Demand More help for single parents of children with Disabilities.

I am a single mother of a 11yr old boy who has Autism and cerebral palsy, Till this day I have yet to receive any kind of Respite help or in home educators for when my son MUST be absent from school or no occupational therapy, no physical therapy, nor speech. He's non-verbal and not potty trained and only feeds by a tube in hus stomach all they want to do is keep ordering meds. I do as much as I can but if it takes a VILLAGE to raise 1 child with no disabilities then what does it take to raise one with?