FIBROMYALGIA IS REAL. WE NEED A CURE NOW.

  • by: Diane Hill
  • recipient: Boris Johnson The Prime Minister, Sajid Javid MP Secretary of State for Health and social care, Justin Tomlinson MP, Minister for Disabled People.

Please sign this petition to help raise awareness of the condition known as fibromyalgia.

Fibromyalgia is a complex condition that's difficult to understand, especially if you don't have a medical degree. Because it involves the brain and nervous system, it can have an impact on virtually every part of the body.

We need the government and the health department to recognise this illness for what it is, a debilitating life-changing illness for which there is no cure. Every day, people who suffer from fibromyalgia endure chronic, widespread pain. It feels like a flu that never goes away. And there is no help on the way.

I have been living with this illness for many years. I often wish that I could have my life back, but there is no cure for this condition. They say that all they can do is try to relieve the pain, to make my life tolerable. I have tried many different medications and none of them have helped.

All I want is to make sure that someday there will be a cure to relieve this constant pain that so many people suffer from.

I have started a campaign, not just for myself, but for the millions of fibromyalgia sufferers out there. We get a really raw deal: the medical world and the government have basically turned their backs on us. We have to fight for every bit of help we get, whether that is medical or financial.

We need to get 100,000 signatures, before this petition will be eligible for debate in the House of Commons. Fibromyalgia research is underfunded. Our aim is to bring this to the attention of the government and demand more funding for a cure. And while we are waiting for a cure to be found, we need more awareness, so that our family and friends can understand what we are going through each day. Doctors need more training, as some know nothing about this condition. And the people that assess us for welfare benefits should be up to date on the information about fibromyalgia, and how it affects our lives, they should know that everyday is a struggle to survive, as we cannot do the everyday things that everyone else takes for granted, such as taking a shower, dressing, making a cup of tea, or even reading a newspaper. Please help us.

Update #35 years ago
fibromyalgia is a debilitating, long term condition.The exact cause is unknown. the diagnosis of fibro is difficult, as the symptoms can cover a variety of other conditions. Sufferers often go a long time not knowing what is wrong with them. The effects of fibro are as severe as other conditions which are recognised as disabilities. We need to raise the profile of this dreadful condition so that sufferers are shown more understanding. Ask your family, friends & Neighbour's to please sign.
Update #28 years ago

To date 65,632 of you have taken the time to sign and I want to thank everyone who has supported and championed this cause. This is an amazing achievement, but it is just the beginning of our fight for awareness, support and the funding for the first steps towards finding the cure that we all hope and pray for.
As we all know, Fibro affects the whole family, so I encourage everyone to ask their family, friends, and neighbours to sign. To help us reach our goal of 100,000.
Update #19 years ago
I thank you all for supporting my petition.

I have worked so hard to voice my concerns for you all and hope the Government will listen.
I will continue to support this, I ask you all to do the same so please share as far and wide as you can. Facebook Twitter not just one, but once a day. We are all waiting and hoping for the same thing
A CURE.


Thank you and my best wishes to you all.
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