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deadline: 4-1-2009
goal: 5,000
 

Share Your Health Care Experience With Us

Sponsored by: Consumers Union

In many ways, the American health care system is broken. But in order to understand how to fix it, we need to know where those breaks are.  

Have you experienced the high cost of health care, the complexity of health insurance, or a problem with your care itself? We want to hear your personal experience!

Did you pay too much for too little? Did the coverage fall short? Do you wonder if you'll be able to afford it all in the future?

Your story will help us understand the health care system better and help us promote common sense solutions to your real problems.  

Your story:
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We Want Common Sense Solutions to Health Care!
# 3,855:
11:55 pm PDT, Mar 29, Pearl Gilman, Washington
# 3,854:
8:57 pm PDT, Mar 27, Michael Griffin, Tennessee
# 3,853:
1:27 pm PDT, Mar 19, Leah Lefler, Virginia
I went into the ER with vomiting and diarrhea and they charged me over $13,000. I have no insurance so they took off $2,000 which is obviously bittersweet. I am disabled and can't work, how am I supposed to pay that????
# 3,852:
12:06 pm PDT, Mar 19, Christina Maniaci, Ohio
My husband is disabled and diabetic. My 17-yr old daughter lives with us. Our only income is his social security, which is about $750 a month. While my child and I are eligible to receive medical coverage through the state, my husband is not. The state required that he pay a "spend-down" of $135 a month to obtain a medical card. We cannot afford that nor can we afford test strips and lancets for him to check his sugar level. We can barely swing the $4 per prescription for his diabetic medicines. He has had to go to the emergency room twice in the past 3 months for his sugar levels being over 600 ~ more bills we won't be able to pay.
# 3,851:
6:30 am PDT, Mar 9, Shersti Edwards, Texas
I moved states and started a new job; there I was told I would not have insurance for roughly 60 days after starting. However, soon after I found out I was pregnant, and was delighted except for the fact I didn’t have insurance yet. Unfortunately, only a few weeks later, I started miscarrying my baby, so I went to the ER. After 7.5 hours, and having one of the worst experiences ever with a hospital, I ended up with over $2,000.00 in medical bills. If I had insurance sooner I could have gone to the doctor as soon as I found out I was pregnant and even if I couldn’t prevent the miscarriage, I wouldn’t have such a high medical bill from the ER.
# 3,850:
9:15 pm PST, Feb 27, Carol A. Weiner, California
I have used up all my savings paying for my HMO which I thought was necessary so I wouldn't lose my house...mow I might lose it because of being broke and no savings to fall back on.
# 3,849:
3:50 pm PST, Feb 23, Kirk Barrett, United Kingdom
..
# 3,848:
10:01 am PST, Feb 21, Sarah Baker, Illinois
My insurance stopped paying for a doctor that wanted to see me a minimum of 2 times a week. I now $2500 that's not in my budget.
# 3,847:
12:24 am PST, Feb 19, Lynda Harding, United Kingdom
# 3,846:
11:12 am PST, Feb 16, Agostina Giobio, Florida
# 3,845:
4:38 pm PST, Feb 12, Paul Sanko, Pennsylvania
Employers are having to cut back on Health, Dental and Vision Insurance due to the economy. If there were a National Healthcare System everyone would be covered from birth and these problems and many oth Healthcare issues would disappear.
# 3,844:
1:17 pm PST, Feb 11, Leslie Blanchard, Texas
# 3,843:
11:54 am PST, Feb 10, Terry Harris, South Carolina
I am a 57yo woman. I am in business for myself, and it takes almost all I make to keep my business running. I checked around a couple months ago for health insurance, and the best price I could find was $550.00 a month! I can't afford that!! So, I am still without health insurance! What will happen if I get sick or have an accident? It's very frightening!
