To help find a cure for spinal muscular atrophy. Sometimes after a clinical trial is conducted it could be years before it is introduced to the public and for so many babies, children and people of older age with this disease, it could be to late. The FDA needs to see that this disease moves fast and people don't have years to wait for the FDA to decide when these cures and or treatments can be available to the public. The main idea is that after a clinical trial is conducted and finished with outstanding results, resulting in hope for the disease to be cured or give people a better quality of life it needs to go out into the community. It's horrible to think of the patients that were on a clinical trial came out of it with great results and you or your child, husband, wife, grandchild is at home and can't get the treatment for another 10 years or however long it takes before the treatment is available to the public. The hope is to have the FDA move quicker at getting these treatments into our health community. I am doing this so my little boy and all the others can live and not let this disease kill them.
