PLEASE ENDORSE SB 3087, THE RARE DISEASES ACT OF THE PHILIPPINES
Target:
General Public and Rare Disease Advocates
Sponsored by:
"RARE DISEASE ACT OF THE PHILIPPINES"
Support our petition for the early deliberation and passage of "Rare Disease Act of the Philippines" introduced by Senator Edgardo Angara under Senate Bill 3087 and Congressman Arthur Pingoy, Jr., MD under House Bill 6937
The Bill seeks to establish a system that will help ensure early diagnosis and treatment of rare diseases in the Philippines.
A rare disease, otherwise called an orphan disorder is any health condition resulting from genetic defects that afflict no more than 1 of every 20,000 individuals in the country.
The Bill provides the creation of the Rare Disease Program at the Department of Health. It will ensure:
* Provision for early and sustainable care for patients suffering from
rare disease
* Coordination of current activities of the DOH to provide patients and
their families with better access to medical care, health information,
and health products to treat their conditions
* Support for public education and information campaigns and health
professional training
* Establishment and supervision of a system of research and
development initiatives
* Coordination of resource generation efforts among relevant
government agencies and private sector
The Philippine Society for Orphan Disorders anchors this undertaking on the constitutional right of a person's "Right to Life" and "Right to be provided with proper health care"
PLEASE JOIN THE CAMPAIGN TO INCREASE AWARENESS ON RARE DISEASES AND TO RALLY OUR LAWMAKERS to PASS A "RARE DISEASE ACT OF THE PHILIPPINES"
SUPPORT THE CAMPAIGN BY:
1. Signing on-line, and
2. inviting friends and relatives to sign online
To read full details of the bill and for more information about
the Philippine Society for Orphan Disorders, Inc.
visit www.psod.org.ph
Telefax: 632 725-6519
Email: info@psod.org.ph
Address: 24-D Goldland Plaza 8 Eisenhower St.,
Greenhills, San Juan, Metro Manila, Philippines
Support our petition for the early deliberation and passage of "Rare Disease Act of the Philippines" introduced by Senator Edgardo Angara under Senate Bill 3087 and Congressman Arthur Pingoy, Jr., MD under House Bill 6937
The Bill seeks to establish a system that will help ensure early diagnosis and treatment of rare diseases in the Philippines.
A rare disease, otherwise called an orphan disorder is any health condition resulting from genetic defects that afflict no more than 1 of every 20,000 individuals in the country.
The Bill provides the creation of the Rare Disease Program at the Department of Health. It will ensure:
* Provision for early and sustainable care for patients suffering from
rare disease
* Coordination of current activities of the DOH to provide patients and
their families with better access to medical care, health information,
and health products to treat their conditions
* Support for public education and information campaigns and health
professional training
* Establishment and supervision of a system of research and
development initiatives
* Coordination of resource generation efforts among relevant
government agencies and private sector
The Philippine Society for Orphan Disorders anchors this undertaking on the constitutional right of a person's "Right to Life" and "Right to be provided with proper health care"
PLEASE JOIN THE CAMPAIGN TO INCREASE AWARENESS ON RARE DISEASES AND TO RALLY OUR LAWMAKERS to PASS A "RARE DISEASE ACT OF THE PHILIPPINES"
SUPPORT THE CAMPAIGN BY:
1. Signing on-line, and
2. inviting friends and relatives to sign online
To read full details of the bill and for more information about
the Philippine Society for Orphan Disorders, Inc.
visit www.psod.org.ph
Telefax: 632 725-6519
Email: info@psod.org.ph
Address: 24-D Goldland Plaza 8 Eisenhower St.,
Greenhills, San Juan, Metro Manila, Philippines
"RARE DISEASE ACT OF THE PHILIPPINES"
Support our petition for the early deliberation and passage of "Rare Disease Act of the Philippines" introduced by Senator Edgardo Angara under Senate Bill 3087 and Congressman Arthur Pingoy, Jr., MD under House Bill 6937
The Bill seeks to establish a system that will help ensure early diagnosis and treatment of rare diseases in the Philippines.
A rare disease, otherwise called an orphan disorder is any health condition resulting from genetic defects that afflict no more than 1 of every 20,000 individuals in the country.
