Fund Myozyme For Pompe Patients

Myself and 6 other Kiwis have a fatal disease known as Pompe Disease. There is a medication available in NZ which will stop the progression of the disease and give some improvement. However, Pharmac refuses to fund this treatment, thereby sentencing all sufferers to an early death. 

Numerous letters to John Key begging for our lives have gone unanswered.

PLEASE help us with our campaign to get this drug funded in New Zealand. 

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