# 3,842:
5:50 pm PST, Feb 7, Tara Johnson, Texas
I can't afford $660 a month health insurance for my three children. So we have no insurance. I just pray all the time that nothing serious happens because it would bankrupt me. But $8000 a year for three healthy teenagers that never even need to see a doctor is just crazy.
# 3,841:
5:16 pm PST, Feb 6, Therese Ryan, California
# 3,840:
3:29 am PST, Feb 2, Chadaphon Anutarawiramkun, Thailand
# 3,839:
12:45 pm PST, Feb 1, Pamela Shaffer Stoll, California
I had canser twice, within two years, with no insurence. It took all we had, our iras and stocks. That was our retirement, now gone. I am now on SSI but now they are going to take my house, which we promise to our daughter, who has taken care of me for the last almost nine yrs. I also have copd, high blood pressure, ect.
# 3,838:
2:28 pm PST, Jan 30, Alexandra Sipiora, Illinois
I had to declare bankruptcy because I had over $150,000 in medical bills.
# 3,837:
9:25 am PST, Jan 26, Name not displayed, Canada
# 3,836:
3:08 pm PST, Jan 25, Amy Giza, Michigan
# 3,835:
3:12 pm PST, Jan 19, Kristina Chan, Canada
# 3,834:
3:49 pm PST, Jan 17, Nyama Mais, Canada
# 3,833:
12:34 pm PST, Jan 10, Wanda Perry, Wyoming
After back surgery, my premium was increased, and I could not afford the amount. I was forced to drop my insurance policy. I have arthritis, it destroys the cartilage in my joints. No insurance company would insure me after I had to drop my health care policy. .
# 3,832:
4:58 pm PST, Jan 5, Michelle Bustos, Illinois
I HAVE TOO MANY OF THESE STORIES TO TELL HERE. 1. My mothers legs were almost AMPUTATED because a HEAD DOCTOR decided to ignore her pleas when she stated that her legs (which were both in casts due to multiple breaks) were in pain and felt odd. He refused to even look at her legs and told her it was in her head. Finally she went numb and a horrible stench came from the casts. Finally she had to threaten to sue before anything was done. Her legs had become infected and were turning green. They stated the only option was to amputate. She refused and called a lawyer. She was taken to another hospital and they saved her legs. But the damage was done. Her legs were butchered, had a huge whole in one ankle going down through the bone straight to the heal. Muscles from one leg were removed, skin grafts were done,etc... Seventeen surgeries later, her legs ar completely deformed and she walks with a limp. 2. I went in to a hospital in Virginia to have a tick removed from my back, it took 5 MINUTES! When I got back to Chicago, they had sent me a bill for $747.00! Fraud and incompetence at it's best! These are only TWO stories, but I have many more. Doctors in this country DO NOT LISTEN TO THEIR PATIENTS! 3. My best friend growing up became a Radiologist, and she told me how the KITCHEN STAFF in her hospital liked to throw their DIRTY SOCKS INTO THE POTS OF SOUP THEY WERE COOKING FOR THE PATIENTS, and sometimes spat in these pots also! Horrible , sad, and UNJUST.
# 3,831:
6:18 pm PST, Jan 3, Arlena Morton, Indiana
My insrance has refused to pay for a medication that m neurologist prescribed. With insurance it would cost $40.00 a month. Without insurance, it is $300.00 per month, which I am not able to get, my other medications all together, even with insurance coverage, prevents me from doing so. Therefore I have to decide which ones are the most important to get.
# 3,830:
11:49 am PST, Jan 1, Anne Jernigan, North Carolina
# 3,829:
7:34 am PST, Jan 1, Tiberius Barrett, United Kingdom
# 3,828:
8:47 am PST, Dec 25, Carrie Weil, California
I work as a substitute teacher and have received 40 days work so far this school year. If I don't received 60 more days, my health coverage will end. I have not turned down any assignments offered. I think substitute teachers shouldn't have to experience uncertainty as to coverage. Also, if I wanted to go and talk to a therapist, I would have to fight terrible traffic because the HMO moved it to a location that is not a good location for me so as a result I don't go to the therapist.
