Save Lives. Ask legistlatures to improve patient access to experimental drugs HR909

1 in 10 people suffer from a rare disease, that’s 30 million people and 7000+ rare diseases.
People are dying while medications exist that can save their lives.

It can take more than 15 years for a drug to go through development and FDA approval, but patients don’t have years to wait.

95% of rare diseases have no FDA-approved treatments, access to experimental drugs is often a patient’s only option.

The Compassionate Use Reform & Enhancement Act (CURE ACT) provides guidance for companies to establish public expanded access policies and creates a task force to explore how to improve patient access to experimental therapies.

Rare diseases are often terminal, doing nothing is a greater risk of death than an experimental treatment.

Please sign the petition and give us hope