Petition To Cure Spinal Muscular Atrophy (SMA)
Target:
United States Senate and United States House of Representatives
Sponsored by:
PLEASE SIGN THIS PETITION TO HELP CURE SPINAL MUSCULAR ATROPHY, THE #1 GENETIC KILLER OF CHILDREN UNDER THE AGE OF 2.
We need your help to move landmark legislation through Congress that will allocate federal resources to non-profit and research organizations focused on finding a treatment and/or cure for SMA.
================
My son, G'ovanni David Jula, was born Monday November 5, 2007 and diagnosed with SMA at the age of 4weeks. Tuesday, March 4, 2008, only 17 weeks and 1 day old, G'ovanni passed away. SMA is a degenerative disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, breathing, head and neck control, and even swallowing. G'ovanni had Type 1 SMA, which is the most aggressive, terminal form of the disease. G'ovanni is an amazing boy. He was blessed with an amazing ability to make you smile. Just like other healthy babies, G'ovanni had the spirit and the heart of a fighter however his body failed him. Many other parents will loose their children to this disease before they reach the age of 2.
G'ovanni was just one of thousands of children coping with this devastating disease. An estimated 600 children will be born, in the United States, with SMA this year alone. However hope is within our reach. The National Institute of Health (NIH) and the National Institute of Neurological Disorders and Stroke (NINDS) have selected SMA as the disease closest to treatment of more than 600 neurological disorders. Researchers estimate that we are as close as only a few years away from finding a treatment and/or cure for SMA. However, funding is needed to make that last and crucial leap. THIS WHERE WE NEED YOUR HELP!!!
For the first time, legislation has been proposed in the United States Congress to allocate federal resources to non-profit and research organizations focused solely on finding a treatment and/or cure for SMA. The SMA Treatment Acceleration Act (H.R. 3334/S. 2042) was introduced in the House of Representatives as H.R. 3334 by Rep. Patrick Kennedy (D-RI) and Rep. Eric Cantor (R-VA) and in the Senate as S. 2042 by Sen. Debbie Stabenow (D-MI) and Sen. Johnny Isakson (R-GA) in August 2007 and September 2007, respectively. This legislation is supported by Families of SMA, the SMA Foundation, Fight SMA, and the Muscular Dystrophy Association. The passage of this legislation could change the lives of thousands of children and give them the future they so deserve.
The SMA Treatment Acceleration Act specifically authorizes federal funding in order to:
As of July 12, 2008, there are 18 Senators and 63 Representatives in Congress cosponsoring this legislation.
PLEASE SIGN THIS PETITION TO HELP CURE SPINAL MUSCULAR ATROPHY, THE #1 GENETIC KILLER OF CHILDREN UNDER THE AGE OF 2.
We need your help to move landmark legislation through Congress that will allocate federal resources to non-profit and research organizations focused on finding a treatment and/or cure for SMA.
- SMA is an inherited genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves.
- SMA is the #1 genetic killer of children under the age of 2.
- SMA is estimated to occur in nearly 1 out of every 6,000 births.
- The gene mutation that causes SMA is carried by 1 in every 40 people or nearly 7.5 million Americans.
- There is currently no cure, but the National Institutes of Health (NIH) and the National Institute of Neurological Disorders and Stroke (NINDS) have selected SMA as the disease closest to treatment of more than 600 neurological disorders.
- Researchers estimate that we are as close as only a few years away from finding a treatment and/or cure.
================
My son, G'ovanni David Jula, was born Monday November 5, 2007 and diagnosed with SMA at the age of 4weeks. Tuesday, March 4, 2008, only 17 weeks and 1 day old, G'ovanni passed away. SMA is a degenerative disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, breathing, head and neck control, and even swallowing. G'ovanni had Type 1 SMA, which is the most aggressive, terminal form of the disease. G'ovanni is an amazing boy. He was blessed with an amazing ability to make you smile. Just like other healthy babies, G'ovanni had the spirit and the heart of a fighter however his body failed him. Many other parents will loose their children to this disease before they reach the age of 2.