# 3,827:
7:25 am PST, Dec 12, Anna Velasquez, Kansas
I had an accident in Oct.'07 w/a small wound on my left ankle.I wnet to see Dr.J Stanley Jones,Orthopetics.he kept telling me everything was fine & I knew it wasn't.I went to another place & they helped me some but told me to continue to see Dr.Jones.Jones told me & my home health nurse to just fill the hole & exposed bone w/ sugar & clean it w/vinager everyday.I ended up having my lower left leg amputated.If he had done his job I would still have my leg.Nobody even seems to care that this happened.
# 3,826:
6:44 pm PST, Dec 3, Christina Ospina, North Carolina
# 3,825:
6:02 pm PST, Nov 25, Melissa Boyce, South Carolina
I have experinced countless errors with various docters and nurses, but perhaps the worst was when I was given a pelvic ultrasound, and the protective cover was put on before the exam started. I contracted a bladder infection that took 3 months and 5 different perscriptions to clear.
# 3,823:
2:07 pm PST, Nov 23, Clarissa Silva, Nevada
Alot of physicians are not wanting to accept Medicaid patients due to the fact that the gov is wanting to reduce payment to these physicians. How are we going to get healthcare for our sick kids?? SMA Type II Maybe we should make a visit to see OBAMA??
# 3,822:
11:12 am PST, Nov 16, Lauren Meltzer, Pennsylvania
# 3,821:
11:29 am PST, Nov 13, Angela Murph, South Carolina
Insurance does not understand the need for medical equipment and medication. The cost for both of them is way too high. I have to fight the insurance company to accept my need for equipment for my son who has SMA type one. I guess people don't understand how health conditions like SMA works, so the children suffer and it makes their lives so much harder.
# 3,820:
6:51 am PST, Nov 13, Toni Sokoloski, Massachusetts
# 3,819:
10:19 am PST, Nov 12, Patricia Ansell, California
My husband and I are two years too young to qualify for medicare. He lost his job in January due to the economy and has been unable to find another (even part time) job. My company is small and does not provide an insurance plan. We have been on COBRA which costs us $1,100 per month and took most of his unemployment (which is now discontinued). About June of next year, our COBRA expires and they do not have to continue with us because we both have pre-existing conditions. We may or may not be able to find new insurance and may or may not be able to pay for it. We will then have to be uninsured for at least a year until we turn 65. During that time, one major illness for either one of us could bankrupt us. We could lose our house and everything that we have worked so hard for. Our only hope is that our politicians will give us a medical insurance plan at least as good as the one they enjoy!!!
# 3,818:
7:15 am PST, Nov 11, Name not displayed, Georgia
My family has had medical insurance coverage with the same company for over 20 years and yet in the past 2 years I have noticed significant changes. Fewer treatments are being covered and our premium keeps going up. In 2006 my daughter, who has osteoarthritis in her hip because of spinal fusion surgery, had a cortisone injection to relieve pain. Our insurance company paid about half of the expenses leaving us with a bill of over $900. In May of 2008 she had another cortisone injection for the same reason and our insurance company refused to cover the cost of it. We are currently appealing but have an outstanding bill of over $3000. We were unaware that the company had decided not to cover cortisone injections any more because we are not required to pre-certify outpatient procedures. Had we known we would have chosen another treatment.
