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Help END the #1 genetic killer of young children!
- signatures:
- deadline: ongoing
- signature goal: 100,000
- Target: U.S. Senate and House of Representatives
- Sponsored by: Bill and Victoria Strong
SMA is degenerative and terminal, impacting the ability to walk, sit, stand, eat, breathe, and swallow. SMA does not impact the mind though, and children with SMA remain bright and curious. There is NO treatment and NO cure for SMA. But there is HOPE!
The NIH has selected SMA as the disease closest to treatment, and leading researchers have stated a viable treatment is possible within 5 years -- if provided the adequate resources. SMA is considered a "model" disease already benefiting research into dozens of other diseases.
PetitionToCureSMA.com is a grassroots effort started by Bill and Victoria Strong, whose daughter Gwendolyn has SMA. This petition is in support of the SMA Treatement Acceleration Act, which was initially introduced in Congress in 2007 and was reintroduced in 2009. The passage of this legislation will help researchers cross the finish line and END SMA, while providing groundbreaking data for SMA and other disorders.
Please sign the petition today. To learn more about SMA and Gwendolyn's journey visit: GwendolynStrong.com and GwendolynStrongFoundation.org.
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