I want to make people aware of the complication of gastroschisis and to share my daughter's traumatic story

I gave birth to eliza lou at 35 week's 5 as during my pregnancy she had developed gastroscisis which was her bowel was on the outside but that was no worry as several women monthly have this and all babies get home well Today at 6.50 am I got rushed down theatre to get my baby girl out of me in an emergency C section as her heart vareabilty wasn't right meant she has to get out quick I was so scared but it was just an unreal moment that I was actually going to meet my first love my first beautiful shining princess I was laying down being told she's coming no noise no crying just silence... then she came still silence got whipped away to have her abdominal put back in bare this in mind I still dint meet her or hear her precious voice my mum ran to the room opposite to take one photo of Eliza Lou so I could see before she went what she looked like and she was just stunnin I got took to recovery for 4 hours whilst Eliza was in theatre after I got took down to neonatal unit to see my baby for the first time !! She looked so well so healthy and also so happy!! I could not be any happier I was a mummy finally to my baby Eliza lou💓❣❣💓💓her operation went so well!! But unfortunately Eliza had 210 cm of bowel removed it was not a problem after a few weeks of eliza achieving so much in such a spacious time I got told she was coming home!!!! Before this I got told what to do with her stoma (this is what got fitted after the bowel was but in the belly) for when she returns home at this point eliza was gaining loads of weight and producing loads of poo is what we needed to see!! This was six weeks later she was in the nursery ready to come home until shortly after she was sick and it looked like a green substance I called poo!!!!🤤😧 I informed all staff and doctors but no one took this in consideration or did nothing about it I was told it isn't!... it was so frustrating as it's a mother's instinct to know and they just went over that did not take any bother
because Eliza was sick next day i said the same again and got ignored she was still briging that same green substance that night i went home as a regulary thing in the morning i returned to my princess Round 10 oclock after getting her clothes from tesco i walked in the room and she wasnt there?? Nurses came running over to me asking me to follow there she was in intensive suppprt back in a incubator she looked gone to me already i was telling them it isnt eliza please take me to her shouting ehat happened no one rang me over nighy Eliza took ill and i didnt get told I got told she had to go down to theatre to have a long line but in her upper chest so that it feeds her iv fluids now she has been sick well that went wel they xrayed it so see if that was in the right place an during that they seen shadow on her abdomen and which meant that the day before I was right she was being sick no one listened or believed... now I was having to go threw and stage or life or death with Eliza her bowel had perforated (popped) I got told to run theatre and sign a paper so they can go straight in I did this whilst being told she might not make it !! She got taken back itu after hours of me not knowing what had happened to Eliza in theatre I got told she's stable but critical for many many hours still not knowing anything weather I screamed or grabbed!!..💔💔Monday the 26th September Eliza had caught scaplococal skin syndrome from the theatre which made her head to feet blisters like my baby girl had been chucked in boiling water they had destroyed her over that night and I never no why... I later realised Elizas finger tips were going purple I told staff that the caula needs to be removed NOW I got ignored it began to spread up her hand all the way past her elbow I then told doctors and got told the same answer later on I knew it was septicemia they tried to think as a 16 year old I don't know anything well your wrong I do I got told it was sepsis do they THINK I'M REALLY THAT STUPID TO NOT NO SEPSIS IS SEPTICEMIA????? I was near the end of everything when they didnt take any antibiotic courses on or anyrhing then an ecmo course came about witch would of removed Eliza from Leicester Royal infirmary which I needed an put her on a course she would most likely survive on I wanted to and begged for this to happen but no matter what I did or said they just would not do anything bare in mind they told me it was an option this would of saved Eliza they just left her suffering I begged to know what happened in theatre still nothing I then got told it's time for machines to be turned of I screamed the place down and said no one is to tell me when the machine is to be turned of I might be 16 but I am still a mother to my beautiful baby and I won't let any one try any thing different bigot priest in 25 of daily around praying for her to make it I got her christened believing there's a god to help this traumatic time finally Thursday Eliza got treated for septocwmia but it was to late i made the very difficult dissucin knowing that nothing I did they wouldn't do she can't lay in the pain she was in any more!! Well after all this fight I won't let them get away with what they did i did a post mortem to get results to why this happened as I was lead to nothing but septecemia scalolphocol skin syndrome and gastroscics which she didn't have any longer I was told 12 weeks most I will receive well I'm at her 1st birthday and still no results I rang the papers and told them everything they said I can't put this in as it isn't been trolled which means hundreds of people on my side but how sad I need to get that so my baby girls story goes out??
I really want this to get out there my daughter deserved better than this gastroscisis is so serious to what it's spoken about