Make January 6th OMS Awareness Day!
UNTIL THE WHOLE WORLD HEARS!
www.omsawareness.com
The Rhythm of Life Project wants to establish January 6th as National OMS Awareness Day! OMS is believed to be a neurological auto-immune response in which the bodies own immune system wages war on the patients brain. OMS is typically triggered by a presentation of Neuroblastoma or a virus. It affects only 1 in 10 million. It is vitally important for these kids to have early diagnosis and intervention to avoid long term treatments and brain damage. OMS is so rare that most doctors don't even know what it is, never mind how to treat it. We want to award one day out of a year for every person reachable to be reminded that these kids are fighting for their lives, while the world just rumbles on around them.
We chose January 6th as the day we'd like to make OMS Awareness Day in honor of Zoe Cadence (whom the Rhythm of Life Project is named after). She was diagnosed January 6, 2006 and continues to fight with no remission accomplished yet. It is her fighting spirit that keeps us focused on finding a cure and spreading awareness.
www.omsawareness.com
We, the undersigned, wish to make January 6th National OMS Awareness Day. In an effort to save lives and prevent long term damage. Educating the public about OMS is crucial. Having a special day dedicated to OMS awareness will give us the platform needed to launch publicity of OMS stories and bring awareness to not only families across the country but to our politicians and medical personnel as well. We are so grateful that you have taken the time to read our letter and hope that you will consider making our Awareness Day official.
