We want people to sign our petition and to help us make a difference to the young children and the adults who have and who are fighting rare diseases in Northern Ireland we would like a special unit set up to diagnose Rare Diseases under European Standards We would also like to see a children's unit set up in one of our hospitals of excellence to enable that unit to treat and diagnose rare diseases in Northern Ireland.
We would also like to meet with the minister of health for Northern Ireland to enable us to challenge him on the assembly response to the European Document on Rare Disease we feel our cause is a just one we are only trying to get proper treatment for young children who cannot fight for themselves we owe it to these children to enable them to have a voice on their treatment and their long term care.
Signed
The Cavan Tommy Hoey Trust (Ireland)
86 Palmerston Road Sydenham
Belfast Northern Ireland
Co Antrim BT41QD