G'ovanni was just one of thousands of children coping with this devastating disease. An estimated 600 children will be born, in the United States, with SMA this year alone. However hope is within our reach. The National Institute of Health (NIH) and the National Institute of Neurological Disorders and Stroke (NINDS) have selected SMA as the disease closest to treatment of more than 600 neurological disorders. Researchers estimate that we are as close as only a few years away from finding a treatment and/or cure for SMA. However, funding is needed to make that last and crucial leap. THIS WHERE WE NEED YOUR HELP!!!
For the first time, legislation has been proposed in the United States Congress to allocate federal resources to non-profit and research organizations focused solely on finding a treatment and/or cure for SMA. The SMA Treatment Acceleration Act (H.R. 3334/S. 2042) was introduced in the House of Representatives as H.R. 3334 by Rep. Patrick Kennedy (D-RI) and Rep. Eric Cantor (R-VA) and in the Senate as S. 2042 by Sen. Debbie Stabenow (D-MI) and Sen. Johnny Isakson (R-GA) in August 2007 and September 2007, respectively. This legislation is supported by Families of SMA, the SMA Foundation, Fight SMA, and the Muscular Dystrophy Association. The passage of this legislation could change the lives of thousands of children and give them the future they so deserve.
The SMA Treatment Acceleration Act specifically authorizes federal funding in order to:
As stated above, SMA has been selected by the NIH and NINDS as the closest disease to treatment of more than 600 neurological disorders. The SMA Treatment Acceleration Act will initially focus on SMA, however the results and benefits will extend well beyond SMA. While progressing in unlocking a cure for SMA, the progress by researchers and their work will also increase the possiblity of curing other rare and critical conditions. The following diseases and disorders will receive a "collateral benefit" from SMA research:
- Upgrade and unify existing SMA clinical trials sites and establish a national clinical trials network for SMA.
- Establish a Data Coordinating Center to provide expert assistance and advice to SMA clinical trials sites.
- Expand and intensify federally supported research programs with respect to pre-clinical translational research related to SMA.
- Establish a research collaborative at the National Institutes of Health to ensure cooperation across multiple institutes regarding research related to SMA.
- Enhance and provide ongoing support to the existing SMA patient registry in order to provide for expanded research on the epidemiology of SMA.
- Establish an SMA Coordinating Committee, consisting of representatives from relevant government agencies and the public, to coordinate government activities relating to SMA, serve as the principal advisor to agency heads, and conduct a study to identify barriers to the development of drugs for treating SMA and report findings and legislative recommendations to Congress.
- Require the Secretary of Health and Human Services to collaborate with the FDA and the Coordinating Committee to make recommendations for improving and expanding existing industry incentives to promote SMA drug development.
- Establish and implement a program for providing information and education on SMA to health professionals and the general public related to advances in the diagnosis and treatment of SMA and the provision of care to SMA patients.
As you know, legislation like this will only move through Congress with broad support and Members are significantly more likely to co-sponsor and support legislation if their constituents are actively urging them to lobby for support of the bill on their behalf. Thus, to help move this legislation through the process WE NEED YOUR HELP IN SIGNING THIS PETITION to make sure your Senators and district Representatives know that this is an important piece of legislation to cosponsor.
