone who has ever performed surgery etc on scoliosis patients or researched scoliosis.
Hope everyone is well
Bye
EM
I've found out my operation worked :) and am so happy just wanted to post about that. Also please tell people about the petition - 374 at least 250 on Gillian Mckeith's - it could really work if we keep trying
Thanks
Emma
30th July
Intro
My petition is to help raise awareness for scoliosis by sending this petition , with the following aims to the PM and MP'S. To test a child for scoliosis at certain ages will take less than a minute (with a forward bend test) but will help the child as 1 in 3000 people have scoliosis (curvature of the spine) so bad they have to have major surgery, which takes months to fully recover from. if they were tested earlier then this could have been prevented , in some cases, by use of a brace. So please sign this petiton and help children across the U.K. A new year is the perfect time to help.
Yours sincerely
C E Y
January 1st 2008
If you sign we are on the way to getting noticed.
Thankyou
Our target is 125 signatures by June 31st 2008
Please spread the word!!!
Petition Blog
January 4th
Have just checked my site and am amazed at number of responses - keep them coming
January 11th
Today our petition has had brilliant news! We have had a good luck message from the secretary of the Duke of york and our petition has been put up in a GP's. 19th January We have had a good luck message from Blue Peter!!!!!!! And Tanni Grey Thompson , Paralympic star has signed my website . Also today we added our first link to our new scoliosis forum at http://www.scoliosis.aceboard.com/ Ckeck it out. Some messages need registering to leave a post but some dont .Tell your scoliosis story and spread the word. Talk to people like you. Also go on Bt Today and read our first news coverage , just go btplc.com/today and London and young girl calls for health checks.
YOU CAN MAKE A DIFFERENCE
June 1st
Sorry for not updating this in so long - instead I have been promoting the petition via TV (BBC Your News 31/5-1/6), Newspaper ( Mail on Sunday via Gilllian Mckeith's petition abotu my petition on her site) (and local newspaper Gazette on 24th March).
Updates!!!
I just want to thank everyone for signing :) . Good luck to anyone who has/or is about to have their surgery. If anyone gets the chance, please could you add a scoliosis testing message to their websites or tell their friends about the petition. If we all do something - or even just sign :-) - then we could really make a difference. Here's a quick list of thankyous:
1. Everyone who has signed or read the Angel Balloons (I attached some balloons to the Angel of the North).2 Anyone who has ever performed surgery etc on scoliosis patients or researched scoliosis.
Hope everyone is well
Bye
EM
I've found out my operation worked :) and am so happy just wanted to post about that. Also please tell people about the petition - 374 at least 250 on Gillian Mckeith's - it could really work if we keep trying
Thanks
Emma
30th July
Intro
My petition is to help raise awareness for scoliosis by sending this petition , with the following aims to the PM and MP'S. To test a child for scoliosis at certain ages will take less than a minute (with a forward bend test) but will help the child as 1 in 3000 people have scoliosis (curvature of the spine) so bad they have to have major surgery, which takes months to fully recover from. if they were tested earlier then this could have been prevented , in some cases, by use of a brace. So please sign this petiton and help children across the U.K. A new year is the perfect time to help.
Yours sincerely
C E Y
January 1st 2008
If you sign we are on the way to getting noticed.
Thankyou
Our target is 125 signatures by June 31st 2008
Please spread the word!!!
Petition Blog
January 4th
Have just checked my site and am amazed at number of responses - keep them coming
January 11th
Today our petition has had brilliant news! We have had a good luck message from the secretary of the Duke of york and our petition has been put up in a GP's. 19th January We have had a good luck message from Blue Peter!!!!!!! And Tanni Grey Thompson , Paralympic star has signed my website . Also today we added our first link to our new scoliosis forum at http://www.scoliosis.aceboard.com/ Ckeck it out. Some messages need registering to leave a post but some dont .Tell your scoliosis story and spread the word. Talk to people like you. Also go on Bt Today and read our first news coverage , just go btplc.com/today and London and young girl calls for health checks.
