HELP SAVE A CHILD'S LIFE
- al: RYAN GARDNER MALROTATION AWARENESS
- destinatario: PARENTS, FAMILIES, NEW AND EXPECTING MOTHERS, ANYONE.
MALROTATION IS A BIRTH DEFECT THAT IS MORE COMMON THAN WHAT YOU THINK. IT IS ALSO A BIRTH DEFECT THAT IS NOT TESTED FOR, BUT EASILY DETECTED BEFORE BIRTH. THE PROBLEM IS THAT DOCTORS DO NOT TRY TO DETECT THIS PARTICULAR BIRTH DEFECT EVEN THOUGH IT IS MORE COMMON THAN CLEFT LIP/PALATE OR DOWN SYNDROME. THIS DEFECT IS FATAL BECAUSE IT CAN CAUSE A CONDITION CALLED VOLVULUS. I KNOW THIS BECAUSE MY DAUGHTER, GEORGIA, DIED FROM THIS DEFECT ON OCTOBER 23RD, 2008. HELP US BY SIGNING THIS PETITION TO SHOW DOCTORS, INSURANCE COMPANIES, AND THE LEGISLATURE THAT BY PROVIDING A SIMPLE ULTRASOUND OR X-RAY THAT THIS DEFECT CAN BE DETECTED AND CORRECTED BEFORE IT CLAIMS THE LIFE OF MORE CHILDREN.
WE THE UNDERSIGNED WANT TO INFORM YOU ABOUT A BIRTH DEFECT CALLED MALROTATION. MY 11 MONTH OLD DAUGHTER, GEORGIA, DIED FROM THIS BIRTH DEFECT ON OCT. 23RD, 2008. GEORGIA WAS A VERY HAPPY, HEALTHY, AND ABOVE STANDARD BABY. SHE HAD BEEN WALKING AND TALKING MONTHS PRIOR TO HER DEATH. MALROTATION IS A BIRTH DEFECT THAT AFFECTS THE INTESTINES. THE INTESTINES WHILE BEING FORMED DURING PREGNANCY MAKE CERTAIN TURNS TO FIT NEATLY INSIDE THE BODY. MALROTATION IS WHEN THE INTESTINES DO NOT MAKE THOSE CERTAIN TURNS AND DO NOT SIT IN THE CORRECT PLACE. MALROTATION IS MORE COMMON THAN CLEFT LIP/PALATE, DOWN SYNDROME AND NEURAL TUBE DEFECTS. IT IS LIKE HAVING A TICKING TIME BOMB INSIDE YOUR BODY. WHY? IT CAUSES A CONDITION CALLED VOLVULUS. THIS IS WHEN THE INTESTINES TWIST, CUTTING OFF BLOOD SUPPLY WHICH IN TURN CAN CAUSE THE INTESTINES TO DIE. VOLVULUS CAN CAUSE MAJOR DAMAGE OR CAN BE FATAL, AS IN THE CASE OF MY DAUGHTER. EVEN IF THE MALROTATION IS CAUGHT IN TIME, THERE MAY BE TOO MUCH DAMAGE TO THE INTESTINES FOR THE CHILD TO THRIVE.
THERE ARE NO BROCHURES AT THE DOCTOR'S OFFICE ON MALROTATION, AND DOCTORS DO NOT EVEN MENTION THE POSSIBILITY OF IT HAPPENING. THERE ARE SEVERAL CONDITIONS AND BIRTH DEFECTS THAT DOCTORS DO CHECK FOR DURING PREGNANCY, BUT UNFORTUNATELY MALROTATION IS NOT ONE OF THEM. I DO NOT UNDERSTAND WHY WHEN IT IS SECOND ON THE BIRTH DEFECT LIST, ONLY TO HEART DEFECTS. DOCTORS DO NOT TRY TO DETECT MALROTATION UNTIL THE PATIENT PRESENTS PROBLEMS ASSOCIATED WITH THIS BIRTH DEFECT. SO, INSTEAD OF TAKING A PROACTIVE APPROACH, THEY TAKE A REACTIVE, WHICH IS UNACCEPTABLE. ESPECIALLY BECAUSE THIS DEFECT CAN BE DETECTED PRIOR TO BIRTH AND AFTER BIRTH. MALROTATION IS VISIBLE ON ULTRASOUND AND ON A SIMPLE X-RAY.
