Ask FDA to serve & help Charcot-Marie-Tooth (CMT) patients

The U.S. Food and Drug Administration's job is to protect the safety of patients and approve innovative medicines and medical devices for patients. CMT affects millions of people in need of treatments.

We are asking the FDA to create a council of CMT patients, caregivers, and 
healthcare professionals who can help the FDA assess new information and assimilate diverse opinions to help in our efforts to find treatments for CMT.

This
petition is sponsored by the Hereditary Neuropathy Foundation, a group of concerned patients, caregivers, and doctors not genetic testing or drug industry.

 

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