YOU CAN MAKE A DIFFERENCE
June 1st
Sorry for not updating this in so long - instead I have been promoting the petition via TV (BBC Your News 31/5-1/6), Newspaper ( Mail on Sunday via Gilllian Mckeith's petition abotu my petition on her site) (and local newspaper Gazette on 24th March).
two of my best friends have had scoliosis and they are soo amazingg! Love you guys xxxxxxxx
My daughter has scoliosis and had it for at least 2 years before we realised due to lack knowledge and no testing in schools. She now wears a brace and will have an op in the future.
my best friend had scoliosis and she was so brave through the whole thing. her family and me as a friend wanted to support her all the way.. i love you paige (L) xxx
holley
I have idopathic scoliosis. I had a spinal fusion when I was 18. I was and am in a lot of pain. Early detection through testing at school could have an impact in preventing the progression of the condition in younger children, reducing the need for surgeries.
i am writing this and there are tears in my eyes as it reminds me how i went through all the pain of surgery and after care. i am a scoliosis patient myself and am from Pakistan. in 1994 i was diagnosed at home by dad who noticed an abnormal curve at my back, in 1995 i came to London and had an operation in GOSH. went back home but today still its all in my mind the pain i and my family went through. i think this cause should be supported by govt and general public so that it could be detected earlier and like me many others dont go through the same agony. Thank you God for giving me health once again as today i can do something for others who might be going through the same..
my best friend had scoliosis, and i want people to catch it early, so they don't have to go through what she did. :( xxx
my daughter has scoliosis and is to have surgery soon
my daughter has just had surgery for scoliosis , 75 deg top and 64deg bottom, this had progress from 54 deg may last year. she had her opp 26th nov 2009. found it through her having backache and slight swelling on her back. after 9hrs in surgery she is great and is going back to school next week. i agree they should test in schools .
i have 3 daughters, the eldest of whom has idiopathic scoliosis,its extremly painfull and she will be having surgery this year but it terrifies me that at some stage both my younger daughers could indeed get this condition aswell. if it were screened for in schools routinly that would be a huge weight of of our shoulders.
I have scoliosis, and had it been detected earlier, i would not be living my life every day in a brace with the possibility of still getting suregery
I am a school nurse
My best friend recently had scolosis but had scoliosis correction surgery 5 months ago. I am in High School and think it is very very important for school to test for scoliosis, so if poeple do have it they catch it fast and get on top of it!! START TESTING FOR SCOLIOSIS IN SCHOOLS!!!
I had scoliosis correction surgery 5 months ago and it really was a very difficult time for me and my family. If my condition had been detected at an earlier age then I maybe wouldn't have had to go through such a tough experience. Testing in schools for scoliosis is a fantastic idea, lots of other countries do it and I support it 100%!
Im 13 and had surgery to correct scoliosis in july, if i had been diagnosed earlier i could of tried a brace instead of having to have surgery straight away.
My sisters best friend was diagnosed this at 15, if it was diagnosed earlier she would of not went through the bad pain and agony. xx
I know of somebody who had to have the operation and have body brace for months...
My ant wa diagnosed with scoliosis at the age of 14 and she still has problems with her back to date. This was 30 years ago
i was diagnosed with scoliosis at the age of 14 when a was going threw puberty me own doctor didnt have a clue what it was so a was sent too sunderland royal they then sent me too fremman road in newcastle where i had an op first a had too be stretched which was torture then a had too had a op too insert a 8inch harrington rod too support my spine i then had a body plaster cast on for 6 months followed by a body brace for a further 6 months if i hadnt had th op a wud have been a cripple by now so am thankful too freemand road and dr leonard who done my op at the time nearly 30yrs ago xxx
My sister had Scholiocis and was not detected until she was 11 by the family. She had a year long of operations and now had a metal rod permanatly in her back.
My 13 year old has just had the double surgery for adolescent idiopathic scoliosis. I must have watched her during squad swims 100's of times but didn't spot anything. Her friend mentioned about a shoulder blade sticking out and we caught it before all the growing is finished. Friend in US said her school runs checks for scoliosis, so why not in UK?
