Have you got health problems? We are all at risk. Diseases are increasingly being redefined by non-experts while experts are being ignored. Is this sensible?
How would you feel if your disease or condition were being redefined by non-experts in the field? I and many others abhor this practice. What's behind it? Money! Health insurance companies and others hope to bury some diseases.
Already Gulf War Syndrome has been redefined and renamed Chronic Multi-Symptom Illness, upsetting many veterans with also treatment recommendations being made by non-experts. Now a committee comprised mostly of non-experts in ME/CFS has been charged with redefining this disease, despite a consensus among ME/CFS experts seeking instead to adopt the Canadian Consensus Criteria.
What disease or condition is going to be redefined by non-experts next? Could it be one that afflicts your family or loved one?
Diseases should always be defined by experts in the disease and never by non-experts. If you agree, please sign this petition!
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more info https://dl.dropboxusercontent.com/u/89158245/Case Definition Letter Sept 23 2013.pdf