The Bill provides the creation of the Rare Disease Program at the Department of Health. It will ensure:
* Provision for early and sustainable care for patients suffering from
rare disease
* Coordination of current activities of the DOH to provide patients and
their families with better access to medical care, health information,
and health products to treat their conditions
* Support for public education and information campaigns and health
professional training
* Establishment and supervision of a system of research and
development initiatives
* Coordination of resource generation efforts among relevant
government agencies and private sector
The Philippine Society for Orphan Disorders anchors this undertaking on the constitutional right of a person's "Right to Life" and "Right to be provided with proper health care"
PLEASE JOIN THE CAMPAIGN TO INCREASE AWARENESS ON RARE DISEASES AND TO RALLY OUR LAWMAKERS to PASS A "RARE DISEASE ACT OF THE PHILIPPINES"
SUPPORT THE CAMPAIGN BY:
1. Signing on-line, and
2. inviting friends and relatives to sign online
To read full details of the bill and for more information about
the Philippine Society for Orphan Disorders, Inc.
visit www.psod.org.ph
Telefax: 632 725-6519
Email: info@psod.org.ph
Address: 24-D Goldland Plaza 8 Eisenhower St.,
Greenhills, San Juan, Metro Manila, Philippines
Support our petition for the early deliberation and passage of "Rare Disease Act of the Philippines" introduced by Senator Edgardo Angara under Senate Bill 3087 and Congressman Arthur Pingoy, Jr., MD under House Bill 6937
The Bill seeks to establish a system that will help ensure early diagnosis and treatment of rare diseases in the Philippines.
A rare disease, otherwise called an orphan disorder is any health condition resulting from genetic defects that afflict no more than 1 of every 20,000 individuals in the country.
The Bill provides the creation of the Rare Disease Program at the Department of Health. It will ensure:
* Provision for early and sustainable care for patients suffering from
rare disease
* Coordination of current activities of the DOH to provide patients and
their families with better access to medical care, health information,
and health products to treat their conditions
* Support for public education and information campaigns and health
professional training
* Establishment and supervision of a system of research and
development initiatives
* Coordination of resource generation efforts among relevant
government agencies and private sector
The Philippine Society for Orphan Disorders anchors this undertaking on the constitutional right of a person's "Right to Life" and "Right to be provided with proper health care"
PLEASE JOIN THE CAMPAIGN TO INCREASE AWARENESS ON RARE DISEASES AND TO RALLY OUR LAWMAKERS to PASS A "RARE DISEASE ACT OF THE PHILIPPINES"
SUPPORT THE CAMPAIGN BY:
1. Signing on-line, and
2. inviting friends and relatives to sign online
To read full details of the bill and for more information about
the Philippine Society for Orphan Disorders, Inc.
visit www.psod.org.ph
Telefax: 632 725-6519
Email: info@psod.org.ph
Address: 24-D Goldland Plaza 8 Eisenhower St.,
Greenhills, San Juan, Metro Manila, Philippines
We signed the "PLEASE ENDORSE SB 3087, THE RARE DISEASES ACT OF THE PHILIPPINES" petition!
# 193:
2:55 am PST, Dec 24,
Rynple Boy Hernandez, Philippines
this is the BEST Gift that we can give to these innocent children. God bless to all.
this is the BEST Gift that we can give to these innocent children. God bless to all.
# 192:
6:19 pm PST, Dec 22,
Janet Tolete, Philippines
Happy Holidays! Here's a little act of support for people (usually children) with rare diseases. Please sign up.
Happy Holidays! Here's a little act of support for people (usually children) with rare diseases. Please sign up.
# 190:
7:58 pm PST, Dec 14,
Ariel Azucena, Philippines
# 189:
5:03 pm PST, Dec 12,
Gian Karlo Andrade, Philippines
# 188:
3:18 am PST, Dec 7,
Maria Christine Ortillo, Philippines
# 187:
8:09 pm PST, Dec 1,
Eusatquio II Abay, Kansas
# 186:
6:46 pm PST, Dec 1,
Lilet Lim, Philippines
# 185:
5:57 pm PST, Dec 1,
Mira bella m. Sioson, California
# 184:
10:03 am PST, Dec 1,
Joanna Carpio, California
# 183:
1:01 am PST, Dec 1,
Denise Aguado, Philippines
# 182:
7:39 pm PST, Nov 30,
Gregorio D. Mercado, Philippines
# 181:
7:35 pm PST, Nov 30,
Leony Osuna, Philippines
# 180:
5:19 pm PST, Nov 30,
Bety Centeno, Philippines
Let us all support the RARE DISEASES ACT OF THE PHILIPPINES, who knows one of your love ones can be affected...... even if not, the others need our support!!!