- ALS/Lou Gehrig's Disease
- Alzheimer's Disease
- Parkinson's Disease
- Deafness-Dystonia
- Duchenne Muscular Dystrophy
- Fragile X, Friedreich's ataxia
- Gaucher Disease
- GM2A (AB Variant of GM2 Gangliosidosis)
- Machado-Joseph Disease,
- Menkes Disease
- Metachromatic Leukodystrophy: Late Infantile
- Myotonic Dystrophy
- Neuronal Ceroid Lipofuscinosis (Batten Disease): Infantile, Late Infantile, Classic Late Infantile, and
- Niemann-Pick Disease (NPD)
- Sialidosis and Galactosialidosis
- Spinocerebellar Ataxia Type 1
- Spinocerebellar Ataxia Type 2/Episodic ataxia type 2
- Spinocerebellar ataxia type 6,
- Spinocerebellar Ataxia Type 7 (olivopontocerebellar atrophy with retinal degeneration)
- Tay-Sachs Sandhoff, and X-Linked Andrenoleukodystrophy (ALD)
As of July 12, 2008, there are 18 Senators and 63 Representatives in Congress cosponsoring this legislation.
PLEASE SIGN THIS PETITION TO HELP CURE SPINAL MUSCULAR ATROPHY, THE #1 GENETIC KILLER OF CHILDREN UNDER THE AGE OF 2.
PLEASE SIGN THIS PETITION TO HELP CURE SPINAL MUSCULAR ATROPHY, THE #1 GENETIC KILLER OF CHILDREN UNDER THE AGE OF 2.
We need your help to move landmark legislation through Congress that will allocate federal resources to non-profit and research organizations focused on finding a treatment and/or cure for SMA.
================
My son, G'ovanni David Jula, was born Monday November 5, 2007 and diagnosed with SMA at the age of 4weeks. Tuesday, March 4, 2008, only 17 weeks and 1 day old, G'ovanni passed away. SMA is a degenerative disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, breathing, head and neck control, and even swallowing. G'ovanni had Type 1 SMA, which is the most aggressive, terminal form of the disease. G'ovanni is an amazing boy. He was blessed with an amazing ability to make you smile. Just like other healthy babies, G'ovanni had the spirit and the heart of a fighter however his body failed him. Many other parents will loose their children to this disease before they reach the age of 2.
G'ovanni was just one of thousands of children coping with this devastating disease. An estimated 600 children will be born, in the United States, with SMA this year alone. However hope is within our reach. The National Institute of Health (NIH) and the National Institute of Neurological Disorders and Stroke (NINDS) have selected SMA as the disease closest to treatment of more than 600 neurological disorders. Researchers estimate that we are as close as only a few years away from finding a treatment and/or cure for SMA. However, funding is needed to make that last and crucial leap. THIS WHERE WE NEED YOUR HELP!!!
For the first time, legislation has been proposed in the United States Congress to allocate federal resources to non-profit and research organizations focused solely on finding a treatment and/or cure for SMA. The SMA Treatment Acceleration Act (H.R. 3334/S. 2042) was introduced in the House of Representatives as H.R. 3334 by Rep. Patrick Kennedy (D-RI) and Rep. Eric Cantor (R-VA) and in the Senate as S. 2042 by Sen. Debbie Stabenow (D-MI) and Sen. Johnny Isakson (R-GA) in August 2007 and September 2007, respectively. This legislation is supported by Families of SMA, the SMA Foundation, Fight SMA, and the Muscular Dystrophy Association. The passage of this legislation could change the lives of thousands of children and give them the future they so deserve.
The SMA Treatment Acceleration Act specifically authorizes federal funding in order to:
As of July 12, 2008, there are 18 Senators and 63 Representatives in Congress cosponsoring this legislation.
PLEASE SIGN THIS PETITION TO HELP CURE SPINAL MUSCULAR ATROPHY, THE #1 GENETIC KILLER OF CHILDREN UNDER THE AGE OF 2.
We need your help to move landmark legislation through Congress that will allocate federal resources to non-profit and research organizations focused on finding a treatment and/or cure for SMA.
- SMA is an inherited genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves.
- SMA is the #1 genetic killer of children under the age of 2.
- SMA is estimated to occur in nearly 1 out of every 6,000 births.
- The gene mutation that causes SMA is carried by 1 in every 40 people or nearly 7.5 million Americans.
- There is currently no cure, but the National Institutes of Health (NIH) and the National Institute of Neurological Disorders and Stroke (NINDS) have selected SMA as the disease closest to treatment of more than 600 neurological disorders.
