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Sanfilippo Syndrome Zoe Adams "Changing The World"

af: Constance Jones
mottagare: Health Care

Zoe Adams age 6 who resides with her parents and brother in Edgewater Florida, was diagnosed with Sanfilippo Syndrome in March 2017.
What infuriates me so much is for Zoe or any child with Sanfilippo Syndrome to be picked for clinical research to try and save their lives ...A so - called LOTTERY system is be utilized ...1 in 70,000 children have Sanfilippo Syndrome! We are not gambling here this is saving children's lives. This needs to stop! They all need to be picked for the research! I will fly to Ohio if need be!
Please let's help all these children with thousands of signatures that will be sent to the Children's Hospital Of Ohio. Thank You #MaMaC president of Children R Our Future Of Volusia County Inc
"One Hug & One Smile @ A Time "

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Sanfilippo Syndrome Zoe Adams "Changing The World"