# 3,817:
11:51 pm PST, Nov 10, Christina Braddy, Georgia
i have no health insurance i have no job because i have diabetes i cannot buy the very expensive insulin or test strips i need without any help i probably will die sooner than later where will that leave my 5 kids and my husband i am only 33 years old
# 3,816:
12:46 pm PST, Nov 10, Danielle Dalaba, Pennsylvania
Hello, My experience is with the Medical Assistance in my state. I had been receiving medical assistance for a couple of years, due to my low wage part time job. I had no option to buy insurance from my job. I have epilepsy, and the total cost of my prescriptions per month is $1300. At the job I was working, I began to be harrassed by a co-worker. The manager had been promoted from the front desk, and had no idea how to handle the situation. After six months, one day, the co-worker cornered me and was cursing at me. Several people witnessed it, but still the manager did nothing. So I told her I could not keep putting up with it and she needed to do something, she let me go. About a month after I lost my job, I came up for an evaluation for my medical assistance. When my case worker found out I lost my job, he cancelled my insurance and told me that I had to have a job to qualify for it. I know several people, my mom included, that have no job, and are collecting, not only medical assistance, but also cash assistance, and food stamps and living in assisted living housing where they don't have to pay rent if they don't have a job. I tried everything to get help from my case worker. He would not help me out at all, and dismissed me. I could not go without my seizure medicine. How can I get a job, if I end up not having seizure medication, and start having seizures? Luckily my Docter also knew how important it was for me to stay on my meds, so she kept giving me samples. I still have no insurance. However, after extensive searching, I have found a program online, that has helped me to get assistance with my medicine. I do not know what I will do when it is time for my next appointment with my doctors. I thought that public assistance was there to help people that need help. So why is it that it helps those that do not try, but fails those who really need it? Why did they take it from me when I lost my job? If anything I needed it most then.
# 3,815:
11:27 am PST, Nov 10, GREG WOODRUM, Kentucky
# 3,814:
10:12 am PST, Nov 10, Name not displayed, Connecticut
I work at a hair salon, and they only pay 30% of my health insurance which is $600.00 a month just for me. I think it is outrageous to pay these prices for the coverage I get. They need to do something for single people who pay most of their own health insurance.
# 3,813:
8:34 am PST, Nov 10, Jeanie Meraz, Nevada
This is about insurance benefits for my granddaughter. In June of 2006, my family was attacked early in the morning and my oldest daugther died from her injuries. Her daughter was a full time student and was covered under her insurance at the time. My granddaughter spent two weeks in the hospital from collapsed lungs from being stabbed. After the attack, she could not focus on school and spent over a year just trying to come to terms with what happened. She finally got a job as a nanny and tried to get an individual health plan. She was told that due to her collapsed lungs, she was not eligible because she had a pre existing condition. The monster who attacked us is well cared for in jail, but Megan, a victim is unable to afford the gauranteed issue to insure her health.
# 3,812:
7:46 am PST, Nov 10, Name not displayed, New York
It started out with a pain in my chest. One doctor claimed it was just pneumonia. He prescribed medicine that did not help. The 2nd doctor I went to claimed that there was nothing wrong with me. I finally wound up in a hospital for almost 3 weeks with a tube stuck in one of my lungs. It turned out that I had a fluid sack that might have killed me. I would just like to know where these doctors got their medical licenses.
# 3,811:
7:21 am PST, Nov 10, Kimberly Fox, California
My daughter is 8 years old and was diagnosed with a muscle disease at the age of two. I have been blessed to work for an employer who was able to provide us with health insurance until January of this year when they could no longer afford to offer it. We put my daughter on my husband's plan but he lost his job due to the economy twice this year. I found a program my daughter qualified for several years ago which provided us with MediCal as our secondary insurance. One of the criteria to receive it you must have home nursing to qualify for MediCal. Most nursing agencies are no longer accepting MediCal as they don't make enough to cover the cost of the nurses they hire. My agency just laid off 43 nurses including ours (who was working with us full time). If we can't find an agency to pick us up, or a job that provides insurance benefits Ashley will not have any coverage. My husband and I have worked hard and I have never collected unemployment. This system where people who have pre-existing conditions are uninsured is unbelievable. These are the people who need the insurance. What really kills me is people like one family member of mine who believes that there is no need for generalized health care and that it is an entitlement. Guess what! She is on disability and because of that, qualifies for a special program that only costs her 160 a month for medical and dental! Where does any of this make sense!!! Hey politicians! Fix this!!!!!!