Let us all support the RARE DISEASES ACT OF THE PHILIPPINES, who knows one of your love ones can be affected...... even if not, the others need our support!!!
# 179:
3:21 pm PST, Nov 30,
Name not displayed, New York
# 178:
2:12 am PST, Nov 30,
Perry Gil Mallari, Philippines
# 177:
10:48 pm PST, Nov 29,
Name not displayed, Philippines
# 176:
5:30 am PST, Nov 28,
Roy Ryan B. Ruiz, Philippines
# 175:
11:46 pm PST, Nov 23,
Rosalie Bernardo, Philippines
Dear rare disease patients, for more info about Philippine Society for Orphan Disorders and our advocacy, please email us at info@psod.org.ph or call (6-32) 725-6519
Dear rare disease patients, for more info about Philippine Society for Orphan Disorders and our advocacy, please email us at info@psod.org.ph or call (6-32) 725-6519
# 174:
1:55 am PST, Nov 16,
Name not displayed, Philippines
I wholeheartedly supports this bill.because i have a child who is diagnosed with a rare disease which is dandy walker symptom.i as a mother who has a child with rare disease,knows the hardships that we could go through.
I wholeheartedly supports this bill.because i have a child who is diagnosed with a rare disease which is dandy walker symptom.i as a mother who has a child with rare disease,knows the hardships that we could go through.
# 173:
12:16 am PST, Nov 15,
Katrina Marie Francisco-Lao, Philippines
# 172:
10:39 am PST, Nov 13,
Josephine Bayan, Philippines
# 171:
3:43 pm PST, Nov 11,
Stella Dearing, Philippines
# 170:
7:00 am PST, Nov 10,
Rogelio Jr. Lee, Philippines
Please pass this bill, my baby needs the governments help, ubos na pera namin wala na ako ibang malapitan, my baby is showing all the signs of pompe disease, and the blood samples will be ship to taiwan.
Please pass this bill, my baby needs the governments help, ubos na pera namin wala na ako ibang malapitan, my baby is showing all the signs of pompe disease, and the blood samples will be ship to taiwan.
# 169:
12:21 pm PST, Nov 6,
Edy Neil Camalongay, Philippines
# 168:
6:31 pm PDT, Oct 31,
Maureen Sarmenta, Philippines
# 167:
10:08 am PDT, Oct 30,
Kriselda Dela Vega, Philippines
# 166:
8:44 pm PDT, Oct 29,
Rommel Hinlo, Philippines
# 165:
4:19 am PDT, Oct 29,
Abba Azucena, Philippines
I support senate bill 3087
I support senate bill 3087
# 164:
10:56 pm PDT, Oct 27,
Bernadette Solis, Philippines
# 163:
6:02 am PDT, Oct 27,
Bea Millicent Hao, Philippines
# 162:
6:18 am PDT, Oct 26,
Alex Flores, Philippines
# 161:
7:04 am PDT, Oct 25,
Carmela Regala, Philippines
# 160:
7:10 am PDT, Oct 24,
Christine Mac Yee, Philippines
# 159:
1:35 am PDT, Oct 20,
Can Atik, Turkey
# 158:
6:23 pm PDT, Oct 18,
Ben-John Cabigas, Philippines
# 157:
5:26 pm PDT, Oct 18,
Maita Nolledo, Philippines
# 156:
3:45 pm PDT, Oct 18,
Baby Abad, Philippines
# 155:
9:00 am PDT, Oct 18,
Nikki Salvador, Philippines
# 154:
7:51 am PDT, Oct 18,
Jorge Bocobo, Philippines
# 153:
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2:17 am PDT, Oct 16,
Adrian Legarte, Philippines
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# 152:
4:29 am PDT, Oct 15,
Louise Taylor, France
This bill would do much to provide care for rare disease patients and their families in the Philippines.
This bill would do much to provide care for rare disease patients and their families in the Philippines.
# 151:
2:36 am PDT, Oct 15,
Jeffry Acaba, Philippines
