My first born son died of SMA when he was 7 months old. This was in 2006.
My daughter, who is now 9 years old, was diagnosed 4 years ago with SMA III. Two years later she was diagnosed with BVVL which is very similar to SMA. So if I FIGHT for my daughter then I have to fight for SMA families too!
i don't have anyone directly affected by this horrible disease, but do have a heart and feel for these families. i have a 11 month baby who means the world to me and would do anything to protect her. i join this fight!
This is so very important because there is no child that should have to endure this kind of handicap.
More stem cell research has to be done to rid people of this burden of a truly horrible disease.
pls help it to make it large
Everyday there is not a cure babies are suffering and dying and in this day and age with out technology there is no reason for that.
my son is diagnose with sma and i cant tell you the heart ache it gives me to see him grow up not being able to run around outside and experiance mobility on his own..he is totaly dependent of Jesus and us to move him around!