NORD - National Organization for Rare Disorders
We would like to shed light on disorders that have been kept in the dark for too long. We are suffering from diseases that many doctors have not heard of (McCune Albright Syndrome, Stiff Persons Syndrome, Autism). We need to inform the world that so many people are going unnoticed, misdiagnosed or not diagnosed. The National Organization for Rare Disorders is one of the few non-profit organizations that work very hard to help this very cause.
We the undersigned, would like to spread awareness about the numerous rare disorders that are out there. We are suffering or our lives have been touched by rare disorders, such as McCune Albright Syndrome, Stiff Persons Syndrome, Autism, etc. It is all too often that we go to a doctor and have to teach them about our condition. Please help us to bring awareness! Thank you for your time & concern!
