It would seem that Only the very rich are able to receive this medicine, it should be a human right that if people want to get medicine they can. All too often the African people are pushed aside because of money ruling these big conglomarates there is no integrity about human life they develop thes drugs for ther own pockets .Alexion the makers of soliris which can help the control the attack of PNH will not allow South African pharmacies and doctors to bring it into the country to treat patients They are a multi million dollar company.
Without it my niece who is 27 cannot fight the onslaught of this disease which has ravaged her liver and her brain she has already undergone a liver translplant a brain bleed and brain surgery followed by a huge stroke after which she was in a vegetative coma for a month was recently diagonosed with PnH ,it is A very rare blood disease which can be controlled by the drug soliris . She is on blood thinners but these thinners and the doctors can not hold back the effects of this killer disease which breaks down your red blood cells and causes serious thrombosis .
She has survived all of the above miraculously with very little brain damage, her right side has been effected but is slowly coming back .she walks unaided and can write use a computer talk remember rationalize which the doctors all said would be impossible. But Akexion for whatever reason is blocking the drug coming into the country .
Alexandra is such a determined young women and deserves to be given a chance she wants to live she has gone back to work three mornings a week she is a graphic designer. Please do the humane thing and release the drug to her and to others who will need it.
