Cure Duchenne muscular dystrophy

  • By: Lauren Senior
  • Target: The Care2 Community (and their families and friends! :))

Duchenne Muscular Dystrophy is 100% fatal. There is no cure. Children are losing the ability to walk, eat, draw, play, hug and breathe every day.

DMD is the most common fatal genetic disorder of childhood, but despite that it is not well known and so charities for research into Duchenne dare largely neglected when it comes to both awareness and donations.

Please sign this vital petition for sufferers of Duchenne, thank you!

www.change.org/p/uk-government-to-ensure-everyone-living-with-duchenne-and-becker-muscular-dystrophy-has-access-to-comprehensive-multidisciplinary-specialist-teams




This playlist has some wonderful videos about DMD:

https://www.youtube.com/watch?v=v6evNhpMIEQ&list=PLIVnkXmUlgpTdTQP2c1EcXgDNYDWPjwcJ&index=1
The 10th video is 32 seconds long for those who are interested, but would rather not watch the longer 3-5 minute videos, but I do like the second one (I guess because I'm a big sister too! :D)

Really great article by a father whose two sons have the disease:
http://www.theguardian.com/lifeandstyle/2014/aug/16/our-beautiful-sons-could-die-before-us

For more information and a couple more petitions about DMD and disability, please see:

http://cureduchenne.tumblr.com


If you would like to donate, Duchenne Now are a zero cost charity, so 100% of your donation goes straight to fund research for a treatment or cure!
www.duchennenow.org

Though I would advise donating here, as JustGiving take a cut of every donation:
https://mydonate.bt.com/charities/duchennenow


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