- Researchers estimate that we are as close as only a few years away from finding a treatment and/or cure.
================
My son, G'ovanni David Jula, was born Monday November 5, 2007 and diagnosed with SMA at the age of 4weeks. Tuesday, March 4, 2008, only 17 weeks and 1 day old, G'ovanni passed away. SMA is a degenerative disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, breathing, head and neck control, and even swallowing. G'ovanni had Type 1 SMA, which is the most aggressive, terminal form of the disease. G'ovanni is an amazing boy. He was blessed with an amazing ability to make you smile. Just like other healthy babies, G'ovanni had the spirit and the heart of a fighter however his body failed him. Many other parents will loose their children to this disease before they reach the age of 2.
G'ovanni was just one of thousands of children coping with this devastating disease. An estimated 600 children will be born, in the United States, with SMA this year alone. However hope is within our reach. The National Institute of Health (NIH) and the National Institute of Neurological Disorders and Stroke (NINDS) have selected SMA as the disease closest to treatment of more than 600 neurological disorders. Researchers estimate that we are as close as only a few years away from finding a treatment and/or cure for SMA. However, funding is needed to make that last and crucial leap. THIS WHERE WE NEED YOUR HELP!!!
For the first time, legislation has been proposed in the United States Congress to allocate federal resources to non-profit and research organizations focused solely on finding a treatment and/or cure for SMA. The SMA Treatment Acceleration Act (H.R. 3334/S. 2042) was introduced in the House of Representatives as H.R. 3334 by Rep. Patrick Kennedy (D-RI) and Rep. Eric Cantor (R-VA) and in the Senate as S. 2042 by Sen. Debbie Stabenow (D-MI) and Sen. Johnny Isakson (R-GA) in August 2007 and September 2007, respectively. This legislation is supported by Families of SMA, the SMA Foundation, Fight SMA, and the Muscular Dystrophy Association. The passage of this legislation could change the lives of thousands of children and give them the future they so deserve.
The SMA Treatment Acceleration Act specifically authorizes federal funding in order to:
As stated above, SMA has been selected by the NIH and NINDS as the closest disease to treatment of more than 600 neurological disorders. The SMA Treatment Acceleration Act will initially focus on SMA, however the results and benefits will extend well beyond SMA. While progressing in unlocking a cure for SMA, the progress by researchers and their work will also increase the possiblity of curing other rare and critical conditions. The following diseases and disorders will receive a "collateral benefit" from SMA research:
- Upgrade and unify existing SMA clinical trials sites and establish a national clinical trials network for SMA.
- Establish a Data Coordinating Center to provide expert assistance and advice to SMA clinical trials sites.
- Expand and intensify federally supported research programs with respect to pre-clinical translational research related to SMA.
- Establish a research collaborative at the National Institutes of Health to ensure cooperation across multiple institutes regarding research related to SMA.
- Enhance and provide ongoing support to the existing SMA patient registry in order to provide for expanded research on the epidemiology of SMA.
- Establish an SMA Coordinating Committee, consisting of representatives from relevant government agencies and the public, to coordinate government activities relating to SMA, serve as the principal advisor to agency heads, and conduct a study to identify barriers to the development of drugs for treating SMA and report findings and legislative recommendations to Congress.
- Require the Secretary of Health and Human Services to collaborate with the FDA and the Coordinating Committee to make recommendations for improving and expanding existing industry incentives to promote SMA drug development.
- Establish and implement a program for providing information and education on SMA to health professionals and the general public related to advances in the diagnosis and treatment of SMA and the provision of care to SMA patients.
As you know, legislation like this will only move through Congress with broad support and Members are significantly more likely to co-sponsor and support legislation if their constituents are actively urging them to lobby for support of the bill on their behalf. Thus, to help move this legislation through the process WE NEED YOUR HELP IN SIGNING THIS PETITION to make sure your Senators and district Representatives know that this is an important piece of legislation to cosponsor.
