End the Dr's and Hospital's from calling ACUTE INTERMITTENT Porphyria ( AIP) AS DRUG SEEKERS.

    Porphyria Patient's in Missouri are being neglected, by Dr's, Hospital's, Insurance Companies, and Medication. What needs to happen is, Help with Hospital's with insurance claims, when your insurance will not cover you, because it is Rare. The Acute Porphyria Foundation in Texas headed by Desiree Lyons and myself can explain the needs that we need to have to be healthy. We need Emotional Support Dog's, that Apartments and Housing if you rent will not permit us to have one of its over a certain amount of weight. We need Free Medical Alert bracelets, we can go into a coma ,just Yen an attack, the pain we deal with on a regular basis is overwhelming, Hospital's will not carry Heme to give us, that is needed, our other drugs for the Different types of Porphyria.
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