When i was 15 I was diagnosed with scoliosis, not by teachers or my GP but by bullies at my school who laughed at me for being different. I felt so alone. I went on to have two corrective surgeries, once to insert rods and once again to correct some mistakes that the surgeon had made. I only wish they tested for this at my school in Australia as it may have been detected earlier and as an important health issue, it could have been a good thing to be able to discuss amongst my peers.
scoliosis is a serious problem in young adolescents. The overall incidence of scoliosis or curvature of the spine in the general population for kids greater than 14 years of age is about 1.5 percent. This figure refers to curves that measure greater than 10 degrees. Severe curves of greater than 30 degrees occur in about 0.2 percent of the general population. lets catch this earlier.
Scoliosis is not common knowledge to most people, anything to make people more aware of the signs to spot. In my case as in lots of cases below it's often too late for anything less than surgery.
I found out that I had a lumbar scoliosis after treatment for a car accident. I am in my early thirties and had considered back pain as normal part of my life which was often blamed on bad muscle strenght. Now I finally know source of my back pain and wish it would have been discovered early on when it could have still been corrected. I definately will get my children checked yearly. Thankfully my chiroprator offers this kind of service free for children.
i was diagnosed with scoliosis in may last year, i had no idea what it was so found it quite upseting, i am 14, and i feel that if testing is brought back to schools then people will be able to get treated earlier and they will also know what scoliosis is when they are diagnosed, resulting in a less traumatising experience. 3 months ago i got 8 hour long corrective surgery as my spine was curved in two places, they fused the top part of my back but didnt do anything to the bottom part, this is because i am a gymnast and if they had done my whole back i wouldve had to have given it up. i cant do gymnastics for another year but when i do go back i wont be able to do all the stuff im used to. this is another reason why i feel it should be tested in schools because if it is treated earlier then less drastic actions will need to be taken and children can carry on doing what they love. my surgery went extremely well and i am so gratefull to everyone involved but i just feel that there is no need for children to be suffering with back pains and not even knowing why! testing in schools should definetely be brought back to help more children like me, emma and other people that have been diagnosed scoliosis. i am determined to get scoliosis testing back to school, and my condition has inspired me to become an orthopeadic doctor and travel round schools in the UK teaching people about scoliosis so that it can be caught early on without the need of surgery!
Hi, I have two Daughters who have been diagnosed within the last year with Scoliosis and greater knowledge is needed in schools to teach adults and children about this awful, uncomfortable condition and how the child feels, how it effects them and to ensure that there is awareness about the disorder. Ignorance is not bliss.
E. Rousou
i had my surgery when i was 14, i am now 18. I didn't even know i had scoliosis until shoulders got suburnt while on hoilday so my dad was rubbing some after sun in them and noticed the curve. Many people may have scoliosis and not even know about it, this test could save many people going through surgery and experiencing discomfort, back pain etc. This test will raise more awareness of scoliosis as not many people have heard of it, only those who have had it or know someone who has had it.
Awareness is a powerful tool - by testing for Scoliosis at a young age not only helps detect a curve in the early stages, but it also brings knowledge of the condition to children and parents so if someone they know develops scoliosis, then it won't be as scary for them either. I was diagnoised in the USA at the age of 8 and had surgery when I was 13 years old. Because of the testing of Scoliosis in IL schools, my conidition was found & treated early and friends didn't alienate me. Please make Scoliosis Testing in Schools a requirement in the UK for our children.
mine was not diagnosed untill i was 13, if it had been detected earlyer, the horror of the surgery may not have been necessary. please do the simple test in schools.
MINE WAS NOT DIAGNOSED UNTIL I WAS 14. HAD IT BEEN DIAGNOSED EARLIER I WOULD HAVE WORN A BRACE AND SURGERY WOULD NOT HAVE BEEN NECESSARY. THERE IS NO EXCUSE THESE DAYS NOT TO DO THIS TESTING IN SCHOOLS!
GET IT IN SCHOOOLS..... MANY YOUNG CHILDREN COULD SUFFER FROM THIS && NOT REALISE.... IT COULD GET ALOT WORSE IF ITS NOT CAUGHT QUICKLYYY!!!!!!!!!
so hope it can be bought into schools. had two ops for scoliosis myself! fingers crossed. could save so many surgical cases! x
