Don't Abandon Teen With Rare Disease!
- by: Care2.com
- recipient: Ontario Health Minister Deb Matthews
Brooklyn Mills used to be a normal 16-year-old girl. As a cheerleader at her high school she was very active, engaging in vigorous workouts every day. But symptoms of extreme back pain led her to find that she had Ehlers-Danlos Syndrome (EDS), a very rare and painful genetic disorder.
The pain Brooklyn experiences stems from her body literally falling apart. The collagen in her joints is weak, causing symptoms like loss of eyesight and the ability to walk. Unfortunately, there are no doctors in Ontario, Brooklyn's hometown that have the knowledge to treat this horrible disease.
Now 18 years old, Brooklyn has received some relief from her painful symptoms due to treatment outside of the country, but the bills continue to pile up as OHIP refuses to cover them. Brooklyn and her family need this coverage to help Brooklyn have any chance at living a normal life. Urge the Ontario health minister to cover Brooklyn's medical care for EDS.
Dear OHIP official,
Brooklyn Mills has a very rare degenerative disease called Ehlers-Danlos Syndrome (EDS). It causes weakness in the collagen of the bones, prompting the body to literally fall apart. Brooklyn has been suffering from this horrible disease for two years because there are no doctors in Ontario that can treat her.
It is unfair for you to refuse to cover Brooklyn's medical expenses. Brooklyn's treatment is urgent and her situation dire. It is a matter of life and death and waiting to treat her is detrimental to her health.
(Your Comments Here)
Brooklyn has been forced to find treatment elsewhere and her hospital bills continue to add up due to lack of coverage. I urge you to review Brooklyn Mills' case immediately and award her coverage of the EDS disease.
