Help families with A-T children

Ataxia telangiectasia A-T for short is a disease that hits young children and even though there's only 35 known families in aust and 1000 known cases in the world it's a debilitating disease that mimics 5 major diseases which are immune deficiency, cystic fibrousis, cerebral palsy, cancer and leukaemia, most children who contract ths disease are in a wheelchair by 10 years of age.  There is no known cure for this disease and worse no-one is looking for one. Please we need funding for research and hopefully a cure or meds that will help. These kids are dying without anyone helping.