- ALS/Lou Gehrig's Disease
- Alzheimer's Disease
- Parkinson's Disease
- Deafness-Dystonia
- Duchenne Muscular Dystrophy
- Fragile X, Friedreich's ataxia
- Gaucher Disease
- GM2A (AB Variant of GM2 Gangliosidosis)
- Machado-Joseph Disease,
- Menkes Disease
- Metachromatic Leukodystrophy: Late Infantile
- Myotonic Dystrophy
- Neuronal Ceroid Lipofuscinosis (Batten Disease): Infantile, Late Infantile, Classic Late Infantile, and
- Niemann-Pick Disease (NPD)
- Sialidosis and Galactosialidosis
- Spinocerebellar Ataxia Type 1
- Spinocerebellar Ataxia Type 2/Episodic ataxia type 2
- Spinocerebellar ataxia type 6,
- Spinocerebellar Ataxia Type 7 (olivopontocerebellar atrophy with retinal degeneration)
- Tay-Sachs Sandhoff, and X-Linked Andrenoleukodystrophy (ALD)
As of July 12, 2008, there are 18 Senators and 63 Representatives in Congress cosponsoring this legislation.
PLEASE SIGN THIS PETITION TO HELP CURE SPINAL MUSCULAR ATROPHY, THE #1 GENETIC KILLER OF CHILDREN UNDER THE AGE OF 2.
We signed the "Petition To Cure Spinal Muscular Atrophy (SMA)" petition!
# 122:
8:36 am PST, Jan 4,
Anne Rogers, Texas
# 121:
7:15 pm PST, Dec 30,
Jennifer Gardner, Florida
# 120:
12:40 pm PST, Dec 14,
Mary Angelini, Maine
# 119:
10:35 am PST, Dec 11,
Jonathan Rummel, Pennsylvania
# 118:
6:49 am PST, Dec 9,
Chris A, Pennsylvania
# 117:
5:50 am PST, Dec 9,
Amanda Jenkins, Pennsylvania
# 116:
5:46 am PST, Dec 9,
Patricia Jablonowski, Pennsylvania
# 115:
5:36 am PST, Dec 9,
Corey White, Pennsylvania
# 114:
5:02 am PST, Dec 9,
Donna Giammatteo, Pennsylvania
# 113:
5:53 pm PST, Dec 8,
Tara Smith, Pennsylvania
# 112:
4:45 pm PST, Dec 8,
Mandy Jablonowski, Pennsylvania
# 111:
11:14 pm PST, Nov 30,
Heidy Martinez, Florida
My daughter Nuris is 12yrs old and suffer from SMA II. I ask and beg our Congress to approve this legislation so my daughter and all this beatiful angels can have a chance to live a normal life and at the same time give the babies a the oportunity to survive and enjoy life to the fullest even if the parents have to suffer, because we don't want our kids to be taken away from us. I don't care what kind of condition my daughter can have I will always be here for her and will fight for her life. I just hope and keep praying that we can find the cure that we all deseperately need. Let's all fight together and let their voices be heard. God Bless all the the kids and families that are going thru this horrible disease.
My daughter Nuris is 12yrs old and suffer from SMA II. I ask and beg our Congress to approve this legislation so my daughter and all this beatiful angels can have a chance to live a normal life and at the same time give the babies a the oportunity to survive and enjoy life to the fullest even if the parents have to suffer, because we don't want our kids to be taken away from us. I don't care what kind of condition my daughter can have I will always be here for her and will fight for her life. I just hope and keep praying that we can find the cure that we all deseperately need. Let's all fight together and let their voices be heard. God Bless all the the kids and families that are going thru this horrible disease.
# 110:
11:24 am PST, Nov 29,
Name not displayed, Ohio
In memory of Hannah Jean Campbell.
In memory of Hannah Jean Campbell.