# 3,810:
6:27 am PST, Nov 10, Steven Kirn, Illinois
Today's news reports a new study that shows regular administration of a statin lowers the incidence of heart attack by up to 50%. This is ironic, given the way that insurance companies rate applicants for health insurance. Like many others, my job was eliminated by a large employer several years ago. Since then (following COBRA expiration), we have been on the "individual purchaser" market for health insurance. This is an unmitigated mess, and the United States should be embarrassed. Shopping for insurance as an individual is complex, difficult, exhausting, and, at times, embarrassing. The application forms require detailed information about every health care provider or service used and condition treated for, essentially, your entire prior life. (I'm 61). In all honesty, very few people have maintained such detailed records, yet even an inadvertent omission, of even a simple procedure (e.g., common wart removal) is treated as a conscious attempt to distort one's medical history. (One question: if the companies' own ability to track such history can provide such detail, why do they need the applicant to do so? Or at least, let them start with what they already "know" and let the applicant supply missing information.) My wife and I were rejected by a number of companies, even though neither of us has had any major health problems (I did have my gall bladder removed.). Both of us have had borderline elevated blood pressure, yet it has been controlled for years with diet, exercise and minimal medication. And, back to the irony, my cholesterol was slightly elevated, and my physician recommended a statin -- which has worked extremely well, along with, again, diet and exercise -- and as reported today, these meds can prevent major coronary problems for very low cost. Yet these conditions, though successfully managed, served as the basis for rejection of a number of applications, and "rating" of others, including the Blue Cross plan we finally purchased. It costs $6000/year, has a $5200 deductible, and provides no prescription coverage. In essence, it covers only catastrophic events. We also have a 27-year-old daughter with rheumatoid arthritis who can only purchase insurance through a state coverage pool that is constantly under threat of financial collapse. There are no alternatives for her if that happens. I travel internationally and have seen systems such as that in France, which is often recognized as having one of the best health care delivery systems in the world. The Armageddon of which we are regularly warned if the "government" provided insurance is simply a myth. I am an avowed capitalist (albeit with a social conscience) who believes that capitalism is the wrong model when it comes to health insurance and health care. As I said earlier, the U.S. system is a mess, despite the delusion that it is "the best in the world". It simply is not. We have found ways to pay the nearly $25,000/year required for insurance, routine care, and treatment for my daughter. But in the current economy, we are seriously near the edge of being able to sustain coverage, and even the minimal-cost meds that prevent much bigger problems later. Is this truly the "best and highest use" of our capital, personally and societally? If our system is so great, why do we spend twice as much per capita on health care compared to virtually all other developed countries, yet rank near the bottom on most measures of "health"? We desperately need to get real about the health care crisis, and abandon the tired bromides about "government-run programs". (Anyone care to give up Medicare?) I'm all for "profit", but this is crazy -- and immoral.
