Noah is the beautiful youngest son of Gemma and Scott Dixey. He is 5, and since he was 8 weeks old has been in and out of hospital after being diagnosed with a rare genetic condition alagilles syndrome. The latest, after being poorly over Christmas, admitted to hospital at new year, then again for the past 8 days-coming home to the news that Leicestershire County Council want to pull Noah's 1-1 School funding as his condition apparently doesn't effect him educationally!
This is the boy who has a NG tube, a Stoma bag, on 15 meds multiple times a day, in stage 2 renal failure, is underweight with poor muscle tone, and these are just a small few of his issues.
Is he supposed to change his Stoma bag himself? Self administer medication down his ng tube whilst at school? Safely take his ng tube out if he sicks it up? Take himself off to the toilet to change his clothes if he has an accident or bile leaks on his clothes? All this whilst he is in a class of 34 children, that I believe is over full.
We need to get Noah's story heard. We need to get justice for him. Please share and sign to show your support for Noah and his family To keep this much needed funding.
