- Signatures: 564
- Goal: 1,000
- Deadline: 12-7-2008
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Imagine becoming out of breath talking on the phone. Imagine yourself no longer able to walk at a leisurely pace without getting winded. Imagine considering climbing the stairs to the second floor of your home to go to bed for the evening as large a task as a marathon! These are just a few examples of what the lives are like of those diagnosed with Pulmonary Fibrosis (PF). Therefore, the purpose of this petition is to request your support to help increase public awareness the disease known as Pulmonary Fibrosis, to aide funding research of this disease, with the ultimate goal being to find a cure.
| Number | Date | Name | Would you like more information on advocacy for pulmonary fibrosis? |
|---|---|---|---|
| 564 | 11:14 am PST, Nov 21 | Susan Eley | yes |
| 563 | 9:28 am PST, Nov 21 | Anonymous | Yes |
| 562 | 7:40 am PST, Nov 19 | ELLEN R. GALLAWAY | |
| 560 | 6:51 am PST, Nov 17 | Lisa Prins | |
| 559 | 6:32 am PST, Nov 17 | Trynda Bates | |
| 558 | 8:29 am PST, Nov 16 | Shasnnon Bates | My Daddy was diagnosed with IPF 1 yr 6 months ago. The disease has progressed so rapidly. He is the type of person that never sit's still. Now he is on Oxygen and all sorts of medicines.He has always been in good health,but they say he is too old for a lung transplant, he is only 68. I had never heard about this disease,but I find myself reading about it every spare chance I get only to keep finding out there is nothing that can be done for him. The doctors give him medicines to try and help him cope and breathe easier that's all they can do. I believe people should be more aware of this disease. |
| 557 | 7:03 am PST, Nov 12 | Alina Maria Fuentes | Yes!!! |
| 556 | 7:46 pm PST, Nov 10 | Derek Norton | |
| 555 | 7:07 pm PST, Nov 10 | Shalini Jhagru | |
| 554 | 5:27 pm PST, Nov 10 | S. Blair | Watching my brother-in-law die with this disease was so sad. It's such a slow sad death. |
| 553 | 4:27 pm PST, Nov 10 | Charles Twitty | I watched my father in law suffer a slow decline over a couple of years with this disease. It's a death sentence and yet most people don't know a thing about it. That should change and I hope this will help. |
| 552 | 2:29 pm PST, Nov 10 | C. Ahmad | |
| 551 | 1:53 pm PST, Nov 10 | Terri Suwwan | For Daddy, who broke our hearts with his suffering and whose life was cut short by pulmonary fibrosis on November 5, 2005. |
| 550 | 1:47 pm PST, Nov 10 | Jennifer Twitty | I also lost my dad to PF. I had heard of it, but had no idea that just hearing "You have Pulmonary Fibrosis" is a death sentence. I would pray that no one else would die this way - suffocating, scared, and unable to communicate in any way at the end. |
| 549 | 12:27 pm PST, Nov 10 | Anonymous | |
| 548 | 11:18 am PST, Nov 10 | Cynthia Mehling | Yes. I lost my father, Gary Mehling, on Nov. 5, 2005 after watching him struggle with this disease which he was diagnosed with after being treated with the drug amiodarone. There is so little awareness about this illness - the causes, lack of treatment and the severity of the symptoms as it progresses. I had never heard of it until my father was diagnosed with it, and was amazed at how many lives it takes each year. |
| 547 | 10:44 am PST, Nov 10 | Kimberly Norton | Yes. My father died of this horrible disease on November 5, 2005. Not to take anything away from breast cancer, but everywhere I go, I see piles of pink items in support of breast cancer research. This disease deserves some funding too. |
| 546 | 6:21 pm PST, Nov 9 | Jamie Scott | |
| 545 | 10:15 am PDT, Oct 9 | GINA WARE | In memory of Amazing Grace my mother and bestfriend,who I watched over 5 years slowly suffocate from this disease. There is no reason why the American public should remain uneducated about this disease Early detection is vital in battleing this disease. |
| 544 | 6:04 am PDT, Sep 29 | Joan Barnard | for my dad as he continues to suffer with this horrible illness ... |
| 543 | 7:03 am PDT, Sep 27 | Tina Nostro | |
| 542 | 6:34 pm PDT, Sep 23 | Nancy Douglass | yes I am only 54 and diagnosised last year, shortness of breathing impacts my life daily. There must be public education for this disease to reach for a cure! |
| 541 | 7:24 pm PDT, Sep 20 | Anonymous | Yes |