# 3,809:
5:39 am PST, Nov 10, Maria Harrod, Virginia
I have been very sick for over 18 years now, since I was a teenager. I have been to over 25 doctors during this time, trying to find out what was wrong with me. My symptoms were very common: Fatigue, feeling tired a lot, poor concentration, poor memory, cold hands and feet, constipation, and in my older years now, I have low vitamin D (very common now) and high LDL cholesterol (I am 36 years old and I eat very healthy). I could not get one doctor to listen to me, they will never listen to the patients symptoms anymore. They just blow off the symptoms as if they were not real. Doctor's these days rely way too much on faulty blood tests that are just not accurate at all. My blood tests were normal, so I was told I was depressed and told to take antidepressants. This furiated me, but I did it anyway, I took those pills for so many years, but I never got better. That was until I read a great book called "Solved: The riddle of illness by Dr. Stephen Langer. And another great book called "Hypothyroidism Type 2" by Dr. Mark Starr, and "Feeling Fat, Fuzzy, and Frazzled" by Dr. Richard Shames. Then I did more research from an expert on the Thyroid, his name is Dr. Broda Barnes. Come to find out, I had a milder form of hypothyroidism that cannot show up in a blood test. The only way to be diagnosed is to check your early morning Basal Body Temperature, anything below 97.8F is a sign that your gas tank (or your thyroid) is not working properly. That will all of my long list of symptoms proved to me that I had Hypothyroidism, so I took my evidence to an open minded Endocronologist and he agreed. I am now taking the best medicine out there for my condition, and in my doctor''s opinion, the only medicine that works for hypothyroidism, and that is Called Armour, and it's a very cheap drug too, but most people are given Synthroid, a man made hormone that just makes them feel sicker, because doctor's get big bonus's giving out Synthroid for hypothyroidism, even though it's proven to not work on this disease. It's a sad world that we live in, that I have had to suffer this way for so many years... I just wish others could learn about what I now know. Maria Harrod
# 3,808:
5:38 am PST, Nov 10, Ellen Kitchel, Vermont
I am basically in fine health, just a few minor things that my PCP wanted to check up on. I also have health insurance I buy on my own every year, for about $9000 which I can't really afford but I feel I should have it. After having some blood tests, my annual mammogram, I realized that *everything* goes on the deductible which is $7500 a year... I found out when I had one of these tests that I needed a minor operation and because my bills were mounting up from the little stuff I asked what it would cost, and they told me that it would be almost $12,000 out of pocket! I have had to cancel my operation because I cannot pay for that, and the irony is that if I did not have health insurance and had not already paid $9000 I would have had the money for the operation that I'm sure they won't pay for.
# 3,807:
5:19 am PST, Nov 10, Name not displayed, South Africa
I was diagnosed with Cancer. The medical aid I am on is costly due to supposedly having "high cover". This medical aid has made my life a nightmare with their total lack of knowledge of what is claimable. I have gone from department to department and had to fight every week with them. It is so ridiculous with the outstanding amounts of "who pays what" that I ran out of money and could not even pay for a blood test which was covered under the cancer cover of the medical aid. Anyone in South Africa should check the small print of their medical aids. I am now broke, have R2500 of medical bills to pay now, (medical aid decided that 60/40 split was what they paid for a specialist), can not afford to go for a blood test prior to chemo next week. The medical aid is still running around promising to sort things out but that does not pay my bills and the amount of stress this has caused me is unmeasureable.
# 3,806:
5:09 am PST, Nov 10, Name not displayed, New York
I had a miscarriage last Oct. My fiance and I never met with my ob-gyn. The nurse practioner that we saw was not very friendly to begin with, and than when i had the miscarriage. we had to wait about an hr just to be seen at the ER. We spent 5 and a half hours at the ER after that just to be told that i had lost the baby. No reason as to why. They didn't give us any comfort or anything.
# 3,805:
7:37 am PST, Nov 8, Stephanie Lessard, New Hampshire
i went to see a doctor about my back hurting without testing me he started to perscribe meds. after continue to complain it wasn't helping he just kept perscribing diffrent meds. then one sunday i awoke felling sharp pains run through my right side the pain kept getting worse to the point my boyfriend had to call the ambulence i was rushed to the hospital they ran a couple test and found that i had an ulcer and they believed hat all the meds. he perscribed me caused the ulcer to burst creating a hole in my colon.and that i could have died the surgen said all he had to do is take a blood test and he would have known i had an ulcer.
# 3,804:
2:30 am PST, Nov 8, Toni King, Georgia
# 3,803:
11:56 am PST, Nov 7, Audrey Tobias, California
# 3,802:
8:43 pm PDT, Oct 28, Christine Witman, Pennsylvania
I have no insurance coverage and do not have the money to get any. I need to keep a roof over my head and food on my table.
# 3,801:
1:03 am PDT, Oct 26, Alex Won, California
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