Support patients with Sickle Cell Disease

Hello​ ​my​ ​name​ ​is​ ​Edith​ ​Browne​ ​I​ ​was​​ ​​diagnosed​​ ​​with​​ ​​sickle​​ ​​cell​ ​disease​​ ​​at​​ ​​birth​ ​and​ ​I​ ​have​ ​been living​ ​with​ ​sickle​ ​cell​ ​and​ ​many​ ​life​ ​threatening​ ​complications​ ​it​ ​comes​ ​with.

Sickle​​ ​​cell​​ ​​disease​​ ​​is​​ ​​an​​ ​​inherited​​ ​​blood​​ ​​disorder​​ ​​that​​ ​​causes​​ ​​red​​ ​​blood​​ ​​cells​​ ​​to​​ ​​become hardened​​ ​​and​​ ​​form​​ ​​crescent​​ ​​or​​ ​​“sickle”​​ ​​shapes.​​ ​​Sickle-shaped​​ ​​cells​​ ​​are​​ ​​not​​ ​​flexible​​ ​​and can​​ ​​stick​​ ​​to​​ ​​vessel​​ ​​walls,​​ ​​causing​​ ​​a​​ ​​blockage​​ ​​that​​ ​​slows​​ ​​or​​ ​​stops​​ ​​the​​ ​​flow​​ ​​of​​ ​​blood​​ ​​which​​ ​​can​​ ​​be​​ ​​terribly​​ ​​painful​​ ​​and​​ ​​potentially​​ ​​deadly.

​​Lately​ ​I​ ​began​ ​to​ ​suffer​ ​dramatically​ ​and​ ​it​ ​has​ ​taken​ ​a​ ​toll​ ​on​ ​me​ ​I​ ​could​ ​no​ ​longer​ ​push​ ​myself. As​ ​I’ve​ ​gotten​ ​older​ ​my​ ​Sickle​ ​Cell​ ​Disease​ ​had​ ​manifest​ ​and​ ​everything​ ​seemed​ ​to​ ​have​ ​gotten
more​ ​of​ ​a​ ​struggle​ ​it​ ​was​ ​affecting​ ​my​ ​performance​ ​at​ ​work​ ​as​ ​it​ ​is​ ​was​ ​my​ ​livelihood.

As​ ​a​ ​result​ ​I​ ​had​ ​to​ ​go​ ​out​ ​on​ ​sick​ ​leave​ ​and​​ ​​applied​​ ​​for​​ ​​my​ ​pension​ ​but​​ ​​​I​​ ​​was​​ ​​denied​​ ​​help​​ ​​from the​ ​very​ ​same​ ​state​ ​department​ ​of​ ​20​ ​years.

My​ ​efforts​ ​and​ ​dedicated​ ​years​ ​in​ ​anguish​ ​and​ ​still​ ​on​ ​the​ ​job​ ​obviously​ ​went​ ​unnoticed.​ ​Now​ ​I must​ ​begin​ ​to​ ​fight​ ​and​ ​make​ ​a​ ​statement​ ​for​ ​people​ ​who​ ​suffer​ ​with​ ​Sickle​ ​Cell​ ​Disease​ ​and
how​ ​it’s​ ​misunderstood​ ​and​ ​that​ ​the​ ​expenses​ ​that​ ​come​ ​with​ ​treating​ ​a​ ​lifelong​ ​disease​ ​are costly.

This​​​ ​​​is​​​ ​​​where​​​ ​​​you​​​ ​​​come​​​ ​​​in.​​​ ​​​You​​​ ​​​can​​​ ​​​help​​​ ​​​support​​​ ​​​brave​​​ ​​​people​​ ​​like​​ ​​myself​​ ​​during​​ ​​this​ ​ordeal.​ ​Support​​ ​​Sickle​​​ ​​​Cell​​​ ​​awareness​.
Give​ ​thanks​ ​for​ ​the​ ​healthy​ ​people​ ​in​ ​your​ ​life,​ ​and​ ​show​ ​support​ ​to​ ​those​ ​who​ ​are​ ​not.​ ​Thank you.

Firma la petizione
Firma la petizione
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