| 540 | 9:51 pm PDT, Sep 7 | Anonymous | |
| 539 | 11:50 pm PDT, Sep 3 | Jayne Riley | Please put money into researching this illness. |
| 538 | 6:11 pm PDT, Sep 2 | Kristyn Wright Beschman | My father was diagnosed in March. Already in end stages. More needs to be done |
| 537 | 9:39 pm PDT, Aug 28 | Nielene Heller | I watched my father slowly die from pulmonary fibrosis and it was a terrible thing to experience. It's a horrible way to die. |
| 536 | 8:55 am PDT, Aug 8 | FION YEE | |
| 535 | 8:33 pm PDT, Jul 19 | Tambi Spirk | Yes |
| 534 | 1:10 pm PDT, May 30 | Anonymous | |
| 533 | 10:14 pm PDT, May 24 | Anonymous | |
| 532 | 10:47 pm PDT, May 13 | Anonymous | |
| 531 | 8:25 am PDT, May 13 | MaryJane Coign | I have seen dear friends struggle unable to breath for years. There has got to be something we can do to help. |
| 530 | 12:58 am PDT, May 13 | elsa ilagan | |
| 529 | 7:27 pm PDT, May 12 | Nidra Kumaradas | |
| 528 | 5:01 pm PDT, May 12 | Judy Huff | |
| 527 | 12:57 pm PDT, May 12 | Anonymous | Yes |
| 526 | 11:23 am PDT, Apr 29 | Steve Lindsay | |
| 525 | 7:38 am PDT, Apr 20 | Susan Lambui | |
| 524 | 10:03 pm PDT, Apr 18 | Jan Orndorff | We have had the only support group in the state of Texas for the last five years. Last year we incorporated and became a non profit, 501(c)(3)named the Pulmonary Fibrosis Association of Texas, Inc. so that we can raise funds to assist patients in need, as funds become available through fund raisers and donations as well as contribute to Research efforts and promoto awareness too. I have been diagnosed for six years now. |
| 523 | 6:29 pm PDT, Apr 4 | Lori Freese | Yes |
| 522 | 1:21 pm PDT, Apr 1 | hope gaethe | |
| 521 | 6:29 pm PDT, Mar 30 | jaime tabora | |
| 520 | 3:13 pm PDT, Mar 30 | D Soignier | In memory of Tommy LaGrange who increased my awareness of this terrible disease. |
| 519 | 11:46 pm PDT, Mar 29 | jc chiappini | for a friend. |
| 518 | 12:20 pm PDT, Mar 29 | Wanda Murray | |
| 517 | 11:11 am PDT, Mar 29 | tara cutter | We lost a friend due to this horrible disease, our thoughts and prayers are with Ruth and Danny, Tara and Taylor |
| 516 | 9:32 am PDT, Mar 29 | Jackie Hellmers | In memory of Tommy Lagrange |
| 515 | 7:33 am PDT, Mar 29 | Cherie Moghis | |
| 514 | 9:12 pm PDT, Mar 28 | Julie Manshel | |
| 513 | 8:37 pm PDT, Mar 28 | Ruth LaGrange | My husband died in January '08 of IPF. He had this disease for 4 years and we lived every day knowing there's no cure and no helpful treatment. Just as many people die from breast cancer each year as from IPF. Where's the treatments or cures for IPF?????? |
| 512 | 4:59 pm PDT, Mar 27 | Angela Blann | Recently lost my Dad to this horrible disease. He was diagnosed in Oct 07 and died on Dec 13 2007. |
| 511 | 7:42 pm PDT, Mar 25 | Kathleen Azzopardi | Yes. My dad and uncle both past away from this terrible disease... |
| 510 | 8:33 am PDT, Mar 24 | Keith Bauer | Yes. My mother has been diagnosed at the end of 2007. We pray and hope for a cure for this debilitating disease. she is currently on a donor transplant list for a single lung. |
| 509 | 7:05 am PDT, Mar 22 | Jerry Mazzola | |
| 508 | 11:50 am PDT, Mar 20 | Sally Shelton | |
| 507 | 11:51 pm PDT, Mar 16 | Shannon Sultan | |
| 506 | 7:25 pm PDT, Mar 16 | Angie Thrasher | My mother was misdiagnosed in 2001 as having Asthma. Once the doctors discovered in March of 2006 that she actually had pf we had lost precious time and the disease had really advanced. She made it to #1 on the transplant list, but passed away Dec. 6, 2006 before lungs could be found. Awareness and research of this disease is a must! |
| 505 | 6:09 pm PDT, Mar 14 | Anonymous | |
| 504 | 11:24 am PDT, Mar 14 | Patricia Crim | |
| 503 | 6:45 am PDT, Mar 14 | Diana Jepson | Yes. My father is suffering with this disease. |
| 502 | 5:40 am PDT, Mar 14 | Anonymous | |
| 501 | 10:00 pm PDT, Mar 13 | Mary C. Bain | Yes |
Slow Suffocation: Increasing Public Awareness of Pulmonary Fibrosis
PULMONARY FIBROSIS - an illness that currently affects more than 200,000 people in the United States. Approximately 40,000 of our citizens die from it each year: This is the same amount as those who die from breast cancer. It is more than those who die from ovarian or prostate cancer; it is forty times more that those who die from Cystic Fibrosis.
