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We Demand an end of, " AIP, Acute INTERMITTENT Porphyria",

  • av: Jovonna Williams
  • mottagare: To open a APF Government Sponsored Foundation that gets specialist from all over the world to help in finding cures for all the type of Porphyria's and educate Dr's, Hospital's, educate the people who have just found out about this terrible genetic disor

AIP is a genetic disorder that effects the liver. In Missouri ,Hospital's ,Dr's, Insurance Companies, don't care. We need to make them care. We are not Drug seekers, bi- apolar our some other ridiculous mental disorder. We suffer daily on a scale pain level of 10 everyday. It is inherited through generation's if your family. My Mother,died at 52, I have it and I'm 56, My daughter 36 and 2 granddaughter's 21 and 15 still need to be tested, but the Dr's will only do a urine test. It can only be a medical genetic blood test.

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