# 109:
8:47 pm PST, Nov 28,
Haslinda Harudin, Malaysia
hope someone will find the treatment
hope someone will find the treatment
# 108:
7:44 am PST, Nov 27,
Bobby Nelson, Ohio
Please help find a cure to this horrible disease.
Please help find a cure to this horrible disease.
# 107:
7:16 pm PST, Nov 23,
Donna Taylor, Ohio
I love my daughter, forever 9 months old, Hannah Jean Campbell, SMA Type 1
I love my daughter, forever 9 months old, Hannah Jean Campbell, SMA Type 1
# 106:
3:46 am PST, Nov 23,
Name not displayed, Ohio
HELP ! PLEASE.
HELP ! PLEASE.
# 105:
9:20 am PST, Nov 22,
Laurie Devault, Ohio
I lost my granddaughter to this disorder on 10/18/2008. Please ok the funding needed to cure and prevent this devastating genetic disease. In memory of Hannah Jean Campbell 01/18/2008-10/18/2008.
I lost my granddaughter to this disorder on 10/18/2008. Please ok the funding needed to cure and prevent this devastating genetic disease. In memory of Hannah Jean Campbell 01/18/2008-10/18/2008.
# 104:
8:26 am PST, Nov 22,
Caroline Swaya, Ohio
We need funding to cure and prevent this terrible genetic disorder.
We need funding to cure and prevent this terrible genetic disorder.
# 103:
6:14 am PST, Nov 17,
Name not displayed, Florida
# 102:
4:48 pm PST, Nov 11,
Anna Marie Gies, Florida
Please support research for finding a cure for Spinal Muscular Atrophy. Children like my dear friends newborn daughter, Abigail, shouldn't have to suffer because of a lack of funding. Thank you for your sincere consideration.
Please support research for finding a cure for Spinal Muscular Atrophy. Children like my dear friends newborn daughter, Abigail, shouldn't have to suffer because of a lack of funding. Thank you for your sincere consideration.
# 101:
7:55 am PST, Nov 11,
Name not displayed, Florida
I am of total support!
I am of total support!
# 100:
3:21 pm PST, Nov 10,
CAROL AUBIN, Connecticut
# 99:
9:12 am PST, Nov 10,
Name not displayed, Connecticut
For more impact, add a personal comment here
For more impact, add a personal comment here
# 98:
4:58 am PST, Nov 10,
Loretta Olsen, Rhode Island
# 97:
6:57 pm PST, Nov 9,
Jennifer FitzPatrick, Florida
God Bless all the families!! You are in our prayers.
God Bless all the families!! You are in our prayers.
# 96:
4:23 am PST, Nov 9,
Laura Locke, Rhode Island
Please help!
Please help!
# 95:
6:46 pm PST, Nov 8,
Laura Reardon, Texas
# 94:
4:09 pm PST, Nov 8,
Angela Curran, Rhode Island
# 93:
3:24 pm PST, Nov 8,
Mary Bitanga, Massachusetts
# 92:
6:23 am PST, Nov 8,
Rebecca French, Massachusetts
# 91:
2:21 am PST, Nov 3,
Sandy White, Germany
I have not met this person, nor have I ever met anyone who has been affected by this disease. However, I am not so naive to believe that it will always remain this way. "Only the others.. never me or my surroundings!" If this little signature of mine can help to make a difference, here I go! God bless and hopefully this will help.
I have not met this person, nor have I ever met anyone who has been affected by this disease. However, I am not so naive to believe that it will always remain this way. "Only the others.. never me or my surroundings!" If this little signature of mine can help to make a difference, here I go! God bless and hopefully this will help.
# 90:
2:54 pm PDT, Oct 27,
Robert Corozza, New York
# 89:
11:21 am PDT, Oct 27,
Marea Rodriguez, New York
I hope we find a cure soon.
I hope we find a cure soon.