At this time there is no cure for Pulmonary Fibrosis and death usually occurs 2-4 years after diagnosis. The cause of death is usually respiratory failure as a result of increased scarring of the air sacs in the lungs, interfering with the person's ability to transfer oxygen to the bloodstream. The age of onset for the disease is between 40 and 70, although in recent years, individuals of a younger age have been affected.
Your signatures will be sent to our Senators and Representatives to lobby for several changes and increases, starting with requests for them to vote to increase the budget of the National Institute of Health. In the past monies allocated to the NIH have resulted in biomedical breakthroughs that have more than repaid our investments in this institute.
They will also be asked to write a letter to the National Institute of Health asking them to increase their funding for research in lung diseases. Lung disease is currently the third leading cause of death in the United States. While the rate of deaths for heart disease and cancer (numbers 1 and 2) have been decreasing, the mortality rate for lung disease has been on the rise.
We will also be requesting a letter be sent to the Director of the National Heart Lung and Blood Institute asking that they increase funding for research on Pulmonary Fibrosis. Pulmonary Fibrosis is currently the most under-funded of all the lung diseases.
Further, a letter to the Center for Disease Control asking that they put out a position paper on Pulmonary Fibrosis will be requested. Pulmonary Fibrosis is frequently misdiagnosed as Asthma, Emphysema or one of the various strains of Pneumonias. Most Internists and many Pulmonologists are unfamiliar with the disease and are unable to either diagnose or effectively treat the illness. Early diagnosis and treatment significantly increases the life expectancy of the victims of this disease.
At this time there is no cure for Pulmonary Fibrosis and death usually occurs 2-4 years after diagnosis. The cause of death is usually respiratory failure as a result of increased scarring of the air sacs in the lungs, interfering with the person's ability to transfer oxygen to the bloodstream. The age of onset for the disease is between 40 and 70, although in recent years, individuals of a younger age have been affected.
Your signatures will be sent to our Senators and Representatives to lobby for several changes and increases, starting with requests for them to vote to increase the budget of the National Institute of Health. In the past monies allocated to the NIH have resulted in biomedical breakthroughs that have more than repaid our investments in this institute.
They will also be asked to write a letter to the National Institute of Health asking them to increase their funding for research in lung diseases. Lung disease is currently the third leading cause of death in the United States. While the rate of deaths for heart disease and cancer (numbers 1 and 2) have been decreasing, the mortality rate for lung disease has been on the rise.
We will also be requesting a letter be sent to the Director of the National Heart Lung and Blood Institute asking that they increase funding for research on Pulmonary Fibrosis. Pulmonary Fibrosis is currently the most under-funded of all the lung diseases.
Further, a letter to the Center for Disease Control asking that they put out a position paper on Pulmonary Fibrosis will be requested. Pulmonary Fibrosis is frequently misdiagnosed as Asthma, Emphysema or one of the various strains of Pneumonias. Most Internists and many Pulmonologists are unfamiliar with the disease and are unable to either diagnose or effectively treat the illness. Early diagnosis and treatment significantly increases the life expectancy of the victims of this disease.
Note: This Slow Suffocation: Increasing Public Awareness of Pulmonary Fibrosis petition was submitted by Christine Nylin. ThePetitionSite.com is a free service provided to help concerned citizens rally support for issues they believe in. The opinions expressed by this petition do not necessarily reflect the views and opinions of ThePetitionSite.com or Care2.com. There is no express or implied endorsement of this petition nor any newsletter offers (except those from Care2.com) by Care2.com, Inc, ThePetitionSite.com, or our sponsors. If you believe this system is being abused, please contact customer support.
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