IT IS OUR GOAL TO INCREASE AWARENESS ABOUT MALROTATION AND TO IMPLEMENT CHANGE WHEN IT COMES TO PRENATAL CARE FOR WOMEN AND THE DETECTION OF THIS DEFECT. HELP US BY SIGNING OUR PETITION SO THAT WE MAY SHOW DOCTORS, INSURANCE COMPANIES, AND THE LEGISLATURE THAT BY ADDING A SIMPLE TEST TO PRENATAL CHECK-UPS OR BY PERFORMING A SIMPLE X-RAY THAT THIS DEFECT CAN BE DETECTED BEFORE IT CAUSES MAJOR COMPLICATIONS OR DEATH.
NO CHILD SHOULD HAVE TO DIE, ESPECIALLY WHEN IT IS PREVENTABLE.
THANK YOU FOR TAKING THE TIME OUT OF YOUR BUSY SCHEDULE TO READ OUR PETITION. THANK YOU FOR YOUR CONSIDERATION ON THIS SUBJECT. PLEASE HELP US TO HELP OTHERS, SO THAT THEY DO NOT HAVE TO KNOW THE HORRIBLE PAIN OF LOSING A CHILD. TAKE CARE.
firma la peticiónfirma la peticiónTHERE ARE NO BROCHURES AT THE DOCTOR'S OFFICE ON MALROTATION, AND DOCTORS DO NOT EVEN MENTION THE POSSIBILITY OF IT HAPPENING. THERE ARE SEVERAL CONDITIONS AND BIRTH DEFECTS THAT DOCTORS DO CHECK FOR DURING PREGNANCY, BUT UNFORTUNATELY MALROTATION IS NOT ONE OF THEM. I DO NOT UNDERSTAND WHY WHEN IT IS SECOND ON THE BIRTH DEFECT LIST, ONLY TO HEART DEFECTS. DOCTORS DO NOT TRY TO DETECT MALROTATION UNTIL THE PATIENT PRESENTS PROBLEMS ASSOCIATED WITH THIS BIRTH DEFECT. SO, INSTEAD OF TAKING A PROACTIVE APPROACH, THEY TAKE A REACTIVE, WHICH IS UNACCEPTABLE. ESPECIALLY BECAUSE THIS DEFECT CAN BE DETECTED PRIOR TO BIRTH AND AFTER BIRTH. MALROTATION IS VISIBLE ON ULTRASOUND AND ON A SIMPLE X-RAY.
IT IS OUR GOAL TO INCREASE AWARENESS ABOUT MALROTATION AND TO IMPLEMENT CHANGE WHEN IT COMES TO PRENATAL CARE FOR WOMEN AND THE DETECTION OF THIS DEFECT. HELP US BY SIGNING OUR PETITION SO THAT WE MAY SHOW DOCTORS, INSURANCE COMPANIES, AND THE LEGISLATURE THAT BY ADDING A SIMPLE TEST TO PRENATAL CHECK-UPS OR BY PERFORMING A SIMPLE X-RAY THAT THIS DEFECT CAN BE DETECTED BEFORE IT CAUSES MAJOR COMPLICATIONS OR DEATH.
NO CHILD SHOULD HAVE TO DIE, ESPECIALLY WHEN IT IS PREVENTABLE.
THANK YOU FOR TAKING THE TIME OUT OF YOUR BUSY SCHEDULE TO READ OUR PETITION. THANK YOU FOR YOUR CONSIDERATION ON THIS SUBJECT. PLEASE HELP US TO HELP OTHERS, SO THAT THEY DO NOT HAVE TO KNOW THE HORRIBLE PAIN OF LOSING A CHILD. TAKE CARE.
Ver más peticiones:
Has deshabilitado JavaScript. Sin este programa, puede que nuestro sitio no funcione debidamente.
al firmar, aceptas los condiciones del servicio de Care2 Puede administrar sus suscripciones por correo electrónico en cualquier momento.
¿Tienes dificultades para firmarla?? Infórmanos.