PNH is a rare disorder which involves the rapid destruction of red blood cells. There are many symptoms of the condition which are detrimental to the quality of life of patients. If untreated PNH can result in life threatening blood clots.
Soliris is a life saving treatment which has been proven to improve the quality of life for PNH sufferers. Soliris is currently being considered for funding by the New Zealand Government's drug buying agency, Pharmac.
The Soliris treatement is currently available via National Healthcare providers in Australia, the United Kingdom, Japan, Korea and Canada amongst others.
Please sign our petetion and send a message to the New Zealand government: New Zealanders need access to Soliris!