# 88:
6:04 pm PDT, Oct 26,
Jennifer Corozza, New York
# 87:
8:25 am PDT, Oct 25,
Lynnmarie Rocanelli, Florida
# 86:
7:34 am PDT, Oct 21,
Elizabeth Grimes, New York
# 85:
9:45 am PDT, Oct 20,
Christine Ruggiero, California
# 84:
2:52 pm PDT, Oct 19,
Yolanda Windom, New York
# 83:
5:13 pm PDT, Oct 18,
Daniel McGee, New York
# 82:
5:03 pm PDT, Oct 18,
Name not displayed, New York
# 81:
2:55 pm PDT, Oct 18,
Kimberly Bahr, New York
# 80:
10:20 pm PDT, Oct 15,
Name not displayed, New York
# 79:
1:27 pm PDT, Oct 15,
Deidra Spano, New York
# 78:
11:49 am PDT, Oct 15,
Kenneth Hickey, New York
# 77:
10:53 am PDT, Oct 15,
Name not displayed, New York
God bless all
God bless all
# 76:
5:02 pm PDT, Oct 14,
Deborah Qua, Maine
Let's make an impact on this genetic defect!!!
Let's make an impact on this genetic defect!!!
# 75:
11:17 am PDT, Oct 14,
Kristen Alifano, New York
# 74:
6:11 am PDT, Oct 14,
Lisa M. Borrusso, New York
# 73:
5:17 am PDT, Oct 14,
Veronica Lamontagne, Maine
I can only imagine if this was my child.
I can only imagine if this was my child.
# 72:
7:39 pm PDT, Oct 13,
Kathleen DiLieto, New York
# 71:
5:42 pm PDT, Oct 13,
Bryan Tufts, Maine
# 70:
5:29 pm PDT, Oct 13,
Moira Raynor, New York
# 69:
5:29 pm PDT, Oct 13,
Rosemary Corozza, New York
# 68:
5:11 pm PDT, Oct 13,
Caroline Ceglio, New York
# 67:
1:18 pm PDT, Oct 13,
Erika Kuciw, New York
# 66:
10:56 am PDT, Oct 13,
Alieda Raymond, Maine
# 65:
9:35 am PDT, Oct 13,
Bob Pelletier, Maine
# 64:
8:52 am PDT, Oct 13,
Carolyn Rundquist, New York
# 63:
8:49 am PDT, Oct 13,
Dawn Ludwin, New York
# 62:
8:25 am PDT, Oct 13,
Nicholas Ingrassellino, New York
# 61:
8:14 pm PDT, Oct 12,
Penelope Grover, New York
# 60:
2:30 pm PDT, Oct 12,
Joann Carlino, New York
# 59:
10:47 am PDT, Oct 12,
Ryan Meehan, New York
# 58:
10:38 am PDT, Oct 12,
Corinne Meehan, New York
# 57:
10:32 am PDT, Oct 12,
Carol Meehan, New York
# 56:
10:25 am PDT, Oct 12,
Michael Meehan, New York
# 55:
7:34 am PDT, Oct 12,
Morgan Munoz, New York
For my neice Rachel and all the other families out there affected by SMA, I hope that Congress will do all they can to fund research to find treatments and a cure.
For my neice Rachel and all the other families out there affected by SMA, I hope that Congress will do all they can to fund research to find treatments and a cure.
# 54:
7:26 am PDT, Oct 12,
Laura Capitano, New York
# 53:
5:30 am PDT, Oct 12,
Kelly Cooper, New York
# 52:
4:34 am PDT, Oct 12,
Daniel Corozza, New York
This has recently affected one of my closest friends and his wife and their newborn. We should never allow the beauty and joy of creating life be taken away from us by this terrible condition. I urge Congress to do something to fight back and help.
This has recently affected one of my closest friends and his wife and their newborn. We should never allow the beauty and joy of creating life be taken away from us by this terrible condition. I urge Congress to do something to fight back and help.
# 51:
3:43 am PDT, Oct 12,
Mieke Bernaards, Belgium