Save Lives. Ask legistlatures to improve patient access to experimental drugs HR909
- by: Taylor Stein
- recipient: If you or someone you love is one of the 30 million suffering from a rare disease
1 in 10 people suffer from a rare disease, that’s 30 million people and 7000+ rare diseases.
People are dying while medications exist that can save their lives.
It can take more than 15 years for a drug to go through development and FDA approval, but patients don’t have years to wait.
95% of rare diseases have no FDA-approved treatments, access to experimental drugs is often a patient’s only option.
The Compassionate Use Reform & Enhancement Act (CURE ACT) provides guidance for companies to establish public expanded access policies and creates a task force to explore how to improve patient access to experimental therapies.
Rare diseases are often terminal, doing nothing is a greater risk of death than an experimental treatment.
Please sign the petition and give us hope
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